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Post by Karen on Dec 12, 2010 19:40:47 GMT -5
Ooh oooh oooooooooooooh!!
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Post by cherry on Dec 12, 2010 21:03:28 GMT -5
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Post by Karen on Dec 12, 2010 21:29:59 GMT -5
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Post by uncomfortable on Dec 14, 2010 21:28:09 GMT -5
missworld.tumblr.com/post/2307792738/womens-group-fights-stigma-of-menstruation-viaI think this is a really interesting concept. I would in theory love to be able to take time off without having to worry about repercussions, but Do you think it would bring up a whole host of other issues? I think it could and would hinder equality in the hiring process. But the option to have it would be very beneficial for those of us who can't make it out of bed on some days.
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Post by JC on Dec 23, 2010 10:10:43 GMT -5
I was thinking about why this disease is so painful and I googled "nerve density" and found this article. Basically endometriosis seems to be able to increase the nerve density where these tissue implants are. Seriously, they have a mind of their own! Background/Aims: Deep infiltrating endometriosis is a very painful condition and the mechanism of pain is still poorly understood. Pain and hyperalgesia can partly be explained by an increased number of nerve structures in the painful lesion. In order to clarify this issue, we assessed the nerve density in deep infiltrating endometriotic nodules of the posterior vagina and in the adjacent healthy vaginal tissue of the same patient. Methods: A prospective clinical and pathological study of 31 cases of deep infiltrating vaginal endometriotic nodules was conducted. Fifteen patients were in the proliferative phase and 16 in the secretory phase. The nerve density was studied by immunohistochemistry with the monoclonal antibody NF against neurofilaments in deep infiltrating endometriosis and in the adjacent unaffected vaginal tissue in the proliferative and in the secretory phases. Neurofilaments constitute the main structural elements of neuronal axons and dendrites. Results: The nerve density was significantly different in the endometriotic nodule than in the adjacent unaffected vaginal tissue (p = 0.0013). The same significant difference was found between endometriotic nodules and the unaffected vagina in the proliferative phase (p = 0.009) and in the secretory phase (p = 0.04). This difference was not significant between the proliferative and the secretory phases in the endometriotic lesions and in the controls. Conclusions: We hypothesize that the significantly increased number of nerve structures in the endometriotic nodules may contribute to the occurrence of severe and neuropathic pain that characterizes these lesions content.karger.com/ProdukteDB/produkte.asp?Doi=320750
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Post by JC on Dec 23, 2010 10:13:17 GMT -5
Oh great and I found another article that says some neurons down there have estrogen receptors. I don't know what all this means just yet but all of us with our wacky hormones, I'm not surprised that we feel so much pain!
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Post by Karen on Dec 23, 2010 10:28:44 GMT -5
Nice to know there are studies being done to investigate this stuff! Thanks for sharing!
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Post by JC on Dec 30, 2010 9:12:14 GMT -5
Hey I got some cool insider doctor info!! If you go into google and type in "emedicine xxx" followed by whatever condition you are looking for, it will give you a very reputable source of information that doctors use to look things up. This is like their google for crap they don't know. It's a doctor secret! shhhhh!!
So if you're seeing a doctor and you have something they don't know of, this is where they go for a quick reference! Try it out!
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Post by KSA on Dec 30, 2010 22:46:11 GMT -5
Thanks Jenaya. Very interesting I have a librarian secret site we use GOOGLE lol to look up everything we dont know. I am not sure what professionals would do with out sites like google or emedicine. Got have something for quick reference.
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Post by JC on Dec 31, 2010 15:28:58 GMT -5
The only thing about emedicine is that it's not in layman's terms.
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Post by gemstone on Jan 7, 2011 14:10:43 GMT -5
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Post by lorenangelande on Jan 18, 2011 17:13:59 GMT -5
Maybe you all know already, or I am just easily excited (or both) but I just got my Women's Health Magazine in the mail today and there was a little article "Trouble Down Below" that mentioned Endo! I was so excited because I have been trying to explain it to my co-workers (which is mostly mean - Soldiers) and it helps to see it in the magazines. I am taking it to my doc tomorrow, because it states in the article that any woman who is diagnosed should be given "a tailored health plan that lets her move past the pain and get on with her life". I know I was excited but then again, I am easily excited. I really hope more info gets out especially on the military side. Every Army Doc I have spoken with, and asked for more advice or info on Endo has just said the basic "well it is the lining from your uterus on other parts of your body.." when I ask what their advice is they say " I don't really know, I will have to refer you off-base" and here that means the German hospitals. I am not complaining about the German Docs, they have been helpful with more information about Endo but the only treatment plan is the Zoladex for three months, and then they want to go straight to insemination. I don't really have a lot of options overseas. Also sucks to say, that I have been in the military for about a decade and the first time the military docs did anything that actually helped my ENDO was when they referred me to the German Docs for infertility checks, the German docs did the recommendation for Lap and then found the Endo!! Took me getting married and trying to get pregnant for over a year to get diagnosed. Oh it is frustrating! How many other women are there in the military that haven't been diagnosed yet because the military docs don't want to do the extra step? SOrry for my rants! I am really excited about the article though. =) ;D
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Post by pretty on Jan 18, 2011 17:18:13 GMT -5
Hey good to see you out there Loren! Yeah when I see endo on something i get excited too... like, all we need is to get the word out there so more women don't have to wait YEARS and years to get a diagnosis... so we need awareness, smarter doctors, and a cure how's your symptoms doing> feeling any better? Lisa
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Post by Karen on Jan 24, 2011 19:28:39 GMT -5
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Post by KSA on Feb 18, 2011 12:47:53 GMT -5
Thanks Gemstone we have a Endometriosis Awareness Events thread I'm going to go ahead and move your post over to that thread. That event is the same weekend as the Endo Ball put on by the Endo Center in NYC.
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