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Post by JackMcFarland on Sept 10, 2008 13:59:21 GMT -5
Ok, so I need your opinions. It's been 14 months since my last lap. Severe stage 3 endo was found, including some on the underside of my uterus and bowels. Slowly my pain has been getting worse. I have a lots of pulling from my ovaries, as if a string is attached and someone is pulling me towards them. My periods are lasting longer with heavier bleeding. I'm also starting to clot... A LOT. My bowels are allllll over the place. Despite my nearly perfect (I admit to splurging on ice cream here and there!!! haha) diet, I find that every morning I have terribly painful BMs. I've cut back on bread 110% to see if that was causing some swelling in my tummy, but my tummy never seems to not be bloated. I'd rather not go in again, but even my following the endo diet isn't helping. The pill doesn't work for me... I get sooo sick on it. Proest cream is causing my periods to ve more irregular than if I'm not using it at all (I use it only 2 weeks now). I is confused I'm hoping I can wait till at least next July... the 2 yr mark for my lap... to think about another. At least I'll be 25 and in better shape to think about a family. But, I'm also wondering if I shouldn't wait? With the aggressiveness of my endo... THoughts?? Help...
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Post by lmk1019 on Sept 10, 2008 14:34:55 GMT -5
I would suggest not waiting. As you know, I have had 4 already. Between 2 and 3 there was about 2 years. My third was on an emergency basis and the doc said I should never ever have waited that long with the way it progresses. Once it starts getting worse, if its not treated, it will not get better... thats my thought anyways.. good luck hun!!
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Post by jjuls22 on Sept 10, 2008 15:25:37 GMT -5
hmmmmm... welll.... 1) can you afford it 2) can you bare the pain to get worse 3)can you not have periods? 4)if its getting worse, isnt there a better possiblity of it spreading if you leave it alone? 5) can you take time off of work?
I think we all just have to decide enough is enough and if you're getting to that point then you need to speak with your doctor about it. Im sure we all know that surgeries are going to be a major part of our lives (untill we decide to scoop it all out!) and i guess it just depends on your attitude. Have you tried any type of therapy? herbs? accupuncture?
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Post by JackMcFarland on Sept 10, 2008 15:58:47 GMT -5
1) yes. insurance will cover it. 2) im at the "enough is enough" point. i cant sneeze without grabbing my pelvis. lol 3) tried going back on the pill. i couldnt keep food down. i never had a good relationship with birth control. lmao 4) with me... i know for sure itll spread. and the fact im getting my period every month is probably not a great thing.... 5) im unemployed. haha 6) ive tried all natural... doing that now its keeping other things at bay, but unfortunately, the pain is getting progressively worse again. my attitude now is... i dont know what is the right thing to do?? ya know? its like, i wanna know whats going on inside, but i dont want to go through another surgery if i dont have to? and this might be a dumb fear... but what if i chose surgery and they go in and find nothing? as much as im hoping they go in and find nothing, its like "well wtf did i do all that for!?" its silly. i know. right now, im trying to postpone it with natural treatments... but im wondering if i should go back and have a lap and then continue on with the natural treatment. i waited nearly a year after my last lap to go all natural.
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Post by ouchy on Sept 10, 2008 16:07:50 GMT -5
Go. I almost didn't have my last lap bc I was freaked out not to talk to my doctor beforehand (He was enroute from another hospital/surgery.). My husband talked me in to it, and it is a good thing. It was all over my intestines and my appendix could barely be removed laparascopically due to all the endo. I almost needed an laparotomy. I'm glad I didn't wait even another month. I say have a lap AND continue natural.
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Post by JackMcFarland on Sept 10, 2008 17:15:49 GMT -5
I've had a laparotomy during both laps, and I scheduled an appointment for Oct 1st. Issue is, my Dr is 2.5 hours north of where I'm living right now... and I refuse to find a new Dr! I love this guy and will travel to see him. Last appt. he said he doesn't want to go back in, hence the pill. I'm just over it! I'm ready to take it all out. LOL.
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Post by ouchy on Sept 10, 2008 17:30:12 GMT -5
does he not want to go back in bc of scar tissue he might create?
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Post by JackMcFarland on Sept 10, 2008 17:53:07 GMT -5
yeah, hes afraid hes going to get me on a "1 lap a year cycle" & he said he doesnt wanna do that. he said he'd rather wait to do a lap right before my 25th bday (next may) so that way i can be clear to ttc. After my lap last July he said that by 25 I should consider it.... I dunno what to think?? I'll get a better idea next month for sure.
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Post by staceys on Sept 10, 2008 22:53:01 GMT -5
Tess - I feel like I could have written your post. I'm facing my third lap as well as of two weeks ago. They found another endometrioma on my right ovary and now he wants to take it. Needless to say, I'm going for a second and third opinion in the next few weeks. My last lap was Jan 08 and the one before was Jan 07. I'm not ready for surgery again, so I know how you feel. Good luck with your decision. I don't know what to do, but I do know that I do not want them removing my organs. I'm tired and at my wits end right now, I hope one of these new docs has something else to say that will help me. Two laps in less that one year is NOT cool with me. Feel better soon!!
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