Post by mattyspea on Apr 24, 2008 23:15:23 GMT -5
I don't know what thread to post this under so I'm starting here. I'm 42 almost 43 years old and was just recently diagnosed with endo. My pain started last October and by January I went to my Md because it wasn't getting better. My MD ordered an ultrasound and then I went to a new gyno. My gyno knew almost immediately that it was the problem. I had a spot on my uterus that was so painful that I couldn't even stand using a tampon. An ultrasound a month earlier had also shown that I have a fibroid in the wall of my uterus.
I don't know which way to go...I'm feeling so lost. I had a lap and he removed to small spots and scar tissue from my uterus but said that everything else...bowel, bladder, ovaries, tubes all look good. Immediately after surgery I felt 98% better...no more pain in that spot. However, I still have pain in another spot in my uterus and am not convinced that it isn't the fibroid. I am also having pain that feels like ovary pain. My doctor said that I am a very mild stage 1 endo. The pain was so bad in these to spots that I started my lupron shots on Tuesday as urged by the doctor. I don't know what to think because I have pain in two distinct spots...not random pelvic pain. My doctor said that if the lupron doesn't make a difference in 2 months, there is no reason to keep me on it for an entire 6 months and that we will have to look at something else as the cause if the lupron doesn't help.
I'm also feeling so hopeless because I keep reading that endo is a lifelong problem with pain, no hope, no cure. I even found several sites that say if you have endo, you will eventually get cancer...which scares me half to death.
My doctor said that if my lupron doesn't work, I'm limited to surgery and that it might not cure it. However, my pain is not everywhere, just in my uterus and ovary. The main pain I have is uterine cramps which makes me wonder if the fibroid could cause some of the pain. I have several friends and my Mom all had endo and who had hysterectomies and have been pain free ever since. My Mom had a complete hysterectomy when she was 43 and two friends who had it terrible everywhere had hysterectomies and are pain free years later as well as several ladies at our church who have been through the same thing. I keep wondering if since my pain is limited to 2 areas if surgery might take care of the problem. I also wonder if it is partly my fibroid. I'm worried about the lupron. I just feel like I don't know which way to go. I don't understand why I'm just now having symptoms at my age and I didn't suffer earlier.
Fortunately I have been blessed with a very understanding and supportive husband. He understands how things will change physically, emotionally and sexually if I have a hysterectomy and he says that if there is a chance it will rid me of the pain that he will support me. I don't know what I would do without his support.
How do you cope? Do you ever feel hopeless? Do you know anyone who a hysterectomy has helped? What advice can you offer me? I appreciate any advice or encouragement you can offer.
I don't know which way to go...I'm feeling so lost. I had a lap and he removed to small spots and scar tissue from my uterus but said that everything else...bowel, bladder, ovaries, tubes all look good. Immediately after surgery I felt 98% better...no more pain in that spot. However, I still have pain in another spot in my uterus and am not convinced that it isn't the fibroid. I am also having pain that feels like ovary pain. My doctor said that I am a very mild stage 1 endo. The pain was so bad in these to spots that I started my lupron shots on Tuesday as urged by the doctor. I don't know what to think because I have pain in two distinct spots...not random pelvic pain. My doctor said that if the lupron doesn't make a difference in 2 months, there is no reason to keep me on it for an entire 6 months and that we will have to look at something else as the cause if the lupron doesn't help.
I'm also feeling so hopeless because I keep reading that endo is a lifelong problem with pain, no hope, no cure. I even found several sites that say if you have endo, you will eventually get cancer...which scares me half to death.
My doctor said that if my lupron doesn't work, I'm limited to surgery and that it might not cure it. However, my pain is not everywhere, just in my uterus and ovary. The main pain I have is uterine cramps which makes me wonder if the fibroid could cause some of the pain. I have several friends and my Mom all had endo and who had hysterectomies and have been pain free ever since. My Mom had a complete hysterectomy when she was 43 and two friends who had it terrible everywhere had hysterectomies and are pain free years later as well as several ladies at our church who have been through the same thing. I keep wondering if since my pain is limited to 2 areas if surgery might take care of the problem. I also wonder if it is partly my fibroid. I'm worried about the lupron. I just feel like I don't know which way to go. I don't understand why I'm just now having symptoms at my age and I didn't suffer earlier.
Fortunately I have been blessed with a very understanding and supportive husband. He understands how things will change physically, emotionally and sexually if I have a hysterectomy and he says that if there is a chance it will rid me of the pain that he will support me. I don't know what I would do without his support.
How do you cope? Do you ever feel hopeless? Do you know anyone who a hysterectomy has helped? What advice can you offer me? I appreciate any advice or encouragement you can offer.