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Post by katie16 on Apr 16, 2008 7:46:58 GMT -5
Hello Ladies- I will be 25 in two months and for the past 6 months I have been dealing with pain and urinary urgency during sex and extreme bloating all the time. I have been to the gyno and perscribed medicine to rid me of a chronic yeast infection that the Dr. thought was causing my pain and dryness during intercoarse. The medicine did not work and she then changed my birth control hoping that it would help in changing my bodys natural lubrication (changing hormone levles, ect.) She then ordered an ultrasound (including transvaginal) and they did find two small fibroids. However, she said they are most likley too small to be causing the pain I am having during intercoarse as well as afterwards. At that point she said the next step would be to go to a gastroenterologist to see if they thought it could be anything else before we move forward to do a lap to determine if I have endo. (By the way I was diagnosed with IBS at around the age of 12- Had very bad periods and cramps until my mom finally took me to a gyno and they put me on bc. Ever since then my periods are regular and not really that bad. The only time I remember them getting extremely bad again is when I changed to the Nuva ring and went back on the pill because of it). This gastroenterologist said he did not think it was anything and said he would do a colonoscopy if I wanted (don't think it is necessary if he thinks I am fine-plus he was a jerk!) So next step was to make an appointment with another gyno that can do the lap procedure. Now this doctor seems to think there is a chance I have Interstitial cystitis or it is the fibroid causing the problem because he said since I do not have a lot of pain during my period it is less likely to be endo. Well my question is that I heard IC and IBS are symptomatic of Endo so isnt there a good possiblity I have it? I am so confused. He wanted to put me on 2 drugs and "see" how I felt but he is 2 hours away and I can not keeping taking off work plus I am trying to avoid medication at all cost-especially when all they do i s mask the real problem! The Dr. has scheduled the lap and a cystoscopy with hydrodistention to see if I have the IC. But now on top of all this confusion I am now even more upset because the earliest they can do it is June 11th so more waiting and I will be recovering on my birthday and my 2 roomies birthdays .....and I can't swim or anything for 3 weeks (a great start to the summer, especially because I live at the beach and will just be getting really warm then.....sorry for complaining, I am just sad) Has anyone gone through the same type of situation? thank you and I hope evryone has a pain free day!
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Post by jjuls22 on Apr 16, 2008 12:17:24 GMT -5
Hmmm.. pain during sex, frequent urination, massive yeast infection? YUP! sounds like me!! my doctor prescribed me 6 months of diflucan, to take one a month ( since i usually get a yeast infection once a month) to help keep my system in check. Also, ive told my doctor SEVERAL times that i have pain with sex, he seems to blow me off. HELLLO!! im 25, not 62 sex is an important thing to me that i would like to share with my boyfriend and yet everytime i think about it cringe b/c it might really really hurt! Sooooo im off to the doctor tomorrow, been in pain for about two weeks and i really don't want to go to the bathroom anymore b/c it hurts! specially when i go # 2. They have never said that it might be related to something else, he just says " oh thats normal, i hear that from my other women who have endo" Wonderful.. thanks for the help doc. You're def not alone katie!!
Julie ;D
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Post by katie16 on Apr 16, 2008 13:44:03 GMT -5
Well it is good to hear someone feeling the same. I am basically broken up with my boyfriend now because of this crap. He thinks he does not turn me on and I continually try to make him understand it is torture to do anything and the thought of anything makes me cringe 2! Do you get bad bloating afterwards? I am constantly bloated but it gets much worse after I have sex??? Good luck with the docs.....let me know how it goes. Katie
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Post by jjuls22 on Apr 16, 2008 17:21:16 GMT -5
katie, im sorry to hear that your boyfriend is being unsupportive, can you guys partake in other sexual activites? although my boyfriend and i have been together for an extrememly long time, it still gets hard and he would rather not see me cringing or crying in pain afterwards than get off. One would think if your boyfriend cant see past this barrier than you WILL find someone who is willing to work on it with you. Has your boyfriend read or educated himself at all on the disease? I wish you all the luck, there are good days and bad days. I'll let you know how tomorrow goes! ;D hang in there
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Post by katie16 on Apr 17, 2008 7:31:51 GMT -5
He trys to be supportive but at other times he gets frustrated and lays a guilt trip on me. Just to shut him up I would do things with him but I end up crying from the pain/akward feelings and then am angry with him for it.......Well anyway enough sad talk. I hope the docs went well talk to you soon. ~~~~Katie~~~~
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Post by jjuls22 on Apr 17, 2008 9:50:35 GMT -5
SOoooo my doctors apt went... um as expected i guess, he brought up lupron and mirena and as a last resort surgery. Sigh. im so ready to throw in the towel and try lupron but im just so scared of what it will do to me and my relationship. my doc says women of my age ( 25) do well with it, its the women who are in their mid 30's+ who have the worst side effects with it. I just don't know what to do anymore. I'm trying to change jobs and im so afraid that someday, i'm going to get fired over this and i should just stay in my dead end job because my boss is female and knows about my disease and lets me take days off when i need them. Sigh.
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Post by katie16 on Apr 17, 2008 13:24:16 GMT -5
aww I'm sorry the docs did not go well sweetie. I was hoping it would be better news. Can I just say I started a vegan lifestyle to see if it would help my health all around (weight, acne, girly problems, IBS, high blood pressure and to detoxify my body) So far I am feeling pretty good. My face is clearing a bit, weight starting to budge a bit, my stomach is not as upset anymore, and I have a bit more energy (even though I am still always exhausted). It was not as hard as I thought it would be. I am trying to get off my blood pressure medicine and I flat out told this new doctor I did not want him to give me any medication until I knew what was actually wrong with me. Even then I will probably look into natural healing (accupuncture, herbs, ect.) So the Doc says our age group handle the medicine better-thats comforting. They just tell you what you want to hear so they can pump you full of drugs and get you out of their office for a few months. Medicine scares me a lot now. After educating myself about meats, diary, and meds I am very cautious about putting more crap into my body. I am scared that that is what has caused all of my problems...........
I am here if you need to talk. Stay strong and do NOT let this get the best of you! Do NOT give up opportunities that you may have in life- go find that new job!!!!
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Post by jjuls22 on Apr 17, 2008 14:22:55 GMT -5
Ive started my organic diet all over again, i'd go veagen if i liked enough veggies, fruits and nuts but im a pretty picky eater. I've noticed my pain decrease slightly, but its still there. It hurts to even bring my knees to my chest! Ive researched lupron again and even printed out the first 4 pages of our thread here and im still scared S***less of it. I don't think its for me. Thanks for the support though, its kinda nice having our own little thread going on here.. ;D I'd like to start doing yoga, i keep telling myself to go buy a dvd but i never do. I would like to try accupunture too, but im not sure of the costs and i highly doubt my insurance would cover, heck i'd be lucky if they covered lupron! I've also been considering depo-provera but heck, i can be on continous bc with less side effects. I dunno, i'm really frusterated today. I have an interview on weds, i would be reporting to two men, so i'm nervous but I'll let you know how its goes!
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Post by katie16 on Apr 18, 2008 8:26:59 GMT -5
Good luck with the interview!! Also, if it makes you feel better to hear this- I work in sales for a pile driving company and my boss is a man, obviously. I go to conventions, dinners, ect that consist of 90% men. But it gives you a strong feeling of strength to be in a "man's" shoes. I can't say that my pain is where yours is on a daily basis but I am technically still not sure what is wrong with me. I do work out everyday and I have always ate pretty well so it might be helping me. I think yoga is great.....I think another thing is when you are unhappy you feel a lot more pain too. I notice when I am in good spirits I feel all around better. I think that if you take sometime to find things that make you happy-yoga, the new pole dancing exercise classes (which are supposed to make you feel empowered and sexy), cooking classes, taking weekend trips to places, ect. you might take some stress off your body which can help. If you still feel strongly against the medicine don't take it! People rely on others to tell them what is the right thing for them to do then to just listen to themselves.......you know your body best and what is best for you! Trust in your feelings. Since you are a picky eater is there certain things you love that I could try to give you a vegan option for it? I love our thread too....its the best! lol. Well take care and I will talk to ya soon!
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Post by jjuls22 on Apr 20, 2008 14:15:01 GMT -5
for now i too work in a male dominated industry.. TRANSMISSIONS!! hahah, but my boss is female and has friends with endo so she completely understands. sigh. I'll let you know how my interview goes, its weds afternoon. Hope you had a good weekend! ;D
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Post by katie16 on Apr 23, 2008 11:34:44 GMT -5
Hope your interview went well!! Had you in my thoughts today!
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Post by jjuls22 on Apr 23, 2008 21:22:09 GMT -5
hey katie! i sent you a personal message. my interview went well, it was very postitive and both the guys i interviewed with seemed very nice so that put my worries at ease ;D yay! Hopefully i'll hear back from them, as i would love a new job, with more money ( who wouldnt) and a better team! I hope all is well, talk to ya soon
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