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Post by schernoff124 on Nov 8, 2007 16:52:15 GMT -5
I went to the gyo on monday, and after examing me she said she'll do the lap but says she thinks my biggest problem is Pelvic Floor Dysfunction. she said it could be casued by endo but shell know more after she looks around.
i was just wonderin if anyone here knows anything about Pelvic Floor Dysfunction since i couldnt find much on it online...or if anyone has it.
thanks
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Post by allisontracie on Nov 12, 2007 13:58:12 GMT -5
I work at a physical therapy clinic and my dr. also told me he thought I was having pelvic floor dysfunction b/c when he would touch certain spots and make me contract my muscles by pushing against him with my leg I would have a muscle spasm that would be painful. So fortunately for me the therapy clinic I work at has a manual therapist that specializes in the pelvic area. She doesn't do anything inside but she corrects all the tendons and muscles so that they don't cause the spasms. It was not pleasant by any means but it did help me with the muscle spasm pain. Unfortunately I still have pain from the endo. You might try to find a manual therapist who does pelvic area even if you have the endo it can help a little at least.
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Post by schernoff124 on Nov 12, 2007 21:33:11 GMT -5
Yeah I have an appointment with a physical therapist on the 16th. I;m interested to see how she'll help me. I still dont really understand the Pelvic Floor Dysfunction so i;m hoping shell be able to better explain it for me. did the physical therapy help alot? how many times did you have to go?
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Post by allisontracie on Nov 13, 2007 15:19:46 GMT -5
It did help some.....it is more of a realignment of the tendons and ligaments so that there isn't as much pulling or stretching of the pelvic floor. The more dysfunction as they call it of the muscles, tendons and ligaments the more misaligned and uncomfortable everything in your pelvic area is going to be so by taking the pressure (so to speak) off of your muscles, ligaments and tendons it will help the pelvic floor to relax easier. I went for a few months 1-2 times a week and I am more comfortable but it didn't "fix" all of my pain. I am more comfortable when sitting for a long time and exercising.
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Post by anneny on Dec 7, 2007 14:32:01 GMT -5
Check out the Physical Therapy thread on the Natural Treatments board. I've been seeing a pt for about three months now and have noticed a huge improvement. I also had pfd with my endo, and retraining the muscles not only helped with things like controlling bladder urges, it also really helped with pain with sex and learning to relax when I had endo cramps. I also have less pain when I sit or stand for a long time.
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Post by willow82 on Mar 31, 2013 10:48:15 GMT -5
I finally got a new gynecologist, and had an amazing eye opening appointment.
I am on Lupron and while my constant pain has subsided I continue to have pain and problems especially around bowel movements. Ongoing constipation issues, and severe spasms and pain after moving my bowels. It is likely not the Endo itself, as I am 3 months into Lupron treatment.
So during my physical exam with my new gyn she said she was going to something I likely haven't had before. She actually pressed on all the major muscle groups in my pelvis asked if her pressure caused pain and what kind. I was holding back screams by the end, and some of the spots caused severe radiating pain that I haven't felt since before Lupron.
Turns out I have severe Pelvic Floor Dysfunction caused by the Endometriosis. Essentially due to the amount of previous inflammation and pain my pelvic muscles are all tightened and caught in spasm.
Also, this is likely why I am having problems with constipation since for a normal bowel movement the pelvic muscles need to relax. Mine cannot do it, when I do manage to go I am forcing it, thus why I then have severe pain and spasms afterwards.
The treatment is Pelvic Physical Therapy for about 10 sessions. I was also prescribed a special formulation of Valium, Valium made into vaginal suppositories so the drug can locally help the muscles.
I did a search for Pelvic Floor Dysfunction and could not find a thread in the past 1000 days.
I wanted to share since my experience is similar to others I have read about here, and it seems that many gynecologists are missing some of the complications caused by our Endometriosis.
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Post by nibletz on Mar 31, 2013 15:31:46 GMT -5
Hi Apologies in advance as this probably sounds dumb....what exactly is pelvic floor dysfunction? Is it like pressure in certain areas? Sorry im not 100% sure
Would love more info please xxx
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Post by willow82 on Mar 31, 2013 16:44:31 GMT -5
It is the muscles of the pelvis not functioning properly, usually due to muscle tightness or spasms.
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Wendy
Junior Member
Posts: 74
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Post by Wendy on Apr 6, 2013 21:29:05 GMT -5
Willow, my new gyne did a similar exam, and while he didn't use the term pelvic floor dysfunction, he did say that my abdominal and pelvic muscles were in spasm. He prescribed cyclobenzaprine (a.k.a. Flexeril), but I haven't started taking it yet.
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Post by willow82 on Apr 20, 2013 11:11:24 GMT -5
My eval with my pt found that I have a non-contracting and non-relaxing pelvic floor, signs of adhesions around my bowels, and in my rectovaginal space, I also have pinched nerves in my pelvis.
Fun!
Pt is now starting to really help though, and we were able to modify my driving with a u shaped pillow, and I'm starting to have plenty of exercises to do at home.
I can't say enough how glad I am to finally have these issues diagnosed and I think it is missed for most of us.
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Post by Karen on Apr 20, 2013 16:08:50 GMT -5
Endo affects so many parts of our bodies, but 'traditional' treatments are only directed at either hormones or surgery. Neither of those address how your body has adapted to cope with the damage. In my opinion, PPT should be done on anyone with endo! Hope your continued sessions with the PT go well!
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Wendy
Junior Member
Posts: 74
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Post by Wendy on Apr 20, 2013 19:42:44 GMT -5
Boy, that does sound fun, willow. Glad the p.t. is helping, though.
As for me, it might be a coincidence, but I feel like I've had more of an appetite since I started taking the Flexeril.
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