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Post by ouchy on Jul 30, 2007 8:22:36 GMT -5
You can have polycystic ovaries and not the syndrome, but you are right--tests should be conducted. They're supposed to be done on day 3 of your cycle (3 days after you get your period). It's typically LH:FSH ratio the doc. should be looking for. Probably will test your thyroid, cholesterol, testosterone, etc. A lot of times those are messed up in PCOS, but not always. Mine are all normal.
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Post by Nari on Sept 26, 2007 1:20:46 GMT -5
Alright to continue the story from the general board... I asked about my US results from a few weeks ago about my PCOS, to see how I am doing with the medication and how my body is responding. No good news here. I was told by my GP today that the report says I am still very much suffering from PCOS, the medication is not helping anything. No shrinkage, nothing. He thinks that it is possible that all the pain I am feeling could be a combination of things, that the PCOS can be the main cause. I am being referred to GYN again and his last words were, that he knew of a case where a woman had PCOS and had to have a hysterectomy. GRRRR...... I told him that I just want to be normal. I just want to have no pain. I am too young to feel this bad and I have kids and a husband. I have a life and the pain I feel daily, constantly, affects my daily life. I can not do alot and I cant take it anymore. Hence... I am also going back on the Zoloft for the depression and stress and mood swings. Okay. That is all for now I guess. Thoughts?
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Post by ouchy on Sept 26, 2007 10:44:39 GMT -5
I've never heard of a woman having to have a hysterectomy from PCOS. PCOS doesn't affect the uterus!
Sometimes Metformin actually doesn't set well with women. Now that you know enough about diet, coudl you try to step out on your own?
There is also the option of ovarian drilling, but if you're surrounded by inept doctors, I'd be skeptical of getting it done there!
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Post by Nari on Sept 27, 2007 22:33:08 GMT -5
Yea the funny thing is that my GP referred me back to GYN. GYN released me in January after my 6 week post op appointment, telling me they have no clue what the problem is and they cant help me. So why I am being referred back is BEYOND me. That is why I am doing what I am with Doctor Redwine. I am waiting to get a copy of my records from the office now to send them. I am tired and fed up with these people here that call themselves doctors.
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Post by cherry on Apr 17, 2008 13:08:27 GMT -5
Right I don't know whether I have polycystic ovaries or the actual problem of PCOS (does anyone else refer to it as pee coss?! my doctor didn't have a clue what I was talking about at first!) but I am not happy to have this on my plate also... I've been very pessimistic. Even with you ouchy, having endo, PCOS, short luteal phase and being able to conceive naturally. I suppose I just need to get the bad vibes out of my system and then settle with the idea that my body does not want to do as it is told! It means a lot of research again. I have called my gynae to have them confirm this is right, and whether it's PCOS, waiting for a call back from the nurse practitioner that I saw. She was lovely but not clear about the ovaries... I only just realised yesterday that she was talking about MY polycystic ovaries!
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Post by ouchy on Apr 17, 2008 13:18:05 GMT -5
Only one of my friends says "PEE-cos." All doctors I have seen refer to it as "P-C-O-S," calling the letters out one-by-one. Oh. Actually, one referred to it as "P-C-O syndrome." Weird, huh!
Is your only symptom so far polycystic ovaries? If you're on hormones, they probably won't be able to do the LH:FSH testing. Usually (but not always) it is elevated LH:FSH, which often causes the buildup of polycysts.
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Post by cherry on Apr 17, 2008 13:59:14 GMT -5
The only symptoms I have are abdominal pains and bad skin, irritability... stuff I put down to the endo and the hormones they treat me with. I was never looking for polycystic symptoms because I have hardly had a natural period to be suspicious of odd cycles and things. They have only done hormone profiling when I had my lap last year so the medical secretary said that's most likely when it was picked up, and unless it was a problem that needed to be treated right away, they would only have told me at my post-op follow up (which was last week with the nurse practitioner) The NP was great, talked me through the mirena and the benefits it was having, that it was not just for my endo but also my ovaries and lessening the risk of uterine cancer too seeing as it runs in the family. However she said that when I am ready to start trying for children, I have to be referred back to gynae/fertility BEFORE I have my mirena out, and that if I don't conceive in 6 months they will do a lap and start fertility tests. I shall refer to it hereafter as P-C-O-S then it just comes into my head as pee-coss though haha Also, I was on the pill before my op I think? Or maybe wait and see... my memory is awful! So yeah, I do wonder about those tests. I would rather they were done again though with the mirena this may not work either!
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Post by ouchy on Apr 17, 2008 14:12:08 GMT -5
Yah. It's difficult to really talk hormones since you are on hormonal treatment, but in the case you do have PCOS, they really should find out bc without proper diet, it can lead to heart attack, elevated cholesterol, triglycerides, etc. There is a whole wide range out there.
Before you were on hormonal treatment, were your periods regular?
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Post by cherry on Apr 17, 2008 14:25:49 GMT -5
I was 2 weeks on 2 weeks off, I was put on the pill to regulate and space out my periods!
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Post by ouchy on Apr 17, 2008 14:43:29 GMT -5
hummmm
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Post by cherry on Apr 17, 2008 15:49:08 GMT -5
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Post by ouchy on Apr 17, 2008 16:24:14 GMT -5
One of my friends w/ PCOS actually had really short cycles, too. A lot of hers were anovulatory. I've had a few really short, anovulatory cycles as well.
ETA: And those are the ones that piss me off the most! Not even ovulate and then have to bleed with endometriosis! UGhhh!
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Post by JackMcFarland on Apr 17, 2008 16:51:29 GMT -5
When you say short cycles, how short are we talking?? My cycles used to be (before laps and temping) VERY short...then I'd bleed for at least 7 days straight. My temps were all over the place this past month and I'm finally going to a Dr who wants to double and triple check on the PCOS. I have telltale signs of PCOS and thyroid issues (which run in my family), and I know the two generally come hand in hand.
From my temps it seems I'm ovulating - I had a rise in temp (actually I had four total rises - what i thought was the last and 3rd one finally took, but I dropped again 4 or 5 days later - leading to a FORTH rise...?)
I think the general idea with PCOS is... well if you are bleeding once a month then you are ovulating... when in reality a bleed doesnt always mean youve ovulated.
good luck cherry... keep us updated
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Post by ouchy on Apr 17, 2008 16:57:20 GMT -5
My friend's cycles were sometimes 17 days long. I had a couple that were 21 days long? Something like that.
For short cycles you can 1) not ovulate and have a nonovulatory cycle resulting in "withdrawal from hormones" bleed 2) ovulate early and have regular luteal phase 3) ovulate early and have a short luteal phase 4) ovulate on time and have a short luteal phase
The only way to know is to chart (when you're not on hormones).
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Post by ouchy on Apr 17, 2008 16:58:14 GMT -5
tess, make sure they do the LH:FSH ratio on day 3 of your cycle! Otherwise, it is inaccurate for use in PCOS testing.
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