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Post by sammi79 on Jul 24, 2006 4:50:22 GMT -5
hey there, I just got back from the gynaecologist and feeling like I need to air a little... and I know you guys understand!!!
I wont go into my history, as its all over this forum already, but I am experiencing awful pains and constant bleeding again... So I decided to go and get it checked out... and today my specialist told me to hurry up and have a baby so I can have a hysterectomy.
I was really angry! and could not believe what I had heard, so I asked him to repeat himself. He rephrased a little softer and said that we are running pretty close to the end of the range of theraputic treatments available and that there are no guarentees that we will even be able to concieve, a chance that diminishes as time goes by. I already knew all of this, but it still hurts to hear it all over again... Generally I really appreciate that my specialist is very direct and "real" with me, and I always feel like he hears me and has my best interest at heart, but I guess, I really wasnt ready to hear this... He said that he really thinks that ultimately I will have to have a full hysterectomy, as everything is so messed up in there... and my tubes and everything wont stop developing cysts and endo...
I told my beautiful hubby to be and he was loving and supportive, but he said that I had not been told anything I didnt already know... and he is right, but it still really hurts!!!
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Post by erzulie on Jul 24, 2006 10:15:55 GMT -5
I'm sorry to hear that sammi! I think if I were in that situation I would definitely get a second opinion though, and maybe even a third. It sounds like your doctor is very nice and really cares, but it's always possible that another doctor would be able to do what he thinks isn't possible. If you have to money to do it and it really means a lot to you, maybe you can research endometriosis specialists online and find one to go see.
And if there's nothing more to be done, I know that you'll find a way to cope. You probably won't find it until you've had time to mourn--I think we all need that any time we suffer a profound disappointment--but I think any situation can work out to your advantage if you choose to see how it can be done. If you do all you can and things don't work out, then they weren't meant to and there is a reason for that, at least that's what I believe. But please don't give up yet--you still only have one doctor's opinion!
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Post by ouchy on Jul 24, 2006 10:32:16 GMT -5
Hi, sammi. Sorry for what you have gone through today! I also believe a second opinion would be a good thing to have in-the-works. Some doctors are so blunt and just spout-off the most routine of endo treatments--baby followed by hysterectomy. And we all know that a baby doesn't cure endo, and sometimes, sadly, even hysterectomy doesn't always cure it.
I wish you and your fiance the best of luck with whatever happens.
Sorry. I'd have written more, but I have to jet to a lesson. ~Ouchy
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meka
Full Member
Posts: 164
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Post by meka on Jul 24, 2006 13:42:10 GMT -5
Hi sammi, I'm so sorry for what you're going through. The doctors have been telling me that I have little chance of bearing children, but I'm just trying to keep hope alive. And that's the best you can do sometimes. I agree with getting opinions from other doctors, because we know that hysterectomies aren't necessarily the end-all. Some doctors may be able to see the light a little more clearly, every doctor's experience is sooo different. It does hurt like h**l to be told that you may not be able to have kids, or that you don't have much time left . . . even when it's being said gently. If you're like a lot of women, this is something that you've wanted since you were little. So, if you really want it for yourself, keep trying. Don't get a hysterectomy unless you've fully accepted not being able to bear kids. The emotional agony could be worse than the physical pain. My heart hurts for you, and I hope that you are able to find something else that works for you. . . soon.
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Post by sammi79 on Jul 24, 2006 16:01:46 GMT -5
thanks guys! I know I am not alone here! and I am sorry for all your experiences too. Like many of you I have always wanted children and there are other things I want to do before they come alone... I really dont want to rush, particuarly when it may not go so smoothly to conceive anyways...
Unfortunately, this doc is a specialist in endo and he is my third opinion, after the first two pretty much came to the same conclusions... altho they never put it quite so bluntly!
Anyways, thanks for the support, it really does help to know that I am not alone!!
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