Post by Sylvia on Oct 18, 2007 6:13:24 GMT -5
I was diagnosed with endo in june during a lap. I think it might have gone into my bowels as well, and no one will take me seriously.
a little letter to the next few doctors i see:
I’ve been passing stools with blood that started with a little blood on the toilet paper and has now turned into bowel movements of only blood. I started with a little bit of pain during bowel movements that has turned into not being able to stop from howling and screaming in pain when I go to the bathroom. My stools are marbled with blood, often irregularly shaped and at times the width of a pop can. Stool softeners have helped in the stool passing faster and with slightly less pain, but have increased cramping and the amount of blood. I’ve laid on the floor after going to the bathroom because I’m in so much pain and so dizzy and devoid of energy that I can’t walk ten feet to my couch. I’ve crawled onto my couch ten minutes later and couldn’t move for half an hour because I was so out of it and so dizzy. I’ve gone to the emergency room four times, a gastroentronologist and my family doctor countless time. I’ve spent hundreds on medication that has done nothing, made it worse, or changed it from completely unbearable to unbearable. I’ve been told that I might have IBS and a fissure. I’ve been told it’s only a hemorrhoid. I’ve been told it’s a hemorrhoid and a fissure. I’ve been told I might have Chrohn’s disease. I’ve been told it’s nothing, and that my pain isn’t severe and that I’m exaggerating about the amount of blood. In this time, in four months of being bloody and in pain, all I’ve received is my temperature taken, blood tests, urine tests, blood tests and a rectal exam.
All I’m asking for at this point is someone who will take it more serious than it is, rather than assuming it’s a problem that doesn’t match the symptoms and can’t be seen. I realize that I’m young, I realize that it may in fact only be a fissure. But I’ve exercised all my options at this point, and I’ve tried everything that has been suggested. I’ve invested a lot of time, energy and pain into finding out exactly what the problem is and no one has told me anything that seems plausible. I’ve been dealing with this for four months now, and I’ve seen it gradually getting worse. What worried me enough for me to go to the ER the first time, seems like nothing to me now. Each time I go, it’s because I know that I shouldn’t be passing that amount of blood, and each time I’ve gone it’s been more and more. I don’t want this to be at a point when passing two cups of blood seems like nothing.
All I’m asking for is help. If you don’t think I need a colonoscopy or a sigmoidoscopy or any other tests, I understand. But please tell me that I was wrong in asking for it after I’ve had the tests done rather than refusing treatment to me when I have no options left. I have two chances left here: Dr. S at Children’s, and Dr. A at St. Pauls. Please, for the love of God, indulge me and do some more comprehensive tests. I can no longer manage this level of pain and stress in my life. Please, give me some faith back into the medical community, because I no longer know when it's 'bad enough' to warrant treatment.
a little letter to the next few doctors i see:
I’ve been passing stools with blood that started with a little blood on the toilet paper and has now turned into bowel movements of only blood. I started with a little bit of pain during bowel movements that has turned into not being able to stop from howling and screaming in pain when I go to the bathroom. My stools are marbled with blood, often irregularly shaped and at times the width of a pop can. Stool softeners have helped in the stool passing faster and with slightly less pain, but have increased cramping and the amount of blood. I’ve laid on the floor after going to the bathroom because I’m in so much pain and so dizzy and devoid of energy that I can’t walk ten feet to my couch. I’ve crawled onto my couch ten minutes later and couldn’t move for half an hour because I was so out of it and so dizzy. I’ve gone to the emergency room four times, a gastroentronologist and my family doctor countless time. I’ve spent hundreds on medication that has done nothing, made it worse, or changed it from completely unbearable to unbearable. I’ve been told that I might have IBS and a fissure. I’ve been told it’s only a hemorrhoid. I’ve been told it’s a hemorrhoid and a fissure. I’ve been told I might have Chrohn’s disease. I’ve been told it’s nothing, and that my pain isn’t severe and that I’m exaggerating about the amount of blood. In this time, in four months of being bloody and in pain, all I’ve received is my temperature taken, blood tests, urine tests, blood tests and a rectal exam.
All I’m asking for at this point is someone who will take it more serious than it is, rather than assuming it’s a problem that doesn’t match the symptoms and can’t be seen. I realize that I’m young, I realize that it may in fact only be a fissure. But I’ve exercised all my options at this point, and I’ve tried everything that has been suggested. I’ve invested a lot of time, energy and pain into finding out exactly what the problem is and no one has told me anything that seems plausible. I’ve been dealing with this for four months now, and I’ve seen it gradually getting worse. What worried me enough for me to go to the ER the first time, seems like nothing to me now. Each time I go, it’s because I know that I shouldn’t be passing that amount of blood, and each time I’ve gone it’s been more and more. I don’t want this to be at a point when passing two cups of blood seems like nothing.
All I’m asking for is help. If you don’t think I need a colonoscopy or a sigmoidoscopy or any other tests, I understand. But please tell me that I was wrong in asking for it after I’ve had the tests done rather than refusing treatment to me when I have no options left. I have two chances left here: Dr. S at Children’s, and Dr. A at St. Pauls. Please, for the love of God, indulge me and do some more comprehensive tests. I can no longer manage this level of pain and stress in my life. Please, give me some faith back into the medical community, because I no longer know when it's 'bad enough' to warrant treatment.