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Post by ellene on Nov 6, 2007 12:10:45 GMT -5
Yesterday, I went for a check-up because suddle pain from the endo has returned (surgery on aug. 15 2007).
My doctor explained, it may be coming back or areas might have been missed. Is it common for a doctor to miss spots of endo or did I choose the wrong doctor? I went to a very well respected fertility clinic, so I am a bit shocked.
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Post by kb on Nov 7, 2007 1:42:31 GMT -5
Not sure if its common, but myself mine was missed completely the first time, and i saw a fertility specialist, yet 2yrs later was found and removed by an endo specialist.
So in my opinion, unless its an endo specialist, yes can be easily missed.
Apparently they dont all look properly, and dont always appreciate what there looking at.
Nari has also had a diagnosis taken back, so i would suggest that just because there a gyno, doesnt mean there capable of treating endo.
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Post by cherry on Nov 7, 2007 5:25:08 GMT -5
As with any disease it is easy to make mistakes. I had a gynae who was used to treating endometriosis and just left the endometriosis there, probably assuming the hormone treatment would wipe it out. And kb I don't agree with that, all gynaecologists are taught about endometriosis, it's one of the more common diseases they come across. If we all waited for a specialist there would be huge queues of women, and that is just the women who are waiting for a diagnosis. Some endometriosis is microscopic and can be easily missed, there is also the issue of all those organs being squished together and possibly hiding a world of horrors, even with the bowel and bladder empty. I had surgery on some very aggressive endo, and they left up to 5% there as it was too dangerous to try and remove that bit that was left. And there is a certain light which shows up endometriosis (I think a kind of UV lightt I'll look it up), tiny spots that can't be seen with the naked eye. Not all hospitals are equipped with this light so I'm sure far fewer people are diagnosed or treated fully during surgery because of this. It isn't all simple human error, there are many other diseases that can be missed multiple times, well documented cases of children dying of something as seemingly obvious as meningitis which was waved off as flu.
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Post by vatechgrad on Nov 7, 2007 8:55:23 GMT -5
Well if it was tiny, wrong time of month it would be harder to see. My dr warned me in advance he'd remove what he could but it isn't always possible to see it all. And he told me it will come back its just a wait see game on how soon.
Janet
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Post by JackMcFarland on Nov 11, 2007 19:12:26 GMT -5
Its wait and see with all of us. They had to leave some on my bladder as well. I don't remember how much.
I had my last lap in July and went to the Dr for pain in Sept. My ovaries and uterus were both inflammed. During my annual in Oct my Dr actually felt Endo on my bowel.
Like the rest of the girls said, most of the time they can leave it or miss it. We'd like to think our Drs are heros, but they can't always get everything.
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Post by meldart on Nov 12, 2007 8:50:32 GMT -5
All the girls are right, doctors as much as they try cannot always get it all, I have a wonderful surgeon but he couldn't get it all for me. In some people the endo does grow back but it just depends on each person how quickly it grows, if it grows at all etc. There are no hard and fast rules unfortunately
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Post by allisontracie on Nov 12, 2007 14:05:41 GMT -5
Has anyone else had their dr. tell them they didn't like to do surgery for endo pain because it causes scar tissue? I had one lap in 2004 and haven't really had relief since. And have been on so many treatments I can't remember them all but I have a new doc and went to see him the other day b/c I was having bladder pain again and he told me we would avoid going back in as long as possible.
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Post by meldart on Nov 12, 2007 14:17:36 GMT -5
Yeah I have heard that before, but it should be more of a case of the pros outwaying the cons. Any surgery will cause scar tissue but I have never had any problems with scar tissue afterwards and the pain has subsided after a lap.
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