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Post by Karen on Sept 7, 2010 6:24:22 GMT -5
I think it's important to point out that there's a difference between HRT and bio-identical HRT. Be sure to do your research on both.
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Post by KSA on Sept 7, 2010 8:18:54 GMT -5
I kept my ovaries but will have them removed when I am 40. My doctor was very concerned about putting be thru all it at the same time. I have a few other medical issues besides endo so he waited. I do not know much about HRT or Bio identical HRT. Sorry but you sound like the type of gal that will do your research about it. It is very important to find out as much as you can. I am sure discussing it with your doctor and then doing your own reading you will make a wise choice. It is hard to be so young and have it done. I feel so sorry that you were unable to concieve and I can not imagine how hard that must be. I was able to have a son he is getting ready to turn 11. I prob was able to have him because at the time my endo was not as agressive. I know what you mean by wanting your life back. I have a thread called Live Like your Dying check it out post if you would like its in the General Chat Area. I refuse to let my health control me instead I take care of myself as best I can and when I have good days I do as much as I can. I am very familar with spending large amounts of life in bed. I hope this helps you and good luck:)
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Post by amber84 on Sept 7, 2010 20:15:17 GMT -5
I will def check out that thread KSA. I am a very active person and have fought to stay that way as long as possible. We sound one in the same! And your son....what a blessing!
omaklackey- My doc seems to think the same thing about my ovaries. Feb 09 when I had my lap they were in-bedded in the wall of my pelvis. She won't even clean the cysts off. She said that the Endo is growing inside my ovaries.
I def am going to do more research on the HRT and bio-identical HRT. Love all this input!
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Post by dianel on Oct 2, 2010 21:46:44 GMT -5
I am going to get a total hysterectomy in January. I am already starting to research everything including HRT and bio-identical HRT. I am 42 years old. Does anybody know what would happen if I chose not to take any HRT and just try to change my diet and exercise? Has that been done or do I need to be on something until at least 50? I am also going to start taking Lupron in two weeks. I will be on it for three months and then have the surgery. To be safe after the surgery, my doc wants me to get one more shot of Lupron that will last three months to get rid of anything that he might have missed or that is in my hips and sciatic area. Has anyone tried this with luck?? Any info or opinions would be appreciated.
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Post by omaklackey on Oct 2, 2010 22:06:54 GMT -5
re: dianel Many women choose to go without HRT's there are two threads, mine and another about choosing to go sans HRT in the menopause section. I chose not to and my doctor suggested six months of none and then possibly going on it later but I have read a lot of information good, bad, etc...and I'm happy to be going without. There is also a real good thread about the bio identical HRTs here if your interested. I have minimal night sweats and hot flashes. They are managable. I also take vit. D, Calcium and Multi's to combat any loss in bone density etc. Its a personal choice really. You can choose to not take them. I read a whole lot of information and talk about confusing. Some said it was helpful to take HRT's for heart health and others said you couldn't take it if you have high blood pressure. Some women love them and wouldn't go OFF HRT's once they are on them. I have a good friend who takes a progesterone cream and LOVEs it. She had a hysterectomy at around 40. I'm only 34. I would also suggest if your considering the hyster to check out Hyster sisters. Its got great information on HRT's and what its like etc... !!
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Post by dianel on Oct 2, 2010 22:33:49 GMT -5
I am so glad to hear that I do have choices and that you are doing well without anything. Even if that may not be the case for me (who knows yet?), it is good to know that there are women who chose not to and do well. I will check out all the information you gave me. Thanks again!
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Post by Karen on Oct 2, 2010 23:45:07 GMT -5
I know I've mentioned this elsewhere, but do not confuse HRT with bio-identical HRT. They are two completely different worlds. If you're going to research them, research them both!
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Post by dianel on Oct 20, 2010 21:47:06 GMT -5
Does anyone know what is the difference between having a hysterectomy laproscopically(?) verses bikini cut. Does one heal faster than the other? Is there less scar tissue one way? My doc wants to do it lap. and a few women I know swear by the bikini cut. The reason I ask is because from having SEVERAL lap surgeries for endo, I am very sensitive in the belly button area already and can't even wear a hint of tightness around the area (Like tight fitting jeans) so I just wanted some input if anyone had information on this. Thanks!!!
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Post by KSA on Oct 20, 2010 23:03:52 GMT -5
I had the robot lap surgery with my hysterectomy www.davincisurgery.com/ If you have that option I would go for it. Less blood, quicker recovery for most. I was very happy with my surgery and so happy they did not have to do the cut. I had a csection with my son and I am in my 30's now with health issues besides endo I was very glad to have the lap option. Good Luck with whatever you decide. The Davinci is really a amazing technique you will be impressed if you click the link and read and watch the video.
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Post by dianel on Oct 21, 2010 15:40:27 GMT -5
Thank you so much for this information. I will go to the site now and check it out!!
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Post by belleryan on Oct 22, 2010 23:17:29 GMT -5
I just recently had a laparoscopic hysterectomy on the 27th of September after a Laparscopy found I had old endometriosis scarring in the pouch of douglas and and enlarged uterus. The Gyno said that my symptoms and and what he found during the Lapo pointed to Adenomyosis and the only way to diagnose it 100% was a hysterectomy and to disect the the uterus. I get the results on Tuesday. He left both my ovaries as they were in perfect health now I'm wondering if the old endo will start up again and I'll almost be back were I started.
I will say though that 2 days after the surgery I felt better than ever and was only taking pain medication you buy off the shelf at woolies which is unusual for me. Now though I feel a few "phantom pains?" when I should of had my period so am hoping that leaving the ovaries was the right choice.
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Post by dianel on Oct 23, 2010 18:12:07 GMT -5
My doctor wants to do a full laparoscopic hysterectomy on me. I have to agree with him because I have been suffering with this for twenty years. The bands put on my tubes helped for sometime but this is the worse I have ever had it. It is ALL over. It is even on my bowel, bladder, sciatic and hip areas. I want him to take out all he could. The way I see it, is that instead of having it in over eight places, I will just be at risk at having it in about four. I do not want four areas, however, it is better then eight plus. I am on the three month Lupron now. I go for this in Jan then do three more months of Lupron for any microscopic areas. (I know I am repeating myself from past posts, sorry) I will then follow the endo diet as best as I can and get plenty of exercise and water. I can only hope for the best. I wish you the best also and hopefully you won't get it back with the ovaries left in. I think everyone is different and it also depends where your prone to getting it. Thanks for the post!!!
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Post by pretty on Oct 25, 2010 11:48:25 GMT -5
Hey, this probly belongs in the diet thread, but.... Hope you're able to follow the diet as closely as possible the whole time, not just after surgeries... sorry if I missed something. I just think the diet is WAY more effective than we are ever going to be able to 'prove' to the medical community.... there's no profit in it for them so why would they research or reccomend it? Unless as part of some other testable supplement or drug regemin... I don't think a doctor will advise you to do this diet because its out side of their frame of reference. However, for me and for LOTS of others here, it's been the number one positive result out of ALL the treatments available. And it works for each individual in their own way. Just sayin, don't wait to start it, start it now and start journaling the way you feel..... wishin you the very best, Pretty (and if you're already on the diet, please disregard.... )
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Post by KSA on Oct 25, 2010 14:22:27 GMT -5
One of the best things my doctor suggested was a food journal so some docs know and will suggest it but not many. I wish all of them would get on the same page but they do not know much about the disease and some do not believe it is even real like the dumb a~~ in the ER I had. I would love to educate all of them.
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Post by dianel on Oct 29, 2010 16:13:24 GMT -5
I know the diet is helpful and maybe I am posting this in the wrong area, but, can it prevent the endo growing/spreading? Or does it just help with pain management???
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