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Post by ouchy on Jun 6, 2006 16:51:55 GMT -5
Do any of you with intestinal endo feel as if your insides are glued together? Crazzzzzy! I'm totally thinking of having this stuff cut-out, rather than just lasered-off.
I feel like I'm just glued together inside! I dont' know how to describe it any other way!
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Post by sammi79 on Jun 11, 2006 2:29:55 GMT -5
isn't that what adhesions are? I had two lap and laser surgeries last year and the doc said that my organs and tubes were "glued" to each other and to other parts of my insides with adhesions.
I thought that laser was the only option to get rid of endo... my doc said that he had to "cut out" a bunch of cysts during my last surgery, but I didn't know there were other alternatives to laser for endo?? I assumed by "cut out" he just meant lasered...
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Post by ouchy on Jun 11, 2006 10:50:07 GMT -5
Awesome!!! Sounds like you had partial-excision!!!
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Post by sammi79 on Jun 11, 2006 19:41:04 GMT -5
partial-excision? i'm going to go google this, but i've not heard of this term before, can you please explain what you mean by this???
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Post by ouchy on Jun 11, 2006 20:13:34 GMT -5
I was guessing "partial," because you said, "my doc said that he had to 'cut out' a bunch of cysts during my last surgery." ...I was guessing that if he "cut out a bunch"...that he didn not cut out all of them...leading me to guess "partial," and the word "excision" means to cut-out. So, that is why I guessed "partial excision," kind of like a laparotomy??? Sorry. I probably should not have said anything. I just got excited, because if I ever have another surgery for endo, I hope it is excision, as it is the best!
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Post by ouchy on Jun 11, 2006 20:28:06 GMT -5
No, so I really mean in my first post that my insides sometimes feel "sticky"...it's weird. Anyone else experience this?
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Post by sammi79 on Jun 11, 2006 22:28:23 GMT -5
oh, much clearer! thanks for the explanation Ouchy! During the post op consult, the doc explained that he had to "cut out" the cysts, but did not explain what method he used. He even took a video of it, which we watched together (most of it in fast forward tho) post op, I could see where all the cysts were, because there were big holes in my insides... I can't tell you the relief to see the endo gone (watching the surgery from beginning to end)!
I do understand what you mean by feeling glued and sticky! for me, I think endo has a strong psychological component, as the disease progresses and changes in my body, I can kind of visualise what my organs are looking like and sometimes I do feel kinda sticky or glued together.
My mother in law to be, is a reiki healer and she encourages me to do this visualisation thing where I lay out really relaxed and try and visuallise perfect organs with completely patent tubes ... I am not totally convinced of the mind over matter theory, but I find it really helps me relax and focus on something other than the pain!
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Post by ouchy on Jun 11, 2006 23:31:53 GMT -5
Wow! That would be awesome to watch a video of the surgery!!! I only got to see before/after photos. I understand about the visualization techniques and all. My hynotherapist I went to had me imagine the implants shrinking and disappearing, being reabsorbed into the body, leaving clean, healthy organs It was relaxing, and who knows...maybe it helped? It did help the pain!
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meka
Full Member
Posts: 164
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Post by meka on Jun 11, 2006 23:49:35 GMT -5
I sooooo know what you mean about things feeling glued together. For months, during my painful times, I've had to walk around stretching every few minutes. I did it so much that I didn't even think about it. I just felt like I needed to stretch. At work my kids (I'm a kindergarten teacher) would ask me, "Teacher, why do do you keep stretching like that?" and that would make me realize just how much I was doing it. There are times when I just walk around bent over to the right, trying to keep my left side stretched. Come to find out a couple of weeks ago, after an ultrasound, that my left ovary is apparently fused behind my uterus! Well, it made me sad to hear that, but at least I understand a little more about what's going on inside of me.
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Post by ouchy on Jun 12, 2006 0:20:45 GMT -5
Yikes about the ovary!!! Hope they can somehow fix it. I know what you mean, it makes you glad to know...but at the same time, probably makes you nervous? That is what it does to me, anyway.
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meka
Full Member
Posts: 164
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Post by meka on Jun 12, 2006 0:50:02 GMT -5
Yeah, that's what I mean by "sad." I guess worried would best describe it. I reeeally want to have kids (after I get married-after I get engaged-after I find a boyfriend ). So having one ovary behind my uterus cuts my chances in half (as if my tubes being clogged with who knows what didn't eliminate my chances to begin with). I'm just trying to avoid being depressed about it, and pray that it will all work out as it supposed to in the end. My all time favorite prayer (I'm not religious, but I do believe in a higher power): God, Grant me the serenity to accept the things I cannot change, Courage to change the things I can, And the wisdom to know the difference.
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Post by sammi79 on Jun 12, 2006 4:51:53 GMT -5
Meka, I am sorry to hear your news! I hope the docs can offer you some options for treatment and that things work out for you!
thanks too ouchy, for the explanation! It was pretty amazing to watch the video of my surgery, the doc showed me because I went to him for a second opinion and had to have surgery not 4 months after my first lap and laser... I went for a second opinion because my first doc pretty much wrote me off and said that he could not reach any more of the endo as it was too close to other organs... Fortunately the second doc managed to get most of it... and it was great to actually see what my insides look like before and after the second surgery. I know what you mean Meka, it helps to have some understanding of what is going on, even if its not great news! at least you have an idea of what your dealing with huh?!
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