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Post by tamaraa on Oct 16, 2016 18:05:49 GMT -5
Hello all,
Thanks for being here! It's tough out there alone. I have painful periods since I got them at 10, got diagnosed when I was 21. Pretty tough times all around, but you know all about that. Since then I had done two laps and have still endometriosis stage 4. I really can't take the hormone therapy and I don't want to take it any more! Visanne worked for the 9 months I took it, but I really don't feel comfortable taking anything that has not been clinically tested for a longer period of time. I tried Feanolla right after it, but the nasty side effects were totally overwhelming, my last month was literally hell. I don't want to take any hormone pills any more!!
My question is - are there any women here who live without hormone pills and ends for a longer time here? I am 27, and I have a very long time until menopause. I am scared of the pain and of the perspective that is for me out there. Are there any women who live like this and survive?
I am doing the endo diet again, just started(with which I had lots of success one year when I was very strict), and I plan to look for some alternative support, but mostly lifestyle changes. I also would like to start trying for a child soon. What are my chances of living normally if I never take hormone pills again?
Thanks for your answers and happy to be here!
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terceltina
New Member
Happy, and now with 4 cats.
Posts: 43
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Post by terceltina on Oct 26, 2016 1:04:11 GMT -5
Hello, I am without hormones. Never took birth control or any drugs to modify the endo. I am 2 years past my laproscopy. I have to stay strictly on a diet, and I still have mildly bad months. But nothing scream worthy, nothing incapacitating. I will continue on this path though, as I feel that there are so many different factors at play, especially lifestyle and chemicals, that can cause changes in the body. I am careful about avoiding scented products, most body care products, plastics. I use unbleached filters in my coffee machine. There are so many unknowns with endometriosis, but I hope that with the endo diet and other changes, you find success. I know I was really lucky to find this group, and hear about others who inspired me by being able to have jobs, and families, and be not just normal, but exceptional. I was just on the facebook group and came across this article, www.hormonesmatter.com/endometriosis-just-reproductive-disease/, which talks about how endo behaves differently than it is expected in terms of growth.
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Post by tamaraa on Oct 29, 2016 10:31:05 GMT -5
Hello, I am without hormones. Never took birth control or any drugs to modify the endo. I am 2 years past my laproscopy. I have to stay strictly on a diet, and I still have mildly bad months. But nothing scream worthy, nothing incapacitating. I will continue on this path though, as I feel that there are so many different factors at play, especially lifestyle and chemicals, that can cause changes in the body. I am careful about avoiding scented products, most body care products, plastics. I use unbleached filters in my coffee machine. There are so many unknowns with endometriosis, but I hope that with the endo diet and other changes, you find success. I know I was really lucky to find this group, and hear about others who inspired me by being able to have jobs, and families, and be not just normal, but exceptional. I was just on the facebook group and came across this article, www.hormonesmatter.com/endometriosis-just-reproductive-disease/, which talks about how endo behaves differently than it is expected in terms of growth. Thank you for replying so much. I feel very very lonely in this. I am today getting my first period after a year. I stopped taking the pills on October 6th, and today pain started and some spotting, and I suppose this is it. I have been following the diet again very strictly, my boyfriend who I live with is very supportive and everyone around, so I keep at it. I still haven't taken any NSAIDs this month, which is a good sign, as it seems bearable. I hear you on the lifestyle, I have been pushing so much on advancing my career despite all costs - but finally came to terms that my health is more important. I am realising that I am more important than any status, any career achievement, and I am already thinking of planning some arrangements to work less. I am so scared of the future, so really scared of reading all of these horror stories on the Internet. How do you cope with it? I need to believe in this, but everything seems to point out that I am naive to follow this path. I am having a bad day and reading your reply just made everything so much better.
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Post by Karen on Oct 29, 2016 12:36:07 GMT -5
Chiming in here. I've been synthetic-hormone free since 2009. I've been on bio-identical progesterone here and there to help balance my hormones, but gave that up over a year ago. I had to make significant changes to my diet but slowly and surely I made progress. I also contribute pelvic physical therapy / myofascial release in getting my body to soften adhesions and get my body working better. Treating my thyroid was huge, too. It's not easy but totally do-able if you're willing to try things and adjust as needed. I haven't had a surgery or prescription pain pills since 2009 and plan to keep it that way for a long time. I take maybe 5 advil a year.
Oh, and I'm 39 and in my second trimester. Conceived naturally. Your story may not look like mine, and the approach you take may be different, but there is hope!
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