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Post by resa88 on Oct 5, 2015 12:47:26 GMT -5
I'm a 27 year old mom of 3. I raise my niece, who is three months older than my youngest daughter, so my girls are ages 11, 3, and 3. I found out a couple months ago that I most likely have endometriosis. I had an appointment all set up with an OBGYN but ended up cancelling it due to car problems. I'm now at that point where I'm almost afraid to reschedule. I feel like even if I knew 100% that I have Endo, it wouldn't matter. I have never been able to take birth control because of the hormones. I act like a complete psycho. And from what I understand, birth control, ablation, or a hysterectomy are the only way to deal with this, none of which are a 100% guarantee that I will ever feel healthy and normal, or that the pain won't come back.
My symptoms consist of extreme exhaustion, contraction type cramping that goes from my ribs all the way to my knees, migraines, pain pretty much everywhere down there (front, back, inside, outside), bleeding "old blood" between periods, diarrhea that goes hand in hand with nausea, extreme abdominal tenderness, and extreme moodiness. I'm sure I've forgotten some stuff, but long story short, I'm miserable.
Any support anyone can offer would be so appreciated!! I try to tell my best friend and my mother about what I'm going through, but I honestly feel like people think I'm faking it. They TRY to be supportive, but really, they aren't. My husband does the man thing and tries everything he can to "fix" what's wrong, but as hard as he tries, he can't fix this.
So as I sit here typing this in between awful bathroom trips, my mouth watering from nausea, with my jeans unbuttoned because of the pain, I'm just hoping for someone who knows how I'm feeling and can relate to me. Anyone able to offer me some support??? Suggestions??? Anything??? I'm still learning how to use this site, but I hope to find at least one friend on here who I can relate to... maybe I wouldn't feel so alone then.
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Post by Karen on Nov 16, 2015 19:44:24 GMT -5
I'm sorry you're going through so much. It sounds like your body has been dealing with a lot for a long time!
Though you may choose not to go the typical endo-treatment routes, I'd still encourage you to find out what's going on. It could be more than 1 thing. Some obvious ones are thyroid, cysts, adhesions, etc. There is more than just surgery or drugs out there to help, or at least provide a little relief.
Though the board has been quiet, you're not alone. Hang in there, look around, and see what things the women on here are doing to cope, to treat, and to find relief!
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Post by resa88 on May 25, 2016 10:48:13 GMT -5
Well, I have since been to the gynecologist. He did an ultra sound and switched my copper IUD to the Mirena. They were able to see a cyst, which he didn't even talk to me about. I saw the writing about the complex cyst in my medical records I accessed online. I don't feel like he listens to ME. His approach is more of a "Well this is what the treatment is, so this is what we are going to do". He said I was to have the Mirena put in and if that didn't work we would start on Lupron. I have had the Mirena now for going on 6 months. Since getting it I have had sweating, hot flashes, extreme anxiety and angry outbursts. I have pretty much lost my mind the whole time I have had it in. I can barely leave the house without crying because of my anxiety. It did help with pain for the first few weeks, but that was short lived. I will be getting it removed in 2 days, because I cant handle all the side effects I'm having. I'm thinking of traveling to Seattle (350 miles) to see a doctor who actually knows his ass from a hole in the ground, I just feel like that's extreme since there are plenty of doctors here, but none of them have the experience and following of the doctor I would prefer to see. The doctor I am/was seeing doesn't listen to me when I ask questions or tell him I CANNOT HANDLE HORMONES. I mentioned to him that my stomach was distended on the side where the cyst is and he almost laughed it off. "I seriously doubt a 14mm cyst could cause your stomach to be distended" is what he said. He never felt my stomach or looked at what I was talking about, so I have no idea why it's like that. And as far as Lupron, how the heck am I going to act on Lupron when my family was ready to commit me because of how I have been acting with the Mirena side effects...? The doctor was just very dismissive, which now leaves me feeling very unimportant, like I just don't matter. I don't expect anyone to read this, and I might be writing this all in the wrong spot, but I mostly just need a place to vent. I think everyone else I know is sick of hearing about it
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terceltina
New Member
Happy, and now with 4 cats.
Posts: 43
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Post by terceltina on Jul 9, 2016 22:08:04 GMT -5
Hi resa88,
It feels horrible to not be listened to by your doctor. It's totally okay, and even recommended, to talk about it, a lot of people on this forum have had to go through times where no one believed them, or even listened.
I hope you are able to find a doctor who will help, don't give up. I had to be very insistent with my doctors when they tried to put me on hormones, and I had to repeatedly say "no". You know yourself better than they do, and you shouldn't feel bad for being your own advocate.
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