abh
New Member
Posts: 2
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Post by abh on Apr 24, 2014 18:39:36 GMT -5
New here. Have stage IV. MD described it saying my colon, bladder tubing, uterus, and one ovary were all a big ball. I am seeing Dr. Maikis in Nashville in a week for another opinion. Dr. Furr from Chattanooga told me I had 3 possible options 1. endo removal only 2. endo and uterus removal 3. removal of endo, uterus,and both ovaries.- all 3 with appendectomy. Dr Maikis may say the same. Having thought about it- I think I just want the endo removed (37- two kids- no plans for more). Just wondering if anyone here had used either of these MDs and if anyone with a similar situation had success with endo removal only. Dr. Maikis does "vaporization" and Furr just mentioned excision- not really sure pros/cons there. I had planned to go back on Depo if just the endo was removed. My goal is to make it another 8-12 years with all my parts then get them out when I am closer to natural menopause. BUT- I am really shaky on this decision- I know I do not want HRT right now but I am iffy on the uterus. This has all been a shock since I was on Depo for years and years with no periods. This was found due to pain with sex, rectal bleeding, and pain with BMs.
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Post by willow82 on Apr 25, 2014 17:35:50 GMT -5
Avoiding HRT is a good choice if at all possible. When it comes to your uterus it really depends on whether or not you want more children, the role your uterus is playing with your endometriosis, and whether or not you have adenomyosis as well as endo, A lot of women, especially those with more extensive endo, who have had surgery (including C-Section), or have given birth are at higher risk of adenomyosis also known as endo of the uterus. I was in horrendous pain still after all my endometriosis was excised by a specialist, and it turned out I had adeno as well, and I had a subtotal hyst this August, and have been fine since. Subtotal hyst means leaving the cervix. This was my doctors first recommendation, and also what I was most comfortable with. Many women have the cervix removed as well, and have no problems, but I like still having mine.
Hysterectomy does very little for endometriosis itself. Ovary removal without HRT can suppress further growth, but of course that means full blown menopause and menopause comes with it's own problems.
Really, many women choose to do excision and preserve organs first, since for many this works just fine. This is also what most specialists recommend.
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Post by chibineko717 on Apr 25, 2014 18:07:58 GMT -5
Welcome! I'm not a very good success story since I keep having surgery and just had my uterus and right ovary removed. I had 4 surgeries to remove the endo. I just had a 5th at the beginning of the year to get rid of the uterus and ovary. I do not have to go on HRT since I still have one ovary.
If you had pain relief from the depo, maybe just getting rid of the endo will help if you go back on it.
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abh
New Member
Posts: 2
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Post by abh on Apr 27, 2014 18:33:44 GMT -5
Thank you for the help. I think I will ask the surgeon about uterus and endo removal only followed by Depo.
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