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Post by mommajo on Sept 14, 2008 23:47:48 GMT -5
Hi ladies, just thought i'd update.. last night was my first INTERNAL therapy session and man did it hurt like H E double hockey stick! (hehe) i had a lot of tenderness on my left side, she would touch a spot and i'd jump and she says, "im barely touching it" i told her it felt like she was punching me from the inside sooooo im hoping that over the next few days my muscles from the inside will be a little less, shall i say "stressed out" I did have some cramping last night and put the heating pad on, steered away from having sex with my loving boyfriend Im still having come cramping this morning and some pain in my lower back. sigh.... has any one found a cure yet?!? After my week long intensive therapy with Clear Passages (5 hours a day manual manipulation internal and external). I did find complete relief from all my abdominal pain. Nothing personal, but I could not imagine doing this for 5 hours a day! That's crazy... I'm not even sure I could do 5 minutes. The whole thing sounds kinda strange to me, but hey if it works I may give t a try... Lord knows hubby is gonna need sex sometime in the next few years or so lol.
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Post by tmichelle on Sept 15, 2008 20:39:45 GMT -5
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Post by donnamb on Sept 18, 2008 22:26:19 GMT -5
I just had my first pelvic physical therapy session today - and it was fantastic. The focus will be on both my endometriosis and my interstitial cystitis, but the PT tells me there is much similarity in the treatment course. She was very gentle and didn't work on too many trigger points this first time. There was some pain, but it was bearable, and while I am sore now, it feels like a good kind of sore. (I hope that makes sense.) After she was done, she hooked me up to a TENS unit with heating pads both under me and over my pelvic area. That was a heavenly 15 minutes. My homework is learning some pelvic floor muscle relaxation exercises. I can't wait for next week's session.
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Post by tmichelle on Sept 20, 2008 18:52:05 GMT -5
I just had my first pelvic physical therapy session today - and it was fantastic. The focus will be on both my endometriosis and my interstitial cystitis, but the PT tells me there is much similarity in the treatment course. She was very gentle and didn't work on too many trigger points this first time. There was some pain, but it was bearable, and while I am sore now, it feels like a good kind of sore. (I hope that makes sense.) After she was done, she hooked me up to a TENS unit with heating pads both under me and over my pelvic area. That was a heavenly 15 minutes. My homework is learning some pelvic floor muscle relaxation exercises. I can't wait for next week's session. Oh yay! I'm so glad your first session went well. I also love to hear of people trying a more natural approach first. I hope it continues to work well for you.
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Post by ouchy on Sept 20, 2008 19:45:30 GMT -5
Do they use dilators or just fingers? Sorry if that sounds weird, lol. I'm curious.
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Post by donnamb on Sept 20, 2008 22:40:49 GMT -5
Just fingers and she is very gentle. She says she has learned over the years not to work on too many trigger points in one session. I only felt a lingering soreness yesterday, which was like when you're sore because you ran or worked out or something like that. Compared to the usual pain, it was almost pleasant in a healthy exercise sort of way. It's her belief that anyone with a chronic pain condition in any location is going to have the surrounding muscles tight, spasm-y, and yet too slack at the same time. That made sense to me, and I guess the pelvic floor muscle shouldn't be any different than any other muscle in the body. I've been doing Kegels for most of my adult life but over the last few years it's hurt too much to do them. She says it's due to the muscle being so tense and tight from the chronic pain. Once we get it relaxed again, she'll re-teach me Kegels slowly and carefully so there won't be pain. It could be this particular PT that makes it so good. She has the manner of a fellow sister helping and educating more than anything else and that makes me trust that she isn't going to hurt me. Hope that doesn't sound too corny. I feel like a participant in my own treatment and not a medical victim. I don't have any illusions that this is going to "cure" anything, but if a healthy pelvic floor muscle will alleviate even 10% of the pain, I will consider it a success.
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Post by ouchy on Sept 20, 2008 22:58:56 GMT -5
That's really cool. Sounds like she is a great PT!
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Post by jjuls22 on Oct 3, 2008 14:16:03 GMT -5
my PT and decided that she can't help me any longer and she suggests that i go back in for a check up and possibly go through a 3rd lap and then come back and see her. She says shes not seeing as much improvement as she'd like and she can tell im getting frusterated. Ive been seeing her since JUNE. Sigh. my last appointment with her is on weds and then i have an appoint with a gynae/surgeon on the 14th, ultrasound on the 10th. If surgery is not an option i think im heading down the lupron road of hell.
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Post by Karen on Feb 18, 2009 20:08:43 GMT -5
My doc just referred me for pelvic physical therapy. She didn't go into much detail but I'm assuming it's what's described here. At one point she said 'you may find after the first appointment that it's not for you' so I'm taking a guess it's internal... And, hey, I'm at the point where I don't care!
On a side note - years ago a friend and I went to doctor's office that she works for - they offer massages and PT there - and I had the BEST massage in the world by one of the PTs there. (She lives hours away or I'd go back!) Anyway, I had a head cold at the time and she did some massage in my mouth that totally opened up my ears instantly (she said is the same massage they use for people with TMJ if anyone is curious). We got to talking about all the cool things she's able to do with PT/massage and even said she does vaginal massages for women. I remember wondering what on earth would possess a woman to do something like that. And years later, now I know!
My first appointment is next month. I'll keep you posted on how it goes! I'd much rather try something like this than be on meds forever. I just hate side effects!
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Post by Karen on Mar 11, 2009 12:09:49 GMT -5
So just had my first appointment today. Let's just say that the last time I was touched like that, I was at least treated to a nice dinner, and a few drinks, and some shameless flirting first! Ha!
Seriously, it wasn't bad at all, just a little uncomfy. This first visit was mostly just investigational, figuring out what needs work, etc. I have some stretches to try at home for a week and sounds like next week, we'll really dive in.
On a good note - she said they often see if a tens unit is useful! If so, they'll rent them out for a bit to make sure they work, and if so, we can see if my insurance will cover part of the cost to buy one. Yippee! Just glad to know there are lots of options out there!
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Post by ouchy on Mar 11, 2009 14:29:10 GMT -5
LMAO @ your first pragraph!!!!! OOOH! I hope the TENS works! Good luck with everything!
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Post by italialynn on Aug 28, 2009 8:45:06 GMT -5
Sooo, had my first appt last night. I must say it was quite interesting.... Started out with the usual medical history stuff, then it was onto the fun part Good thing is the PT tech was fab...a really great gal with a good sense of humor, so that helped. But it HURT. It was amazing though to feel how tense my muscles are inside my pelvis though. She taught me the correct way to do Kegels and I could feel my muscles relaxing as the session went on. I'm booked for 1 session a week for 15 weeks! I willing to try anything if it'll help me even 10%... Funny part of it all is she gave me "Mr. Frosty" for the ride home. It was literally a condon filled with frozen blue goo to put you know where for 20 minutes. I think I almost peed my pants I was laughing so hard when she brought it in....It looked like Mr. Smurf's you know what!!!!! For the most part though, although I'm in pain and crampy from the session, I think it'll do me some good in the long run. Plus this center has PT's that have been doing strictly pelvic floor physical therapy for over 20 years, so I feel like I'm in good hands (no pun intended ).
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Post by Karen on Aug 28, 2009 9:16:26 GMT -5
OMG - Mr. Frosty? How freaking funny! Sounds like you found a good PT center - best of luck with everything!!!
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Post by italialynn on Sept 10, 2009 12:23:48 GMT -5
So, just another update.... I'm REALLY digging this PT stuff. My last two sessions were completely external, and this is the best I've felt in a LOOOOONNNNG time. If you have adhesion pain, I think this is absolutely the way to go. Absolutely nothing has made me feel better since my last surgery, and for the first time in almost 6 months I feel like a normal person again. I don't know how well this treatment could help with actual endo pain, but for adhesion pain it's the best. She literally wraps my body in warm, moist heat for about 10 minutes and then digs her fingers into my abdomen, grabs onto the adhesions, and basically works them out until they release a little. It hurts like hell during the process, and I actually almost vomited last night during treatment, but I can finally stand up from the sitting position without it feeling like someone is tugging my guts out. I've even ridden my horse four times this week!!!! I haven't been able to do that for about two years. I honestly and truly can't recommend it enough for adhesion pain. I was hoping and praying for relief and I'm finally getting some!
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Post by staceys on Sept 10, 2009 13:41:04 GMT -5
That is such great news! Does this mean that you will not be making another trip to the CEC for surgery? I will definitely be asking my MD about this after my surgery in two weeks. I can totally relate to standing up and feeling like something is going to rip apart. Do you think it is actually breaking them up? How did you go about finding someone who does pelvic PT - is there a website or association? I cannot imagine all PTs do this.
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