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Post by ktwildermuth on Jun 2, 2012 21:42:09 GMT -5
Hey everyone! I had a lap on April 10th and they diagnosed me with Endo and I had a lot of scar tissue and adhesions. I am on continual birth control to stop my periods and ovulation to prevent endo from forming. Lately, like the last 3-4 days, I have been having pain similar to when I started having pain before the diagnosis. It is a dull, nagging pain by my left ovary. I can push down on my stomach and ovary area and can feel a little knot or bulge or something there. I am so scared because I just had the surgery, have been changing my diet to go gluten free to see if it helps, and started exercising. I don't want to have to go through this again. It took 8 months to diagnose it to begin with and to hurt already is terrifying... Is this normal or should I be scared?
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Post by semicolon on Jun 3, 2012 8:34:33 GMT -5
First off, I know it can feel very disheartening but it can take a long time to heal from surgery. I would give yourself a few months to really know how you feel. You have the opportunity to try the other things you mentioned, and try to manage your stress, which has a huge effect on pain.
The surgery may or may not have eliminated your pain, but it gave you a diagnosis which is huge. Did you have surgery with a specialist? Are you on BC right now? The other thing to consider is Pelvic Physical Therapy, which can help with adhesion pain a lot. Hang in there, we're here for you!
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Post by Karen on Jun 3, 2012 9:00:38 GMT -5
For many of us, surgery doesn't necessarily eliminate pain. For me, mine was back within 2 weeks full strength within 2 weeks of my lap. It made me realize that surgery isn't a cure for endo, though many get long-lasting relief from a lap. Surgery is just one part of managing endo. Diet, PPT, and all sorts of other things can help the other aspects of why you hurt. It's good to see you're going GF. Are you dairy free as well?
However, as semicolon mentioned, it may take your body a few more months to figure out exactly what it's supposed to do and what your new normal will be. Any chance your pain started when you started exercising? If you're moving your body in new ways, it may uncover some new twinges that you may have to figure out. I HIGHLY recommend pelvic physical therapy, particularly someone trained in fascia release. That nipped my constant adhesion pain in the bud and also allowed the rest of my abdomen to feel like I had more space in there. Turns out that when in constant pain, our bodies can stay ultra-tense at all times, which contracts the muscles around the organs that do a lot better when they have a bit of breathing room. That's something surgery and pulls don't even touch.
I understand your fear and concern - be sure to listen to your body - but also know that there are other things you can do to help with the pain if it continues.
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Post by loveshoes on Jun 3, 2012 9:09:40 GMT -5
I wonder if it's something like an adhesion that formed and is pulling there? I take continual BCP's - have been on them now for 1 year and 1 month since I stopped for 2 years to try to get pregnant. I never stop for a bleed. I follow the diet and work out religiously 5 days a week 45 min of cardio and I can tell you - if I up the resistance on my elyptical I can feel it the next day within my belly area. I also can say, if I cheat and have anything with wheat in it, whammo, that affects me too but at least it's a good indicator that following the diet is a very good thing when I do get a reaction for the occasional slip up on the diet. I'd wait it out afew more months before you freak out, just stay on your pills - I take advil soemtimes too if I'm having a day that I can feel a twinge and that helps reduce any inflammation and usually the next day I feel great again.
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