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Post by avaonasis on Dec 21, 2011 23:39:09 GMT -5
Hello,
I am new here. I just really wanted to talk with other people about their experiences. I have had severe abdominal cramping... for the last 11 years. I have treated my condition by taking birth control and not having a period. Yesterday I finally had the laproscopic surgery. When I woke up my doctor had said that she did not find any endometriosis. I guess that should have been good news... but, now I am at a loss for a reason to my constant pain. So, I wanted to ask a few questions...
1. How many incisions are typically made for this surgery? I was told that there should have been 3-4. I woke up with 2. Also, I only feel like one side of my abdomin is sore... Im thinking maybe only one side of my abdomin was looked at.
2. Has anyone heard of endometriosis being missed during a surgery?
I seriously feel like my doctor was rushed (as she had 4 back to back surgeries scheduled each hour after mine). She has refused to return my calls... stating that she will talk to me at the "follow" up appointment. I am feeling a little screwed.
Anyone anyone want to talk about it?
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Post by romeosgal on Dec 22, 2011 1:06:37 GMT -5
That doesn't sound right to me. I just had my first lap two days ago. I have three incisions - one on the left side of my abdomen, one above my pubic bone and one in my belly button. My doctor phoned me yesterday to see how I was feeling and to go over the surgery. Sounds like you need a new doctor. Just curious - did they keep a copy of the video for your surgery?
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Post by 1234 on Dec 22, 2011 8:13:25 GMT -5
Hi there--I can't weigh in so much on the incisions. I had 3, but I can see that someone might only need 2. I hope you get some more information at teh follow up appointment, as it is pretty ridiculous not to talk to you.
And I do believe that some people have had endo but not have it seen during a lap--the lesions can be very small, even microscopic.
11 years of abdominal pain isn't right, even if it is or isn't endo. I hope you find some answers soon. Are you in a place where you can find another doctor?
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Post by omaklackey on Dec 22, 2011 13:25:36 GMT -5
I'm sorry! That is the worst fear for all of us that someone says "negative test results". I would just suggest a few things. Go to an Endo specialist (even if you have to go far away for it). Adenomyosis is in the wall of the uterine muscle and can't be seen by laprascope but hurts like bloody heck! Also my ovaries were covered in nasty endometriomas and they didn't know that until they did the biopsy. Interstital Cystitis also hurts like no bodies business and can't be seen without other tests and can be caused by endo in the bladder wall that isn't visible. I guess what I'm saying is if the symptoms fit the best for endometriosis, assume you have it. So don't completely lose faith, this does happen to some people and I'm so very sorry it happened to you. Heal up and while you do, do some research on a better doctor!
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Post by JC on Dec 22, 2011 17:13:02 GMT -5
I'm sorry you didn't get any answers. I wouldn't look too much into the number of incisions you had. Each doctor does these differently. I was originally only supposed to have two (belly button and pubic area) but then my doctor did 3 instead. They can still do the surgery with 2 incisions.
Did your doctor do any biopsies of tissue samples? When is your follow up? Also, where are you from?
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Post by Karen on Dec 22, 2011 18:26:31 GMT -5
I'm sorry you didn't get immediate answers, but I still think you have a good reason to keep pushing for answers until you get some. I'd suggest you start lining up a thorough list of questions for your doc for your follow up to really dig in and see what he did, where he looked, if/what he biopsied, etc. You have every right to ask for a copy of the surgical report, too, which will detail things for you. And if need be, find a different doc! Not a fun idea when you just went through surgery, but we at least want you to know there are other options to get some answers.
Wishing you a speedy recovery!
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