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Post by 1234 on Mar 8, 2012 7:02:25 GMT -5
I'll wait until after the colonoscopy and then make a decision about what to do, I think.
I love NYC too--a piece of me still can't believe that I don't live there still. The chinatown buses are WAY less sketchy than they used to me. They aren't actually that many that go between chinatowns any more--those were a hoot!!! most now go Union station (DC) to Penn Station (NYC) and even have toilet paper now!
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Post by Karen on Mar 8, 2012 7:14:28 GMT -5
Ha ya, what a luxury!
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Post by 1234 on Apr 21, 2012 10:01:34 GMT -5
So continuing with my saga of acupuncture...
my doctor has started these last few weeks going back to what she tried at first, which knocked me out so much, these "dispersing" points. I seemed to be handling it fine--knocked out for the evenign afterwards, but ok the next day, rather than having the 3 - 4 days of exhaustion, feeling like I have the flu, and depression. However, the pain of my period last week was horrible, so I was was wondering if there were a link. And after my period ended, I was still having sharp pain. I went to acupuncture on Tuesday, and have still had bad pain the rest of this week--at the level where I was fighting not screaming or crying at work, and where every five minutes I was cycling through the mental hamster-wheel of "I can't take this pain anymore--well, what else am I going to do, take a deep breath adn get back to work--getting back to work--I can't take this pain anymore....". I'm on day 11 of my cycle, so at this point the pain is part of my normal pattern of pre-ovulation pain (I normally ovulate, now, on day 16/17), but the pain earlier in teh week wasn't part of my normal pattern. I emailed the acupuncturist yesterday to see if the "dispersing" could cause more pain--she wrote back immediately and said that anything's possible, but that normally "dispersing" in a patient with chronic pain actually alleviates the pain, and her whole strategy has been to get me strong enough that my body can handle the dispersing--and then hopefully strong enough that she can start working on the "blood stagnation". That all makes sense, in teh context of TCM, but the pain this week has been difficult to handle.
Another thing of interest: my temperature this morning was below 97 degrees, for the first time in months--so I'm not sure if my hormones/body just went wacky on its own or if somehow the "dispersing" is upsetting the balance I'd achieved?
I don't know--I'm feeling a bit confused right now so just throwing the information out there for comment in case any of you all has any input or ideas. This is a weird journey.
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Post by 1234 on May 1, 2012 7:23:39 GMT -5
I'm not sure where to put this, but since this "dispersing" thing has thrown off my cycle so much lately, I think I'll put it here. Mostly, I just need to bitch. This is over 3 weeks of really unbearable pain--so bad that I've been throwing up fairly regularly the whole time (not every day, but several times a week). I can barely stand--I actually don't know how I stand. I think functioning is a habit that I can't get out of.
Sometimes I don't know really what "unbearable" is, but when my pain is really bad it keeps me from talking--does that make sense? It's like there isn't enough room for both me and the pain and the pain just takes over. When I've been interacting for a while in a meeting or something, I can sort of get in a groove and keep on talking, but if I haven't spoken for a bit and someone comes to talk to me, it takes so much effort to unfocus from what I'm working on and try to understand what the person is saying--and then it's so hard to talk back! The pain has sort of taken over my mental space.
I'm not even sure what I'm babbling about now, but just saying that I'm used to constant pain, but not having about 25 of my worst days in a row, without break. Normally at this level of pain I'll have 4 - 7 days, or at the absolute worst times maybe 10 days at the most, and then I get a break with lower level for a bit.
I guess my only good news is I'm still feeling pretty spunky emotionally. I do love biking in the rain.
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Post by Karen on May 1, 2012 19:08:44 GMT -5
I know exactly what you mean about not wanting to talk because it takes too much focus/energy. I'm sorry you feel that way. And I'm sorry you're feeling so yucky. Has your acupuncturist gone back to her old method yet, or are you just fighting through it?
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Post by 1234 on May 2, 2012 14:21:17 GMT -5
well, yesterday she decided I wasn't a candidate for whatever this "dispersing" is. She went back to her old method. I'm still hurting, but that awful pain has broken and I was actually able to sleep last night instead of waking up regularly with the pain. My temp also rose this morning. I'm really curious what that "dispersing" needle was doing to me!!
She also told me that she spent all of yesterday morning re-reading all of her notes on endo and said that there were so many things that she could try, if only I could tolerate them. It's frustrating--I wish that my hypersensitivity to acupuncture could be more positive!!
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Post by Karen on May 2, 2012 18:06:24 GMT -5
Ha ha, I'm glad she finally agreed to stop trying that! I'm glad your body seems to have rebounded a bit so quickly. I'm still amazed at how quickly those temps react! I hope she's able to get you to a point soon where you can start to try some of the other stuff, and that you'll respond in a good way!
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Post by semicolon on May 2, 2012 18:15:27 GMT -5
Rust, I had missed your previous post, sorry. I'm sorry you have been in so much pain, it is so distracting. I say f the dispersing and go back to what was helping regulate your cycle before. I use modalities for pain at work (like ultrasound, electric stim, TENS), and it is very individual- sometimes folks just don't respond to something that's "supposed" to work so you move on. That's nice that she's been reading her notes for you, it sounds like she really wants to help!
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Post by 1234 on May 3, 2012 13:42:50 GMT -5
She really does want to help, and I do trust her--she knows a lot about endometriosis and has treated several women with it, successfully. I feel a little bit like Karen though that I wish I could stop being an education for doctors and start responding normally to treatments!
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Post by xsnoflakex on Jul 25, 2012 21:26:58 GMT -5
today was my 2nd time & i have to say it is very relaxing! after i do the acupuncture i go straight to the massage & it is a great combo. i definitely recommend it
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