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Post by jjuls22 on Jun 7, 2011 10:55:48 GMT -5
Mods - please move to an appropriate thread if needed. I did a search and came up with nothing.
Has anyone had this done for their bladder/IC issues? ive been reading that it only helps 30% of patients and is extremely painful for a couple of days after the proccedure.
My bladder is pretty much stuck ( says my PPT) and im waking up in the middle of the night 2-3 times to go potty and i cant force myself back to sleep b/c my bladder hurts so darn bad.
Im wondering if this proccedure will help free my bladder of the adhesions that are holding it in place, and help me sleep through the night.
Thoughts? Experiences?
Thanks! Julie ;D
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Post by hellsbells on Jun 7, 2011 15:14:14 GMT -5
I'm ok with where it is! Never heard of it I'm afraid!
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Post by omaklackey on Jun 7, 2011 19:50:00 GMT -5
I don't know what it is but I have the same issue. My urologist said the urine stays in the bladder and doesn't empty correctly due to endo in the wall of the bladder itself. I tried some drugs to help slow down the overactive bladder but they didn't do any good. I have just learned to take as long going pee as I do the other bathroom duties, allowing the bladder to try and empty right. I would love to hear more of whatever this procedure is though. It it helps you at all?
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Post by jjuls22 on Jun 8, 2011 9:22:00 GMT -5
its a proccedure where they actually put you under for. They fill up your bladder with a solution, beyond the point of where your bladder should actually fill. My doctor says its an attempt to stretch out the bladder to help with frequency and IC patients. I havent been diagnoised with IC yet. My doctor refers to this proccedure "a massage for the bladder" and for some patients it works and they have it done every several months and for some patients it doesnt work.
From what i've read, its very painful and thats why they knock you out for it. its possible that your bladder wont be able to contract for a couple of days causing accidents... (yay?) and painful urination for a couple days with the possibility of blood in the urine. They also put you on antibotics for a couple days to rule out any infection. ( im getting this information from reading about it)
I'm wondering why more of you ladies haven't heard of this..... its a low risk proccedure, which my doctor talks freely about and says he would not have any issues performing this with me if i think it will help. Sigh. Who knows what would help!
I'm so bloated today - gained 3lbs over night. I'd like to start a black market where we can all trade our bodies in! ;D ;D ;D
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Post by JC on Jun 8, 2011 10:54:57 GMT -5
I haven't had this procedure done but I do have some experience with bladder irrigation when I was working in the ER. I assume it's almost the same procedure except we would do it for people that were bleeding or have severe infections. We used to place a foley catheter and then inject a large amount of saline in to fill the bladder and then drain it. We would repeat that same procedure until the fluid ran clear. I have done it on patients who were awake and asleep. The patients who were awake would say that they feel their bladders getting full but didn't really complain of pain. But I imagine that if you have adhesions then that would cause the pain that you were describing. Unfortunately, working in the ER means that you never see what happens to your patients once they leave. So I don't know about how they are with bladder control after. Being put on antibiotics after is a good idea because having a foley catheter placed can really increase your risk of infection. I think it's interesting to do this type of procedure and it seems like it would work to help break up adhesions. Have you spoken to a doctor about doing this for you? Or did your PPT suggest it?
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Post by jjuls22 on Jun 8, 2011 12:41:20 GMT -5
ive talked to both my doctor and my PPT. He says its possible that it would stretch out my adhesions, but hes never had a patient do this willingly just for that reason. My PPT seems to think it would help. She says my bladder is really stuck, up, down, both sides... (YAY!!!!) and i said, well Heck, i'll just have another surgery to have everything cleared and then come back to you so they dont form again. She said it would probably work, but surgery is a huge risk and would rather i try the hydrodistention. I've only been seeing her every 2 weeks b/c shes so busy and she tells me usually when they try and free up organs the patient usually comes back with a little more movement. I dont. My bladder sucks. Jenaya, i think its kind of the same thing, i know my doctor has told me that they leave the solution in the bladder for a minute or two and then repeat. He also says that for some patients its so painful he sees them twinge while under anethesia. Yipes huh? He gave me elmron, its really expensive and takes up to 6 months to work - screw that. I live in america. I want results NOW! hahaha ;D
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Post by JC on Jun 8, 2011 13:10:02 GMT -5
YIKES that does sound painful. eesh! What are you leaning toward doing?
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Post by jjuls22 on Jun 10, 2011 17:14:06 GMT -5
ohhhhh at some point in time i'll probably do it. My bladder is slowly taking away my ability to go to the gym. and thats one thing endo has always taken away from me. Its the most frustrating right now b/c its something that i really enjoy. So yeah... at some point, im sure i'll have it done. I'll keep ya'll updated
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Post by JC on Jun 10, 2011 20:10:15 GMT -5
Cool! I want to know how it works out for you. I hope it gets you back into the gym. I know how you feel about having the gym taken away from you.
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Post by omaklackey on Aug 25, 2011 6:56:06 GMT -5
I'm having this done as part of my surgery, while under aneasthesia. They fill your bladder full to try and stretch it out since the inflammation from IC/endometriosis causes it to shrink slightly. I'm crossing my fingers that it gives me some real relief
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Post by cherry on Aug 25, 2011 7:22:09 GMT -5
Good luck with that Karla! I get really annoyed with how little my bladder can hold sometimes.
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Post by JC on Aug 25, 2011 8:02:32 GMT -5
WOW good luck Karla! I hope all this helps!
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Post by 1234 on Aug 25, 2011 18:59:27 GMT -5
good luck, Karla! It would be great if you could get up less in the night.
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Post by omaklackey on Sept 17, 2011 12:27:45 GMT -5
Apparently hydrodistention is the best way to get an IC diagnosis!! Many people who get a cystocsopy alone appear normal but under the pressure of the full bladder the ulcerations and bleeding spots appear more clearly. It can be a treatment for IC/PBS (painful bladder syndrome) but its more effective as a diagnostic tool.
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