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Post by rhodygirl on Jan 26, 2011 9:39:49 GMT -5
I'm not sure where else would be a good place to put this but I've been extensively researching Lupron since my Dr. wanted to put me on it. I have since decided not to do it, but came across this today. Apparently, a class action lawsuit filed in NY in April 2010 against the makers of Lupron. The FDA is reviewing the safety of Lupron. This article gives some details and talks to a now 21 year old girl that was prescribed one shot of lupron at 18 and it has literally ruined her life. The news channel running the story encourages people to write in about their experiences with Lupron. It may be a 2 fold benefit for those with Endo to take a moment to write. Not only will it expose potential dangers of Lupron, but it may also bring more much needed awareness and publicity for us Endo sufferers. www.ktnv.com/story/12685772/fda-reviewing-safety-of-lupron-depot
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Post by rhodygirl on Jan 26, 2011 9:47:31 GMT -5
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Post by chicagogal2 on Jan 26, 2011 10:40:16 GMT -5
Thanks for posting these articles! I'd never touch that stuff, too many awful things I have heard about it - I hope they take it off the market!
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Post by rhodygirl on Jan 26, 2011 13:16:46 GMT -5
I was actually excited to find those. At the very least they will investigate the complaints and be required to disclose the potential dangers of the drug.
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Post by Karen on Jan 26, 2011 21:27:52 GMT -5
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Post by Karen on Jan 26, 2011 21:28:24 GMT -5
(Thanks for posting these, Rhodygirl - I figured this one was worth a separate thread!)
I realize Lupron is a personal decision for a lot of women and some women find relief, but it's also important to note things like this so women are well aware of what they are getting themselves into. It'll be interesting to see what the FDA decides on this, if anything.
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Post by tarabobara17 on Jan 28, 2011 12:00:15 GMT -5
Is this turning into a class action law suit? and if so how do i jump on board?!
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Post by tarabobara17 on Jan 28, 2011 13:20:59 GMT -5
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Post by rhodygirl on Jan 29, 2011 18:06:18 GMT -5
Here is a facebook page for "Lupron Victims" which is a great place for those that have experienced side effects from Lupron to go, but also to keep updated on the status of Lupron lawsuits and FDA investigations, etc. The members of this page seem to post updates and such...which make it easier to find. I think I'll join the group just to keep in the loop. www.facebook.com/group.php?gid=87289600220&ref=ts#!/group.php?gid=87289600220&v=wall And, a petition that can be signed: www.petition2congress.com/1902/in
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Post by JC on Jan 29, 2011 18:23:48 GMT -5
Holy crap this is crazy. I will never touch the stuff unless my endo got so severe that I was facing extensive bowel surgery. Some women need it but it should really be reserved for extremely severe and aggressive forms. I hope and hope that something better will come for us. There HAS to be something better to treat this!
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Post by tarabobara17 on Feb 4, 2011 17:34:43 GMT -5
I hope something better comes about soon! I'm getting another lap done, and my new doc talked to about what if's, and one of the what if's was if i find active endo again, would you consider another 6 month round of Lupron! I immediatly said NO, unless it's so bad i can't stand it anymore, but she did offer add back therapy, which my last doc didn't i dont want lupron ever again!
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Post by KSA on Feb 4, 2011 20:59:34 GMT -5
WoW! Thanks for the articles I never used it and knew the rumors about it before this thread. Its a awful drug.
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Post by Heather on Mar 7, 2011 13:14:38 GMT -5
I'd like to know how to get on this as well. I have zero libido even after getting off of all the hormones. I'm still on Pristiq, and that could be affecting it as well, but once I come off that the only explanation is Lupron (which I took almost two years ago).
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Post by JC on Mar 7, 2011 14:04:38 GMT -5
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Post by painttheseconds on Mar 7, 2011 17:17:46 GMT -5
And my old OBGYN doesn't know why I wouldn't want to do Lupron. I think it's obvious from reading all the info in this thread. If I was still seeing her I would print some of this out to show her. The look on her face would be priceless I'm sure.
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