|
Post by JC on Jan 14, 2011 8:17:36 GMT -5
Maybe sharing a little of my story will help you. I've had migraines almost my entire life. Last year my migraine symptoms started to change. I was getting new symptoms and they were lasting a lot longer than normal. It's been 20 years of the same old migraine and then they change? I went to the ER for one that I just couldn't get rid of and the PA I saw said," if your migraine symptoms are changing then you need to follow up with a neurologist and get a brain MRI." Fast forward to now, I finally find docs who will listen to me and they do all these scans and find stuff wrong. I don't want to scare you because I don't even know what all this means yet. I have been waiting to follow up with a new neurologist and a neurosurgeon. Just a bit of advice, a chronic condition shouldn't be changing. If it's changing or getting worse then it is a reason for concern. You are right when you say your body is trying to tell you something is wrong. Maybe make it clear to them by saying, "Yes I know I have chronic headaches but the reason I am coming to you TODAY is because it is different this time! They are changing!" The need to listen to you. Please don't give up. They should at least give you the peace of mind and run some tests.
|
|
|
Post by cherry on Jan 14, 2011 10:37:47 GMT -5
Hear hear!
|
|
|
Post by Shannon Elizabeth on Jan 14, 2011 12:23:34 GMT -5
Thanks girls...Pretty...ROFL I compeltely agree.
Jenaya I hope things work out for you...you're lucky that you get someone to take you seriously. Problem is....I also have to get my mom to consent to these things since I'm under her and dad's insurance and they will be paying for any tests I have done. I've wanted a full body CT for awhile now...cuz I want one of my abdomen too. They say sometimes if the endo is pronounced enough they can see it on a CT...I don't know...I just want to see what's going on in there. And freaky enough, a lady I'm really close to all the sudden was diagnosed with Brain Cancer....we hardly had any notice at all cept a few days before.
Oh to the long journeys we all face to just get someone who listens....
|
|
|
Post by Shannon Elizabeth on Jan 14, 2011 13:05:42 GMT -5
I've noticed depo shots stick around. I've still got one from nearly 2 years ago, sat under my tummy fat. I'm glad I has tummy fat, it'd look horrible if I were skinny again. Lol Cherry what do you exactly mean by that? its funny...for me I had like the exact opposite of all the normal side effects: The best skin I've ever had, vs. bad acne Incredible weight loss, vs. weight gain Loss of appetite to almost none, vs. increased appetite It was the weirdest thing....
|
|
|
Post by JC on Jan 14, 2011 15:18:43 GMT -5
LOL lucky you! That'd be a damn miracle drug if it did that for everyone!
|
|
|
Post by Shannon Elizabeth on Jan 14, 2011 15:22:42 GMT -5
Well I still never would go on it again because it caused me more harm than good I think...but if it wouldn't have, I would have surly stayed on it because it would be amazing!
|
|
|
Post by cherry on Jan 14, 2011 15:59:03 GMT -5
Well I every time I've had GnRH I've had eating problems bordering on anorexia, plus my appetite goes along with my mental health and the weight dropped off anyway. It was terrible for me last time as I'd already had weight loss due to endo symptoms. It made my skin terrible (I never had any acne as a kid just the odd spot or hormonal rash), did nothing for the endo and I spotted = not working I'm fatter now, healthy and still have some belly chub, so I'm glad it's there cos you used to be able to see the depos under my skin, looked vile!
|
|
|
Post by Shannon Elizabeth on Jan 14, 2011 16:48:51 GMT -5
Ugh Cherry that's awful. I was down to 109 lbs and looked anorectic myself...I can't imagine how poor Keri must feel with how ill she's been and the extreme weight loss I don't know what its done, if anything, for my endo...it'll all be a wait and see when it returns. I put on some weight...5-7 lbs...after starting the endo diet and was actually able to eat again because I wasn't always feeling so sick. But then a few weeks ago I started not feeling good again and I lost everything I had just put on. Now I'm eating whatever I can just in hopes of gaining the weight back. I'm going to try and start taking a few supplements starting today. Its hard for me to stick to it, tho, because of how sick feeling I get and I don't want to touch anything. This is all so frustrating...but I'm going to try
|
|
|
Post by cherry on Jan 15, 2011 10:38:14 GMT -5
I find that reading Men's Health (the website is free and people won't look at you funny for reading a men's fitness mag) is great for adding mass in a healthy way, they're all about getting big through diet, minus the fat. I used to be really skinny and found that when I started at the gym, I gained muscle and became toned, but my body naturally seemed to put on weight too Here's a link I saw and sent to my friend with Crohn's he's skinny as a whippet www.menshealth.com/mhlists/foods_that_build_muscle/Olive_Oil_Liquid_Energy.php
|
|
|
Post by Shannon Elizabeth on Jan 15, 2011 10:44:04 GMT -5
Cool thanks
|
|
|
Post by cherry on Feb 4, 2011 6:20:05 GMT -5
How are you getting on with these symptoms Shannon, are you keeping a diary?
|
|