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Post by claireboe on Nov 8, 2010 17:10:58 GMT -5
Hi ladies,
I haven't posted in a very long time. My daughter is 16, and was diagnosed with endo via laparoscopy in July of 2009. She is in almost constant pain. Her life has been completely altered. She went from dancing 12 hours or more per week, to nothing.
The GYN has her on bc pills, without a break, to control the endo. I don't see that it helps that much. He wants her to take Lupron, but we both said, "HECK NO!"
My question is basically this: Has anyone suffered from excessive underarm sweating, which you think might be related to the endo? I think it's a hormonal issue.
I am so very frustrated with getting her treated. She has been to so many specialist because of various physical problems, and I really think most if it is endo related. Her latest problem is nausea after each time she eats. Every.single.time she eats, she feel like she wants to throw up. Endoscopy showed NOTHING. So frustrated.
Thanks for any input.
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Post by hellsbells on Nov 8, 2010 17:15:04 GMT -5
I've had heavy sweating at times, and I agree that it's likely to be hormonal. Nausea could be aswell. Keep plugging away and give her our best.
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Post by pretty on Nov 8, 2010 18:29:35 GMT -5
I have been wanting to address this issue for a while. I was put on BCP at age 15, for hard heavy periods. Although I ended up with chronic, severe depression for the ensuing 20 years until going off BCP at age 32, I know that the BCP did prevent severe endo for that entire time. It is only in the 4-5 years since going OFF BCP that my endo grew out of control. So yes it is a valid treatment, but it comes with it's own side effects. For me they were weight gain, severe depression, and hormonal issues. I did not experience heavy sweating but if that's the worst of her symptoms, she's doing better than I was. I would suggest to you that you immediatly research the endo diet and have your daughter avoid beef, dairy, soy, and wheat..... just my 2 cents. I feel that if during the time I was on BCP I had followed the endo diet, I would have further limited the excess estrogens that are believed to drive endo. Anyhow best of luck and THANK YOU for advocating for your daughter and doing your best to learn about this horrid disease. She will thank you as well.... best, Pretty
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Post by sunshine78 on Nov 8, 2010 18:51:21 GMT -5
I've had excessive underarm sweating for 17 years. It just started happening, one day, and, well... hasn't stopped, I'm afraid. I'm not sure if it's hormonal, or not, in my case.
Botox has been used to shut down the sweat glands, and I think it's supposed to last for at least a couple of months. You just have to be prepared for compensation in other areas of the body, since the arm pits can't sweat, anymore. I've used Drysol, before - it's a prescription you can ask a doctor for. I just got tired of having to find a way to keep saran wrap on my armpits, at night, after putting it on, so I've adapted my wardrobe, thermostat, and attire to avoid sweating too much. Also, I always carry a stick of deodorant with me - the Dove kind that's white, but goes on clear. The trial sizes are perfect for carrying around, everywhere.
Hope that helps for the excessive sweating.
As for the nausea, it might be the actual birth control (don't know how long she's been on it) that's making her sick. That shouldn't last too much longer, but definitely check the prescription info for the info on the side effects, and how long they're supposed to last.
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Post by cherry on Nov 8, 2010 19:16:48 GMT -5
With the persistent food-related nausea I wanted to have specific input, as my sister suffered this for a while. This time last year and over Christmas was pretty worrying cos she would go a funny shade, get dizzy and nauseous. One cause they found for her nausea was that her sphincter or something wasn't closing properly, her endoscopy showed that she had bile in her stomach, and a fair a amount too considering she hadn't eaten for about 18 hours at the time of the procedure. It was escaping up into her stomach causing a lot of upset. For this they told her to eat regular small meals, never let herself feel hungry. She was still getting sick though, they tested her for inner ear problems etc. It turns out that she has chronic silent migraines. Silent as in no head pain, chronic as in, every time she eats. She has PCOS and doesn't pay much heed to my advice on her diet and insulin resistance so I wouldn't be surprised if it's all connected. As for the excessive sweating, I never thought of it connected to the endo but when I think back it's been going on for a good 5 years. I thought it was connected to stress factors I had and have had since, but it was the time that my endo started to affect me. You've given me something to think about there. Considering the hormone problems connected, it's entirely possible. I have been sitting down and had sweat dribble down my arm for no apparent reason. I have used triple dry which was effective, the roll on is best. Caffeine is definitely one to avoid. I've greatly improved my diet and lately since I drink a lot of water these days, I see hardly any excessive sweating. I would look at your daughter's diet and see what improvements can be made, it won't cure anything but you'll see her more comfortable with endo, the sweating, the nausea. Once you feel better the biggest sacrifices seem worthwhile. I don't miss lemonade much.
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Post by Karen on Nov 8, 2010 19:34:52 GMT -5
Hmm, as for the excessive sweating, have they checked her cortisol levels at all? When your body is under a lot of physical and emotional stress, cortisol levels can be way off, and since your adrenal glands (which produce cortisol) talk to the part of your brain that controls sweating, perhaps that might be something to look into? Could be a stretch, though!
Is she on any other meds, pain pills, etc? I agree with the other girls - diet changes can have a significant impact on pain and symptoms of endo. For me, it was an absolute godsend and would suggest it to anyone suffering, especially with daily pain.
Has she been on the same BC the entire time, or have they tried other BC pills? If you're not getting anywhere with current treatment, I'd always highly recommend looking into alternative treatments if you haven't already.
Good luck, and feel free to look around/ask questions for more info!
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