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Post by lizzylou on Oct 6, 2010 19:45:35 GMT -5
Not sure if this is in the right spot or not.
It's the 1 year anniversary of my surgery/diagnosis of endo (and I joined this board Oct 12th last year). I went into surgery with the dr assuring me they won't find anything. I woke up from surgery by my dr telling me she had to remove my left fallopian tube and ovary, she found endo, and put a hole in my colon. She left before I knew what she said and still groggy i didnt know what in the heck she meant, and I was left confused and scared until she came back the next morning.
The one year anniversary makes me really emotional. When i realized it had been a year, it made me cry. I dont know if I'm sad, I just know I'm emotional. I just wanted to share...
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Post by Shannon Elizabeth on Oct 6, 2010 20:12:38 GMT -5
Awww Lizzy, I'm almost at my one year too (Nov 17th) but I knew I had endo before I had the surgery...I feel like I've known it all along. But it is emotional and draining to think about...endo changes your life so much. I get really depressed when I think about it sometimes. So share away, and don't be ashamed to get upset...endo isn't fair.
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Post by lizzylou on Oct 6, 2010 20:37:19 GMT -5
I knew I had it before too. I actually read the main website here and realized what i had, printed it out and took it to the dr. I had all the symptoms but she told me it "didn't make sense" that it was endo. I dunno...apparently all the symptoms just doesnt sound like you MIGHT have something. I pushed for surgery, she basically did it me to make feel better and assure me I didn't have anything wrong and it was all "normal". After surgery (well the next day, and every appointment sense), she has been completely different because i had everything spot on. I have so many pelvic exams throught the previous 2 years, honestly i lost complete track, probably one every 2 months (because of problems), and they ALL missed the grapefruit ovary. SERIOUS! The next time you go to the store pick up a grapefruit and put it by your tummy. They kept feeling my ovaries and missed that!!! 3 different dr's!!! ugh...ridiculous.
I still have pain but it's not nearly as bad, so i am grateful for that. It's just....emotional for some reason.
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Post by Karen on Oct 6, 2010 20:40:45 GMT -5
For me, it was really hard when I hit the one-year-since-my-symptoms-were-awful date. October 4. I remember plain as day, as I went from feeling pretty normal to pretty sh!tty almost instantly. Amazingly, the two year anniversary passed without a notice, though I remembered the next day.
So, yeah, I get it. It sucks. But it just means that you've got one year under your belt, one year of knowledge, one year of support, and one year of answers!
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Post by lizzylou on Oct 6, 2010 20:47:45 GMT -5
I'm just suprised at how emotional I was when I realized the 1-year mark was upon me.
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Post by cherry on Oct 7, 2010 8:34:29 GMT -5
I was the same. I described my journey as a grieving process and though I was told by another member that I was OTT at the time, I think in hindsight it is very true. You have to grieve because if it's not the endo that changes your day to day life, it's the hormones, or the painkillers. You have to go through the stages of accepting that some choices are taken away from you. But awareness is your weapon, the only way is up! Happy 1 year of knowledge equalling power!
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Post by hellsbells on Oct 9, 2010 7:08:12 GMT -5
Hey, mine's coming up in December, just before Christmas. I hadn't really thought about an anniversary of the date as it's something I live with every day, but when I think about it, yeah I probably will feel a bit emotional.
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Post by lizzylou on Oct 9, 2010 10:12:55 GMT -5
What Cherry said is really spot on, it's a grieving process. at first I was numb to the whole thing. Then I was in a bit of denial of what a diagnosis really meant for my life from here on forward. For a while I was angry. It was unfair, I was robbed, someone should have noticed stuff sooner, I should have been more forceful sooner, etc, etc. and now really I've come to accept it as the reality of life. Knowledge is power.
Now that I look back over the last year (when i'm not emotional about it) I can see how much I have grown and learned, and how much I still have to learn and grow. I'm grateful for the knowledge on this board.
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Post by JC on Oct 11, 2010 7:11:50 GMT -5
Wow you described it perfectly. I felt the same way. Isn't it sad that we have to go through so much to get help?
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Post by KSA on Oct 17, 2010 11:33:58 GMT -5
Its a everyday fight but the year mark for my hyster is coming up and to think that I was wishing it all away with that surgery and am still dealing with it sucks. Like LizzyLou said we grown and learn. I am so much more active in conversations with all of my doctors now and research more medical stuff then I ever have in my life. I have woman asking me at work what to eat and that feels good. The knowledge I have gained about health and my body bc of endo is a blessing. I would rather not have endo but if I can help someone else then its worth it. This board and the support and friendship I have gotten on here makes the saying "Everything happens for a reason" so true.
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