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Post by omaklackey on Jun 16, 2011 17:53:53 GMT -5
I just looked up sucralfate, which is the next drug the GI doctor wants to try.
1.sucralfate binds to the surface of ulcers (attaching to exposed proteins) and coats the ulcer, thus protecting the ulcer surface to some extent from further injury by acid and pepsin;
2.sucralfate directly inhibits pepsin (an enzyme that breaks apart proteins) in the presence of stomach acid;
3.sucralfate binds bile salts coming from the liver via the bile thus protecting the stomach lining from injury caused by the bile acids;
4.sucralfate may increase prostaglandin production, and prostaglandins are known to protect the lining of the stomach. Sucralfate was approved by the FDA in 1981.
So am I wrong in thinking with my endometriosis number 4 is a HUGELY bad idea??
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Post by omaklackey on Jun 21, 2011 20:52:01 GMT -5
So the doctors office called today. I think they are starting to understand this has gone on long enough without answers. They called last Thursday to say that the doctor was sick but she had called Dr. Mosbrucker. That's the good news. She called back and asked to see my chart which she know has. That's good news. She no longer takes my insurance so I can't go see her even if I wanted to, and that's the BAD news. She is going to look over the chart and suggest some testing/treatment options. (Which made my jaw drop, a doctor who actually wants to help a patient, even though she won't see a penny from it!!) So yes Pretty!! Dr. Mosbrucker is very cool. To bad I won't be able to actually get in with her. I asked about the C-Reactive protein test and the doctor refused to do it because: "it will only show unspecific inflammation, and won't do anything toward a diagnosis". I know THAT! BUT it would give me one stinking piece of paper that says "yes, there is something wrong with me" to show the doctors, especially my GI doctor. So I asked pretty, pretty please and explained why to the RN and asked her if she understood why I was asking for the test. She said she did and would ask my doctor again. So that's the stand still for now. I'm waiting to hear from Dr. Mosbrucker through my doctor to see if she had any suggestions.
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Post by JC on Jun 22, 2011 5:13:20 GMT -5
Wow Dr. Mosbrucker is wonderful! That's awesome that she'll offer some help. I'm really sad that you can't see her though. Stupid insurance. I hope this leads to something helpful. I'm glad you're not giving up. It's tough to fight this fight but I think it'll lead to something eventually. Hang in there Karla!
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Post by pretty on Jun 22, 2011 12:32:59 GMT -5
Karla you are an inspiration. Hang in there and PLEASE consider doing the naturopath when you can. I know it's expensive. I considered taking your posts to MY NP to see if he had any ideas.... HUGS and big giant encouragement girl! ps and yeah, Dr M rocks. I just adore her. hope she can help you at least get some progress made!
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Post by omaklackey on Jun 28, 2011 13:48:12 GMT -5
Dr. Mosbruckers office called today. They haven't gotten all the records so I have been trying to gather them up for her. The receptionist said that even though she doesn't take my insurance for cases like mine she makes exceptions. She just wants to have an appointment though. She won't order any more tests locally to get some answers. Her earliest appointment is august. If her suggestion was surgery that is to late to do anything anyways. I'm assuming since she is a surgeon that will be her suggestion but maybe I'm wrong. Its a lot of money to go talk to someone who's going to offer something I can't do anyways. I start school in September and I will be full time for the next two years including summer quarter. So part of me says that I would finally have a doctor listen to me and that might be worth the drive and the cost to get there, but will she order the tests that day while I'm there or...? I want to make the appointment. I just want someone to give a D*mn really, including my husband. BUT this could be totally unrelated endo wise and is all stomach related so I'm really angry with my GI doctor who has refused to return my calls. I believe because this has taken so long that my GI doctor, my local doctor and everyone has completely forgotten the reason I came in. Its not some vague unsubstantiated pain that I "can't prove'. My stomach blows up like a freakin rock every time I eat anything. My sister tells me "do you need to know whats wrong, maybe you should just give up". Ok, so lets live like this for the rest of my life, in Pain, angry, and bloated. Sounds like a great plan to me! Of course she is the idiot who took five years to get her gall bladder pain diagnosed because she self diagnosed with fibormyalgia, turned out her gall bladder was rotten and had seven large stones in it and she spent 10 days in the hospital septic because of it. So taking medical advice from her not necessarily the best plan. So here's a thought... How about someone run some damn scanning tests that could show what's going on. The reason science has worked so hard on getting scans etc to show the inside of the body is because the outside doesn't tell us much about the inside. Stupid f*cking doctors! I'm so unbelievably discouraged, tired and frustrated by the lack of tests that one single doctor has run. They have even denied the c-reactive protein test that would at least show that there is something wrong with my body and no its not all in my freakin head which is what I think the GI doctor is convinced off. I'd like to stick a freakin red hot poker up that GI doctor's ass and hand him an anti psychotic med and see if it helps the pain. I can't believe they are trying to send me to a specialist a six hour drive away without running a single normal test that should have been run a year and a half ago when I came in the first time. Part of me wants to say "well dr. mosbrucker is willing to see you, so its a sign your supposed to go there" and I think I will figure out how to get there but in the meantime I'm really angry that I have to drive that far to get a CT, an MRI, an Endoscopy, a small bowel series xray, the list goes on, and on, and on...
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Post by JC on Jun 28, 2011 15:42:41 GMT -5
WOw Karla. What the hell is wrong with these people?? I think seeing Dr. Mosbrucker is a good idea but I don't blame you for being discouraged by the 6 hour trip. That's really sad that you can't get help in your area. Have you ever considered getting a coworker doctor to order a CT scan for you? You probably can't get an MRI but maybe they'll order a CT scan in the ER? I remember a lot of people getting favors from doctors we work with. Might be an option I guess I with your doctors would do it though!! If you feel terrible, please don't give up. You sister doesn't know what this is like to be treated like this. She doesn't understand. Keep us updated on what you decide to do. I hope things work out somehow!
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Post by Karen on Jun 28, 2011 19:50:02 GMT -5
I think we can all relate on some scale or another as to how frustrating that is. Getting a doctor that will listen and help are two very important things that we need, but qualities that most doctors appear to lack. If you're considering spending the money on a doctor hours and hours away, perhaps you can reconsider the naturopath. Tell Tony he has two options - Dr. M or a naturopath. Given the comparison, here's hoping he'd soften up to the idea of a naturopath?
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Post by omaklackey on Jun 28, 2011 21:34:37 GMT -5
Don't think I haven't thought of that Karen I sent my hubby to talk to one of the ER docs and ask his opinion and to find out if there is a protocol that my doctor should have been following for abdominal pain. At least in this pathetic back end of no where there apparently isn't. The hubby might sneak in and ask our favorite ER doc if he could do something, ie testing for us but its doubtful. It can't believe they are sending me this far away and they haven't run a single test they should have done. Its just frustrating and I've spent most of the day on the edge of bawling. I haven't had a lot of time to talk to the hubby today either since I met him at work and all hell broke loose so he had to go. (granted I think he was glad to not have to answer me)
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Post by omaklackey on Jul 4, 2011 13:31:49 GMT -5
So last week was hell week. I though I had gotten a UTI with kidney infection and headed to the doctor. They took a UA and gave me a "why didn't you come sooner" speech. Really? With my bladder issues UTI's are more frequent when I'm not really careful about hydration and almost impossible to spot. I explained that to her. Told her what my Urologist had said about my bladder not emptying fully so it makes me susceptible to kidney infections. We both thought there was a chance it was a stone but she did an xray which was negative, a UA which didn't reflex to a culture and a prescription for Vicoden later, I'm in a lot more pain and no answers. I did finish the round of antibiotics just in case. My back feels like I've swallowed razor blades and they are stuck in my kidneys. It may be the stomach causing this new and great pain but I don't know. I will however be camped on my docs office on Tuesday. I went back Friday because they told me to come back if it didn't change. They called and said 2nd UA was still negative. I asked about if there were other ways to see a kidney stone? (still hoping for that CT scan I need regardless) They sent me for a chest xray? I guess she was looking for pneumonia? The on call doctor was supposed to call me but didn't? Should I have called him? Its a holiday weekend so I doubt anyone is answering the phone. I have a party today that I have been looking forward to all year. I"m going if it kills me. I told Tony if it does kill me to make sure and sue my doctor, especially the GI doctor and put my kids through college. My youngest is pretty freakin smart and would be a great doctor. She can find the cure for endometriosis!! ;D Looking on the bright side inspite of everything... ROFL The thing that made me the most unhappy is having to take vicoden. The pain is unmanageable most of the time that I'm upright and I missed a day of work because of it. I can't tolerate that! I will work, I will party and I will figure this out. This is ridiculous!
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Post by hannahjex on Jul 4, 2011 13:46:23 GMT -5
Sorry you're feeling so crappy. Sounds awful. It sucks the way your body always picks the worst possible time to start malfunctioning! Keep up that positive spirit. I really hope they figure it out and can help you Tuesday. Hope you feel better soon and you get to enjoy the party.
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Post by JC on Jul 5, 2011 8:04:55 GMT -5
Hey hope you made it to the party! I wonder what is causing all that pain! I don't get why they won't do the CT scan. Why won't they budge? It doesn't make any sense. I wish you had more options for doctors out there.
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Post by hellsbells on Jul 5, 2011 14:12:00 GMT -5
Ah Karla sorry you're getting such a runaround! Hang in there doll x
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Post by pretty on Jul 6, 2011 17:31:39 GMT -5
Hey Karla, I just want you to know, I can't afford it either, but I'm about to schedule my 2nd trip from Homer to Gig Harbor to see Dr. M..... it's a 4 hour drive, a 6 hour flight, and a one hour drive, plus hotel for however long I'm there, pl;us rental car, plus all the medical costs, plus food and drugs! and then repeat to go home. Just letting you know, I understand about the cost and all, but personally I swear by this doctor, and if she tells me something, I trust her. Just perspective..... sorry everything sucks so bad. In my opinion you are being treated very poorly and I am sorry that is the case. Good luck hon!
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Post by omaklackey on Jul 6, 2011 20:00:15 GMT -5
I'm sorry you have to drive/fly etc. but you know what's wrong with you. I don't. There is no reason to go to her. I dont' have any reproductive organs for her to do surgery on. What I really need is another GI doctor and my doctor won't give me another referral. I have had a rotten, rotten day today. I dont' want to take out my frustration on the few people who are listening to me. My hubby and I's check this week didn't cover the groceries and the backpay he was owed they told him they aren't going to pay. They are cheating him out of it. I had to leave work early last night because the pain got so bad I couldn't do my job. My trying to stay positive is taking a right hard kick in the ass because if I can't work I have kind of lost the fight to this disease. There is no where left to go at this point in time. Travelling anywhere is pretty pointless until someone runs some tests that dont come back "normal"
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Post by pretty on Jul 7, 2011 11:27:24 GMT -5
I iknow that. I'm so sorry it's so awful Karla! If it's not one thing it's another and you're just trying to vent, sorry if my post made it worse. HUGS and hope it gets better, and fast. You're right I do know what's wrong with me. I'm glad about that but no matter what it sucks to travel not knowing if it will solve the problem which is what I was sharing with you... didn't really say it well I guess... hang in there.
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