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Post by omaklackey on Oct 7, 2009 12:44:34 GMT -5
okay, If one more f**ked up person tells me that 'I'm still healing, the pain should settle down in a few weeks." I'm going to scream!!! ;D ARGH! Even my girlfriend who I was texting said "well you are still healing" My incision is completly healed. Nothing about the 'scar' hurts. My old pain from before the surgery... has not changed. Shooting, stabbing, pulling, achy all the time. My bowels are giving me fits and my bladder won't stop aching and giving me the constant urge to pee. I'm up so many times a night to sit on the toilet and wait for nothing to come or to much to come. It can't seem to make up its mind. I'm doing as much walking as I can and It HURTS!! My endo is still tied in to those ligaments and walking is torture. I refuse to give up. I refuse to take anything for it! I refuse to accept that there isn't something better for me! I found a new doctor finally who does da vinci surgery. (would have been nice to know... ) in Spokane. He isn't exactely an 'expert' on endo but I think I will go to him anyways and at least 'chat' with him about what some options are. I'm still just stunned at how bad in only 4 months the endo had gotten! ItS FREAKIN incredible!!!
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Post by hellsbells on Oct 7, 2009 15:19:49 GMT -5
I'm so sorry you've been through all this without getting the relief you deserve. You're being very strong. Big hugz xxx
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Post by omaklackey on Oct 8, 2009 16:27:45 GMT -5
I'm feeling exceptionally low today. I couldn't begin to tell you why but my earlier burst of energy this last week to get stuff done isn't here this week. I'm hurting and finding myself wanting to stay in bed for the rest of the day! ooh well... still waiting for my body to heal I guess I can spend one day in bed not doing much!
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Post by hellsbells on Oct 9, 2009 11:12:24 GMT -5
You can soend as many days as you like in bed until you feel up to whatever else you feel the need to do! Your body has been through a lot, be good to yourself xx
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Post by omaklackey on Oct 9, 2009 11:38:12 GMT -5
Ha ha, Athereal that's what my mom said and then my sister and aunt followed up with a 'listen to your mother speech'. It just seemed like a set back since I had gotten my kids back doing there school and was feeling pretty good. I guess a couple days in bed are warranted. LOL
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Post by omaklackey on Oct 9, 2009 12:58:26 GMT -5
apparently I can't stay in bed. My hubby who has been pretty good about all this is being an A** today. Grr
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Post by hellsbells on Oct 10, 2009 5:30:57 GMT -5
Tell him the sooner you feel better the sooner he gets his wicked way again..........:-)
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Post by Karen on Oct 10, 2009 6:26:56 GMT -5
I found that after my lap, a few friends and family members kind of backlashed at me a bit. They were hoping (and expecting) that the surgery would fix things, too, and bring my old self back. When that didn't happen, they were upset, too, and some of them reacted in ways that really surprised me. I think it's fair that your husband may be frustrated and unknowingly act out on it, but it certainly doesn't excuse him for being an a**... I know whatever it is will pass based on how good of a team you two sound like, but hugs anyway, kiddo!
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Post by omaklackey on Oct 10, 2009 10:48:00 GMT -5
Thanks Karen... you make very good sense. I know he was 'acting out' and I was fortunetly able to bit my tongue. (which for me is s wonder) I kept telling, pleading, begging, asking him to research some of the endo so he knew what was going on and he said he would but hasn't. I tried to tell him that the hyster is a gamble, that I may be going back for more surgery if I can find a skilled surgeon. I'm so irritated that he isn't listening. You can see his eyes gloss over and i started doing what I do to the kids and ask him a question to see if he heard me. LOL Today I'm staying home from the soccor game and that's all we had going on today so i can stay in bed. I'm burning up and I don't know why and of course its the weekend so I can't just call a doctor and see what he says. ARGH!
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Post by JC on Oct 10, 2009 16:04:44 GMT -5
I understand the husband thing. My husband is so NOT understanding about my endo stuff. He'll get these moments where he does seem to be caring but they're rare. I have come to believe that he just doesn't know how to deal with it and thinks that since I've seen a doctor and had surgery that it should all be fixed and ok. This type of disease is dynamic and unpredictable and people don't know how to deal with it. I hope that things get better for you. I think it's awful that you're not getting any relief. Hey, isn't there a time period when you have to let the estrogen levels in your body drop after a hysterectomy?
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Post by omaklackey on Oct 10, 2009 16:05:54 GMT -5
My estrogen level dropped three days after the surgery. I've been having hot flashes since then.
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Post by JC on Oct 12, 2009 8:27:00 GMT -5
That's a huge difference in 3 days. I see how that could cause you so many symptoms. Rapidly fluctuating hormones is NOT fun. Do you get to see the urologist today??
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Post by omaklackey on Oct 12, 2009 11:43:37 GMT -5
No, my hubby works the next two days and we are out of vacation time. (paramedic, 72 hour shifts) He doesn't want me to see the urologist either since everything is still so swollen he thinks it won't do any good. I don't know what to think but I'm at least going to call my gyn. and see what he says. Grr.
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Post by JC on Oct 15, 2009 9:54:03 GMT -5
I think what's important to recognize the differences between surgical menopause and natural menopause. Natural menopause takes YEARS from start to finish whereas surgical menopause immediately sends you through years of transition all over a short period of time. Your symptoms are going to be much more severe and frequent unfortunately. I really don't know how endo plays into all of that but I'm guessing it definitely doesn't help the situation and probably makes it worse. But hopefully once the hormones from having a rapid menopause even off, some of these symptoms will start to lighten up. fingers crossed!
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Post by omaklackey on Oct 15, 2009 17:22:20 GMT -5
the way endo 'plays' into all this is most women who have surgical menopause use HRT's. Lassy74 went on them at the risk of stiring up the endo. I won't do that because my endo seems to grow without throwing 'fuel' on the fire. So I'm going to be getting all the instant surgical crap and not be able to help myself.
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