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Post by roobee on Dec 12, 2008 16:57:31 GMT -5
Please help!!! I feel so low all the time and the stupidest things are setting me off and making me act irrationally. I'm really struggling at work as all my so called friends there are saying all my symptoms are fake and in my head. I just don't know how much more I can deal with without screaming . Any advice would be great !! X
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Post by jjuls22 on Dec 13, 2008 11:25:51 GMT -5
ahhh the wonderful world of depression. First off, your so called friends, aren't really good friends. secondly, endo is a difficult thing to process and over come. I would suggest spending atleast an hour a day doing something you enjoy. Also, therapy, anti-depressants (even st. johns wart) mediatation, and yoga can also help to calm the mind and bring you back to focus. getting through these times are tough, find some people whom you can depend on. start a journal if that seems to be impossible at this moment. Also know that you are NOT alone!!! I'm speaking from experience here, i also know what its like to feel that your world is falling apart around you... please hang in there!!
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Post by roobee on Dec 13, 2008 14:49:56 GMT -5
thanks that was much appreciated !!! I have a great family and some really good friends not to mention a wonderful boyfriend who's so supportive. It's mainly the people at work who seem to think I'm making it all up which really gets to you after a while. I'm still also in the process of getting diagnosed ( as I thought it was either crohns or severe ibs) I hadn't even contemplated that it could be endo and didn't really know much about it. It's all just a bit scary at the moment, I have a scan and an extra consultation at the hospital on Tuesday so I'll just have to wait and see. It's just trying to see light at the tunnel isn't always easy is it ? Xxxx
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Post by Kitty on Mar 31, 2009 14:55:42 GMT -5
Roobee,
I totally understand what your doing through. I recently became depressed because of my endo issues, it can be really overwhelming for someone with endo. Especially with those who don't have endo they cant really understand the full extent one goes through.
A book i just picked up that have helped A LOT is "Living well with Endometriosis: what you doctor doesnt tell you that you need to know." Its really good and it can help you understand whats going on with your body and help with a better understanding of the disease.
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Post by bailersmom on Apr 6, 2009 10:49:15 GMT -5
Before I had my hysterectomy and even since, I felt like I was mental. I was so sick all the time, nauseated. I was starting to think I was crazy. Can't imagine what my friends thought. I had an AMAZING specialist, Dr. Prough from Tulsa, who kindly and FIRMLY told me this is NOT normal. Your body is telling you something is wrong! Others DON'T know what you are going through. I am on Cymbalta, and sometimes I still get very down. I am a pastor's wife, and I miss church often because I am so sick. My husband is patient and understanding, but I'm not so sure others understand. Endo attacks the immune system. Your body is constantly fighting it and can't take anything else. I'm just now realizing all this stuff myself. You are NOT crazy. No matter what you tell those who don't have it, some just simply can't get it until something like that happens to them. I know its frustrating. The pressure of what others think and/or say, just adds to everything else you are going through. Definitely depression meds. I'm going back to my doctor soon to see if I can increase in something. Going through a very down period myself. PRAYING for you!
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Post by chloed on Dec 21, 2009 11:30:44 GMT -5
hello there,needing someone to talk to!!im 22 and have been suffering with symptoms for about 10 years they have only just discovered that i have endo and a cyst on my right ovary the only thing they gave me was pain killers which arent really helping i am going back to the gyno tomorrow to see what else they can do i am thinking maybe the surgery although im terrified of it..the pain is on my right side and is CONSTANT!sometimes lower back and even in the legs..i have weird symptoms such as tingling left leg head pains nausea metallic taste etc..but i guess this is all part of it and im anxious as well.. i live in portugal and find it very hard to communicate with the doctors here and get anywhere..well its taken ten years to finally get abit of an answer but im not sure where to go as far as treatment is concerned...please help...thank u x
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Post by hellsbells on Dec 21, 2009 12:42:36 GMT -5
Hang on in there Chloe, you have to persevere and get sorted. You're not alone, most women struggle to get a diagnosis (including myself, I have my first lap tomorrow and am a little anxious!). Find a friend/relative to talk to and get yourself a big hug. Try finding a comfortable position that may take the edge off the pain. Ibuprofen is another recommendation :-). Take care and don't give up hope xx
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Post by Karen on Dec 21, 2009 21:13:22 GMT -5
Choed - We'll certainly available to offer support and info. Consider posting an introduction post on the intro board and perhaps we can steer you to the appropriate place for more info!
The surgery (lap) is the only true way to diagnose endo, so if your doctors are able to rule out other possible causes of the pain, they may have to take a look inside and see what's going on. Until your docs get to the bottom of things, please be persistent and do whatever you can to get them to listen to you. There's nothing worse than feeling so sick and feeling like no one is doing anything about it. Insist that they take action!
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Post by tweety on Jan 12, 2010 22:55:01 GMT -5
hello there,needing someone to talk to!!im 22 and have been suffering with symptoms for about 10 years they have only just discovered that i have endo and a cyst on my right ovary the only thing they gave me was pain killers which arent really helping i am going back to the gyno tomorrow to see what else they can do i am thinking maybe the surgery although im terrified of it..the pain is on my right side and is CONSTANT!sometimes lower back and even in the legs..i have weird symptoms such as tingling left leg head pains nausea metallic taste etc..but i guess this is all part of it and im anxious as well.. i live in portugal and find it very hard to communicate with the doctors here and get anywhere..well its taken ten years to finally get abit of an answer but im not sure where to go as far as treatment is concerned...please help...thank u x chloed, seems we have similar story, i've experience symptoms of endo since i was 17 but most of the people i talked to before says the pain is just normal it's only after 12 years when the gyne found out i had endo and it's just accidentally seen after they removed my appendix,, they removed a huge cyst on my right ovary and it recurred after 3 mos, right now im doing everything to have a pain free period im also finding a better gyne who understands what im going through coz here in the Philippines it's also hard to seek help to doctors they always advise lupron injections. I dont like that treatment ive tried it for 3 mos and the effects are horrible. I hope you can also find good doctors to help you cope with endo, try modifying your diet.. i've been on wheat /soy free vegan diet since April last year and every month my period is getting better and lesser pain on my pelvic.
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Post by Karen on Jan 13, 2010 7:44:12 GMT -5
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Post by hellsbells on Jan 13, 2010 17:51:31 GMT -5
Karen you beat me to it. Tweety I would PM novelista. Good luck xx
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Post by texasgirl on Jan 17, 2010 22:08:51 GMT -5
I was hoping someone could help me with this. I stopped taking the pill in August. And I've noticed over the past 3-4 months that I think I may have some depression issues. I don't know if it's related to no pill, I have definitely gone through some rough times with endo. But today was pretty bad. I notice it's when I have pain that I'm just plain mad, anxious, want to cry all the time. I feel bad for my behavior. I try to talk to my husband about it and he is so understanding but just can't simply understand and tries to help me understand that I'm just having a bad day.
I am really starting to think I may need some help or some medication or something. Does this happen to anyone else? I've been living with endo for about 5 years now, but it just seems like now it's worse than ever.
One of my friends told me to try St. John's Wort. Has anyone else tried this?
Thanks!
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Post by Karen on Jan 18, 2010 7:35:44 GMT -5
When the pain flares up, I think it's only normal to have changes in your mood. Some don't recognize it in themselves, but it's good that you have because now you can do something about it!
I know everyone is different, but I found a therapist to be of great help dealing with all of this. She said I had situational depression. She helped give me perspective on things, support and encourage me to find other treatment options so I felt better, and was someone to talk to when I feel like all my friends are sick of hearing about it. For me, it was the best move. Others find anti-depressants are the way to go, so a talk with your doc may be in order. Then there's the natural approach. I haven't tried St. John's wort, but as long as you research the correct dosing and possible medical interactions, it might be worth a shot. Atherhel just posted a link about magnesium supplements that might be worth looking into, too. PM me if you can't find the link.
Let us know what you decide to do!
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Post by tweety on Jan 19, 2010 0:25:11 GMT -5
karen thanks for the link, im gonna send her PM.. i have to find a really good ob gyne who will give better options or advise..
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