manda
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Posts: 5
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Post by manda on Feb 22, 2007 11:32:36 GMT -5
I meet a lot of symptoms of endo, but I was wondering if anyone else ever had symptoms come and go. Ex: I will have bouts of frequent urination, but it isn't constant. It's usually around my period. I know this is a symptom, but I didn't know if it was normal for it to come and go. Also for the past week I've actually been relatively ok pain-wise...but I've also been wearing loose clothing. I wore a normal-fitting pair of jeans yesterday and the pain came back. I had a week relatively pain free a couple months ago too. I didn't know if this was normal or not either.
I also was wondering if anyone else had any nodes/nodules in their body. I have one-it's in the middle of my body at my pubic hair line, but they didn't find anything in the pelvic ultrasound. In fact, it doesn't feel like it's quite that internal, though it's pretty deep in the tissue. You can't tell it's there just by looking at it. But it's really tender. When I found it I was pressing around trying to figure out what it was and I was in horrible pain for the next few days. So far the docs don't seem to know what it is but then again, they don't seem to know anything about anything right now. Does anyone else have this?
Sorry for all the questions but the past 7 months I have realized that I have to self diagnose or else I won't get anywhere. Pretty much what I have to do is try to figure out possibilities for my problem, then bug the docs to death to look into it. But I don't want to try to convince my doc I need a lap if I don't really need it. I'm just desperate for a definite diagnosis and hopefully, a relief!
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Post by cherry on Feb 22, 2007 13:28:09 GMT -5
Hiya manda, a lot of people do get the symptoms recurring rather than just constantly, and especially around periods cos that's when these bloomin cells come alive! I think thats how some people get fobbed off with the 'it's just your period' explanation. As for that node, if your doc doesn't know, and it's causing you so much pain, ask to be referred to a specialist to be on the safe side. Good luck xx
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Post by kb on Feb 22, 2007 21:06:22 GMT -5
I agree, see a specialist.
Everyone's symptoms vary, mine are constant, just worse around my period and ovulation, but dont look for them to be exactly the same as others, although likely there will be plenty others out there with similar. Ive never had nodules though to answer your question.
The golden rule is, if its not normal there might be something wrong, get it looked at. Dont let those stupid doctors fob you off, you know your own body, you know if something's wrong, and it clearly sounds as if there is.
I understand your comment about self diagnosis, it gets that way. I get sick of doctors telling me what they think, i know my own body and i couldnt give a bugger what they think, as long as i get better. So far though, my only improvement has been through my own efforts.
But its always worth seeing a specialist if your worried, never take one opinion as gospel, doctors are human, they make mistakes and they miss things.
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Post by ouchy on Feb 23, 2007 0:32:48 GMT -5
Yup. Specialist....and you might request that someone biopsy that lump!
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Post by erzulie on Feb 23, 2007 11:34:15 GMT -5
I have the frequent urination thing on and off. Some days it's like I have to go constantly, and I go a lot every time, even though I'm not drinking any more water than usual. It's frustrating. I don't have a weird lump, but if I did, I wouldn't rest until somebody had figured out what it was.
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Post by camille on Feb 23, 2007 14:11:23 GMT -5
I have all sorts of little nodes/nodules in my body. I have one below my belly button, one on the back of my neck, and they have come and gone in various places in my body. They have never done any harm, they are just cysts. They aren't on the surface, but they aren't very deep. My mother has them as does my dad. My sister and I have a similar one on our tail bones. She had hers removed because it changed. Mine have never changed. I always tell my doctors, and they have never been alarmed by them. They can be the result of an injury (like adhesions) or its just the way my body grows. Mine do not hurt though. The tail bone one bothers me sometimes if I am sitting for a long time on a hard surface. My sister's did hurt, so she had hers checked more often. The procedure to remove it was not a big deal.
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manda
New Member
Posts: 5
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Post by manda on Feb 24, 2007 16:52:45 GMT -5
That makes me feel a lot better Camille! I've started worrying myself about everything. I feel like I'm losing my mind. I'm so worried I have some rare cancer or some freak disease that no one has discovered yet. I know it's extreme but I'm so paranoid all the time that I'm dying or something. AS much of a problem as it is, I'm kind of hoping it really is all endo because then at least I know it's not something else.
I'm finally seeing a real gyno in a week and a half, so hopefully I'll get some answers. He is also a friend of my dad's, so hopefully he'll be more attentive than just some random person.
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Post by LiveForTheLaunch on Feb 26, 2007 20:21:10 GMT -5
I've been very lucky with this, myself. My doctors knew something was wrong with me, and that it wasn't just period pains.
I think what you should tell them is that you know yourself better than anyone, and you know it's not just pains from having a period. If you have a hunch something is wrong, get a laparoscapy, because that could help things out a lot.
Get one. Convince them.
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