abornich
Full Member
Jesus Loves You
Posts: 154
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Post by abornich on Feb 5, 2008 20:11:58 GMT -5
I agree with you there!
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Post by windy on Mar 15, 2008 7:15:58 GMT -5
Hi just found this site, interesting reading I was diagnosed at 32 however had been on the pill since I was 15 due to the painful periods. I came off the pill at 31 i had no luck with conceiving and had excrutiating periods again so investigated and year later i found myslef looking at a mirror image when my 12 yo daughter was writhing in pain with her menarche. She was diagnosed via lap' at 13. I have noticed that my gorgeous daughter has a profoundly lowered immune system. It is common for her to have colds on a regular basis, at all times of the year and regularly back to back. Both of us have skin conditions and I have very advanced gum disease which apparently quite rare for my age (diagnosed at 34) and I floss and brush my teeth 3 times a day! My daughter is hyperflexible and often complains of painful joints and muscles her pain threshold is high, like most of us with endo!! I wonder if her muscular pain could be fibromyalgia (please excuse my ignorance if it is not) I was told by my dental specialst that the gums may be a result of a lowered imune system due to my endo...sointeresting that it is all linked,oh and both of my aunties have M.S. with my aunt being diagnosed with "old maids" syndrome in the late 70's as she had very painful periods.
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Post by toogie on Mar 31, 2008 10:18:02 GMT -5
I have hypothyroidism, possible asthma, chronic back and neck pain, gastrointestinal issues and extreme fatigue at times.
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Post by Tiff on Mar 31, 2008 12:01:10 GMT -5
I have been wondering for many years now if I had some kind of immune issues because it seems like anything that could happen to me happens no matter how rare it might be.
I have asthma major skin issues.... sensitive to everything including soap of every kind and frangrances. I get shingles, and staff infections frequently with no explained reasons why. I often get dizzy...so dizzy I feel like I just drank a 6 pack of Guiness. It is so bad that when I lay down the room spins. I was told it was benign positional vertigo. I still dont belive it. I get headaches almost every day that comes on at the same time. And now in the past month or so I have been getting the tingling sensation in my mid back on the right side. It happens everyday it the exact same place. I have no idea what it is.
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Post by anneny on Apr 17, 2008 17:06:46 GMT -5
After reading all of this, it seems like there must be a connection somewhere. I wish there were better research!
Here's my list: Colicky as a baby, Allergic to sulfa (haven't had it since infancy) Chronic bloody noses as a child, Dizziness and fainting starting in childhood and continuing now, Persistently enlarged lymph nodes, especially on my neck (seriously, I sneeze once and my neck gets visibly bigger) Very low blood pressure, Migraines, Burst ovarian cysts (one when I was 14, one at 18, and one at 20) Fibromyalgia, Nerve degeneration in both legs below the knee (very painful!), Sciatica, Insomnia, Chronic fatigue (never officially diagnosed as CFS, though) Heart palpitations and tachycardia (perhaps related to anxiety) Depression, Presumably endo (haven't had a lap to confirm, but my doc is 99% sure that's what it is) and what my ob/gyn describes as "bumpy, lumpy" breasts (does that mean cysts? who knows).
I also catch every little illness that goes around, am very sensitive to medications, and usually get the rare side effects of every medication I take.
I've been through lots of treatments for various things. Luckily, my GP growing up liked to look at the big picture and always tried to find a single medication to help with the migraines, fatigue, fibro, depression AND insomnia. My neurologist has also been great.
That said, the only thing that has nearly completely eliminated ALL my symptoms of all the various conditions is BEING PREGNANT. No kidding. Within a week of conceiving (before I even knew I was preg), I felt the best I had in YEARS. I'm due in July, and the past six months have been the smoothest of my life for my health. We'll see what I need to do after the baby's born, but hopefully if I can breastfeed the benefits will last longer.
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Post by anneny on Apr 17, 2008 17:10:33 GMT -5
Oh--I forgot to mention that I heal very slowly. I scraped my hand once, and even though it didn't bleed and barely broke the skin, it was still visible a month later. I had some blood work done at my last prenatal appointment three weeks ago, and there's still a bruise from where they took it. My friend (not a doctor, but a biologist) said that's usually an indicator of autoimmune diseases. Being pregnant hasn't helped with this one, though.
I also have lots of moles. They've always been monitored and considered benign, but there is a history of melanoma on my mom's side.
I think that's really all this time. :-)
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Post by JackMcFarland on Apr 30, 2008 10:16:37 GMT -5
I just skimmed roughly through this thread... but I was curious if any of your ladies get sick about a week before your period? Back before I was officially diagnosed and had my period regularly every month, I'd always get sick. Sometimes it was a scratchy sore throat and other times I was a full fledged fever. Last month I didn't get sick at all, and this month I've noticed that I've got kind of a stuffy nose, a sore throat, a drip, and I'm exhasuted! Oh lord... I just want to sleep 24/7.
Has anyone else ever experienced this?
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Post by Tiff on Apr 30, 2008 10:43:46 GMT -5
No tess I dont recall getting sick before my periods. But when I do get sick I have a hard time getting over it. In fact, 8 months ago I got a sore throat and next things I knew I had pneumonia (sp?)
But to update you on my list of things I had a mole removed about 2 months ago that left a 2 inch scar... I think I discussed it in another thread. It came back cell active but the margins were clear. I was told to keep an eye out for it. With in the last 2 weeks 3 more moles have popped up in the same area and are dark in the center with lighter colored rings around them. I do have a history of melanoma in my family and at this point very nervous about my appointment to get them checked out.
like anneny I also have depression, more so anxiety though. I honestly feel like there must be something wrong with my immune system for me to have these kind of issues. When I was in HS I was tested and it was on the low end but have not been retested in prob. 10 years or so. (I moved right after getitng tested)
I know this is kind of a rant but I am so tired of being in the Dr.'s office. I want to be healthy and for everything to be going well. I am so so tired of it always being something.
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Post by JackMcFarland on Apr 30, 2008 11:11:27 GMT -5
That's scary Tiff, good luck....
I find that I get sick easy when I'm not on any pills that supress menstration. Weird, huh? I've heard that at a certain point in your cycle your immune system is weakened. So, i know that even though I take lots of vitamins to keep my immune system up, something like stress or traveling right before my period is going to result in some form of an illness.
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Post by Tiff on Apr 30, 2008 11:20:46 GMT -5
That makes sense tess... I had never heard that a point in your cycle your immune system is weakened but i can see why it would be. Stress plays a major role for me when dealing with colds and stuff. I find that being stressed def. weekaned me and I tend to get sick soon after.
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Post by italialynn on Apr 30, 2008 11:34:32 GMT -5
Hey Tess... I actually (usually) get sick right after my period. I'm guessing because I'm anemic and I obviously lose alot of blood at that time so as a whole, my body weakens. I've been a wreck since childhood.... Cleft (soft) pallette baby 7 ear surgeries (5 sets of tubes and 2 patches) Chronic ear and sinus infections (have one as we speak) Viral Meningitis with resulting Meneer's syndrome Chronic fatigue syndrome Anemia Eczema Chronic lower back problems Ovarian cysts Endo I went through a period after high school when I felt great. I only got sick once a year and it seemed like my ear infections were gone. When I got cfs a couple of years ago it seemed like everything has gone downhill. It just destroyed my body. But I just keep my head up and try and stay as healthy as I can
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Post by JackMcFarland on Apr 30, 2008 16:59:23 GMT -5
Prior to birth control I got sick at least 5 to 8 times a year and always with upper resp/sinus viruses, not infections - as my Dr would always tell me, "a virus must play itself out. there is not prescript for it." I got sick for the first time in a good year this past December (2007) - it was the first time I had a good cold since Feb or 2006. Now that I am off all BC I've noticed that each month I'm getting something else back that I experienced from my old cycles - hence the colds... :\
I was diagnosed with cfs and fibro in 2002 when I graduated high school, but my Dr said that often a lot of people who have on going stresses find that they are "achy" and cfs and fibro aren't really anything to worry about.... just simply a name that medical professionals put to something that is simply stress. Don't know how true that is, though.
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Post by Tiff on Apr 30, 2008 17:56:55 GMT -5
what is CFS? I have always ondered if I have it but have never brought it to my Dr. attention. What are the symptoms?
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Post by JackMcFarland on Apr 30, 2008 18:10:37 GMT -5
chronic fatigue syndrome... basically its long term fatigue that cannot be explained by any other causes. i know that you are still tired after sleep, can be depressed, um... lack of short-term memory, and being extra tired after normal activies. to me, that just describes life. maybe i'm ignorant or just a hard @$$, but often I think Drs use CFS as an excuse for people who feel "sick" but don't have a real cause.
funny thing is, real depression has all the same symptoms - achy bones, feeling tired and just not well. i dunno... i guess its all auto-immune.
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Post by anneny on Apr 30, 2008 21:09:50 GMT -5
I thought CFS was only diagnosed when depression had been ruled out, but maybe that's just what my doctor did. When the anti-depressants helped so many things, he decided not to include CFS on my list of ailments, though he did include fibromyalgia since I had way more than the minimum number of trigger points.
A lot of these things have the overlapping symptoms, which is one good reason to try and figure out if there's one underlying problem. If we could figure that out and fix it, life would be so much better! We need more research, though.
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