Post by cherry on Oct 23, 2006 7:44:11 GMT -5
Ok my endo is not severe and I thank God for that but it is getting worse, and I wonder if anyone has any idea, from experience or research, what the next step(s) may be/ what I should push for.
Feb 2006, laparoscopy found endo in pouch of Douglas and on my uterosacral ligaments and the vertical ligaments. I only found out the details when I asked for all the letters from my gynae consultant!
In May, after years of increasing pain, I was formailly diagnosed with Endo, and given a GNrH (Prostap3) injection to put me on a mini menopause. With this I was prescribed HRT to prevent any problems arising from the false menopause.
Since this the pain has continued to progress, the hormone problems (inc worse that PMT moods and bad spots) have been worse, especially after the injections, and I have had a horrible change in eating habits, which have meant weight loss that makes me look ill.
My stomach is in bits with all the ibuprofen (i can't take paracetamol or opioids such as codeine which make me sick, dizzy and very shaky) so I now take stomach tablets at night and drink a lot of milk, thankfully I haven't become lactose intolerant. Voltarol tablets go right through me, as they have an entro coating to protect my stomach but my bowel is quite irritable (though I doubt it is IBS luckily)
As I have taken the pill since I started menstruating because I had very heavy bleeds, I soon realised that maybe hormone therapy is not the best option to control my Endo, and I wonder why my consultant tried this knowing I had been many contraceptive pills.
I want to ask for another lap when I see him in December, but hesitate in case it is seen as attention seeking. He was very patronising when I cried at the shock of my formal diagnosis.
I need to see what is happening inside my body, so as to enable an understanding and 'confront' my little enemy by seeing a video.
I know that the lap will show a worsening but 'knowing' isn't enough of an argument against an arrogant male doctor.
I have had many other problems over these last 5-6 months besides, too many to describe, and at time my endo got the better of me because things got too much.
But right now I am very clear of mind about it, having snapped out of a mild depression before it became serious.
I would appreciate any advice, you ladies (and gents) to me are more trusted than doctors, because in my mind 'knowing' is worth more than a passing comment froma doctor any day.
This pain on my left side near my bowel has me very worried, as the letter from my hospital to my doctos suggest that basically the endo is very localised round my womb.
This pain is there everyday but doesn't affect my toilet habits unless I am on a period, and sometimes spreads up and over my body like a bad stich pain.
Take care
Lots of love xx
Feb 2006, laparoscopy found endo in pouch of Douglas and on my uterosacral ligaments and the vertical ligaments. I only found out the details when I asked for all the letters from my gynae consultant!
In May, after years of increasing pain, I was formailly diagnosed with Endo, and given a GNrH (Prostap3) injection to put me on a mini menopause. With this I was prescribed HRT to prevent any problems arising from the false menopause.
Since this the pain has continued to progress, the hormone problems (inc worse that PMT moods and bad spots) have been worse, especially after the injections, and I have had a horrible change in eating habits, which have meant weight loss that makes me look ill.
My stomach is in bits with all the ibuprofen (i can't take paracetamol or opioids such as codeine which make me sick, dizzy and very shaky) so I now take stomach tablets at night and drink a lot of milk, thankfully I haven't become lactose intolerant. Voltarol tablets go right through me, as they have an entro coating to protect my stomach but my bowel is quite irritable (though I doubt it is IBS luckily)
As I have taken the pill since I started menstruating because I had very heavy bleeds, I soon realised that maybe hormone therapy is not the best option to control my Endo, and I wonder why my consultant tried this knowing I had been many contraceptive pills.
I want to ask for another lap when I see him in December, but hesitate in case it is seen as attention seeking. He was very patronising when I cried at the shock of my formal diagnosis.
I need to see what is happening inside my body, so as to enable an understanding and 'confront' my little enemy by seeing a video.
I know that the lap will show a worsening but 'knowing' isn't enough of an argument against an arrogant male doctor.
I have had many other problems over these last 5-6 months besides, too many to describe, and at time my endo got the better of me because things got too much.
But right now I am very clear of mind about it, having snapped out of a mild depression before it became serious.
I would appreciate any advice, you ladies (and gents) to me are more trusted than doctors, because in my mind 'knowing' is worth more than a passing comment froma doctor any day.
This pain on my left side near my bowel has me very worried, as the letter from my hospital to my doctos suggest that basically the endo is very localised round my womb.
This pain is there everyday but doesn't affect my toilet habits unless I am on a period, and sometimes spreads up and over my body like a bad stich pain.
Take care
Lots of love xx