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Post by munecita on Oct 20, 2006 9:00:25 GMT -5
Hi My name is Munecita. I am new to this website but I am happy to actually find a website where we can share our stories and not just read about the medical info regarding endometriosis. (symptoms, causes, treatment etc..) Ive had endo for about 12 yrs (or longer ) and i dont feel like its getting any better in fact i feel like its just taking over my life (emotionally and physically) would be nice to just have someone to listen and understand... hopefully this website will help!!!!
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Post by ouchy on Oct 20, 2006 16:46:20 GMT -5
Hi, munecita! Welcome to the forum!
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Post by katie35 on Oct 23, 2006 6:53:55 GMT -5
Hi and welcome. I totally understand how you feel. I've had endo for a long time but only got diagnosed a few years back. Its a very misunderstood disease. Alot of my own family don't even believe its there even after surgery, lupron, and now bcp. It really gets old feeling you have to convince people you feel bad. I just feel like a lier that is trying to make people believe me and the funny thing is I am being so honest. Oh well, I guess that's life, huh?
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Post by munecita on Oct 23, 2006 9:03:14 GMT -5
Thanks Katie35...I was actually diagnosed 10 yrs ago..Ive tried many types of bcp, a nasal spray called synarel (HORRIBLE) but sooooo afraid to try lupron.Sometimes I feel like an emotional mess as it is, Im afraid to go on a med that will proabably make me feel worse..There arent too many people in my family that actually understands what im going through. Im married but sooo mant times i feel like he doent understand this disease neither....I am blessed however with a 4yr old son
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Post by katie35 on Oct 23, 2006 9:14:29 GMT -5
I have a loving husband and have 2 children, so I feel very lucky in that regard also. However, as much as my husband might try he doesn't understand and can get very inpatient with me. I understand his side of it, but I can't change my side eather. It's really hard to know what to do. I sometimes think he would have been better off not marrying me, because I feel like less than a wife most of the time.
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Post by munecita on Oct 23, 2006 9:21:03 GMT -5
Katie i dont know u personally but u should never think any less of yourself....though.I can understand how u feel because there are times when my husband and I are intimate and i cannot perform in a certain position (which he prefers) because of the excrutiating pain i get!!! hey its not our fault we have this d__n disease..
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Post by Nari on Nov 6, 2006 20:39:09 GMT -5
I am with you. I am totally sick of the pain and just want my quality of life back.
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