Post by Hillary on Jul 27, 2006 21:53:22 GMT -5
I have posted this post under Laproscopy until Ouchy reminded me that I need to introduce myself (Thank you Ouchy), I have been through alot this year and I personally don't now antone that has endometriosis and i feel that people are starting to think i am a hyprocondriac because it feels like this will never end.
Reading some of these threads makes me feel that i have someone to talk to. Luckily or thankfully my husabnd and i just bought a computer which makes this possible. I live in Toronto, Ontario and when i was first diagnosed i went on line to find a group but long and behold I couldn't find any groups around. And my husband hated the idea of me going out at night by myself, so when i told himj about this group he was very supportive.
Anyway this is my story, (Seems so short on paper!)
I myself have 2 surgeries both the c-section incision and the incision from above my belly button to the bottom, the first time i wasn't so scared I had 2 cysts on my right ovary on was 7x4 and 4.4cm, I went in thinking they would just remove the cyst but the next day after surgury my specialist told me I had endo and that if I wanted kids i would have to start right away(I was not prepared for that) so obviously i was balling , when he left he said to me "Don't cry too much" I was so angry with him. When I got my results 3 weeks later he told me that i had endo/ovarian cancer very rare but he said it wasn't the bad kind, in other words not spreadable and that the results where being sent down to Princess MArgaret Hospital (Our Cancer Specialists), when i got my apointment quite quickly their they told me that i had agressive ovarian cancer. what had happened was that i was in and out of hospitals for 8 months with sivere stomach aches to the point i couldn't even touch my stomach let alone stand up straight, constipation, gas that filled my stomach and everytime they did the good old, blood, urine, x-ray test and of course nothing showed but high white cells so they sent me home with medication for a stomach infection, finally after 8 months of agony back and forth from the hospital my regular doctor ordered an ultra sound and found the cyst but because it was there so long it had turned into ovarian cancer, i am very very lucky to be alive! So when my very understanding new specialist at PMH listened to all my problems and told me that they would have to do an MRi & catscan and then we need to do a laproscopy but he said that if he finds cancer or anything else it would turn into full surgery. That is the scariest thing ever! Considering i had just come out of surgery 3 month before. Thankfully when i received my results on Good Thursday the weekend of Easter, my Dr. left me a message on my answering machine, Bless him! that there was no cancer left! My pain had gone away i was regular, everythings seemed fine for about a month and now I have pains, contipation you name it i have it. I just had another MRI last week and blood work and i get my results on Monday, I am soo scared. Seems everytime I go to the doctors I am in surgery 3 weeks later. Crossing my fingers i'm not, he said that if it is too bad then i will go for fertility right away to get pregnant (Iv'e tryed for 5 months now), if it isn't so bad then we will try to contain it (not sure what that means) or if there isnt(doughtful) then i keep trying to get pregnant.
The hardest part for me is the chance of not being able to have any children of my own. I have always dreamed of having at least one.
Then there is the change in diet, wow it is hard to cut out bread and sugar. I love that stuff!
Then there is that time of the month, dred that every month when i get through it i am so thanful, but then we still need to ovualate i have some pretty good pain then too.
And when you don't feel very good and your co-workers always seem to ask me how i am and most of the time i say excellent when i am lieing through my teeth, my boss (A wonderful lady who push me when my doctors kept sending me away telling me i had a stomach infectin she kept telling me thats not normal, and i would go back insisting simethings not right) , but she still had to fill my spot at work when i have been away, I am a receptionist so for me to have time off is very hard.
Everyone is affected,
I know that we all have to stay strong and be happy that we are here . I keep thinking to myself it could be worse, It seems to make me feel a bit better
Anyway that is my story... Wow what a story i am these days, and i know that you understand where i am coming from.
Thank you for listening to me!
Hillary
Reading some of these threads makes me feel that i have someone to talk to. Luckily or thankfully my husabnd and i just bought a computer which makes this possible. I live in Toronto, Ontario and when i was first diagnosed i went on line to find a group but long and behold I couldn't find any groups around. And my husband hated the idea of me going out at night by myself, so when i told himj about this group he was very supportive.
Anyway this is my story, (Seems so short on paper!)
I myself have 2 surgeries both the c-section incision and the incision from above my belly button to the bottom, the first time i wasn't so scared I had 2 cysts on my right ovary on was 7x4 and 4.4cm, I went in thinking they would just remove the cyst but the next day after surgury my specialist told me I had endo and that if I wanted kids i would have to start right away(I was not prepared for that) so obviously i was balling , when he left he said to me "Don't cry too much" I was so angry with him. When I got my results 3 weeks later he told me that i had endo/ovarian cancer very rare but he said it wasn't the bad kind, in other words not spreadable and that the results where being sent down to Princess MArgaret Hospital (Our Cancer Specialists), when i got my apointment quite quickly their they told me that i had agressive ovarian cancer. what had happened was that i was in and out of hospitals for 8 months with sivere stomach aches to the point i couldn't even touch my stomach let alone stand up straight, constipation, gas that filled my stomach and everytime they did the good old, blood, urine, x-ray test and of course nothing showed but high white cells so they sent me home with medication for a stomach infection, finally after 8 months of agony back and forth from the hospital my regular doctor ordered an ultra sound and found the cyst but because it was there so long it had turned into ovarian cancer, i am very very lucky to be alive! So when my very understanding new specialist at PMH listened to all my problems and told me that they would have to do an MRi & catscan and then we need to do a laproscopy but he said that if he finds cancer or anything else it would turn into full surgery. That is the scariest thing ever! Considering i had just come out of surgery 3 month before. Thankfully when i received my results on Good Thursday the weekend of Easter, my Dr. left me a message on my answering machine, Bless him! that there was no cancer left! My pain had gone away i was regular, everythings seemed fine for about a month and now I have pains, contipation you name it i have it. I just had another MRI last week and blood work and i get my results on Monday, I am soo scared. Seems everytime I go to the doctors I am in surgery 3 weeks later. Crossing my fingers i'm not, he said that if it is too bad then i will go for fertility right away to get pregnant (Iv'e tryed for 5 months now), if it isn't so bad then we will try to contain it (not sure what that means) or if there isnt(doughtful) then i keep trying to get pregnant.
The hardest part for me is the chance of not being able to have any children of my own. I have always dreamed of having at least one.
Then there is the change in diet, wow it is hard to cut out bread and sugar. I love that stuff!
Then there is that time of the month, dred that every month when i get through it i am so thanful, but then we still need to ovualate i have some pretty good pain then too.
And when you don't feel very good and your co-workers always seem to ask me how i am and most of the time i say excellent when i am lieing through my teeth, my boss (A wonderful lady who push me when my doctors kept sending me away telling me i had a stomach infectin she kept telling me thats not normal, and i would go back insisting simethings not right) , but she still had to fill my spot at work when i have been away, I am a receptionist so for me to have time off is very hard.
Everyone is affected,
I know that we all have to stay strong and be happy that we are here . I keep thinking to myself it could be worse, It seems to make me feel a bit better
Anyway that is my story... Wow what a story i am these days, and i know that you understand where i am coming from.
Thank you for listening to me!
Hillary