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Post by midnightbirdgirl on Jul 16, 2006 22:18:48 GMT -5
Just wanted to introduce myself. I have had endo as long as I can remember. I got my DX in 1988 through a laporotomy. I was 23 at the time, I am now 40. I have had 12 surgeries, one was a hyst/bso in 2004. My last surgery was last year only 9 months post hyst. I have taken Danazol in 1988, Depot Prevera 1994-96 and Depot Lupron (nightmare) in 2002. That is my endo story in a nutshell. My battle is far from over. I just had another ct scan and u/s and it looks bad once more. Always a thorough excision, always bounces back to stage 4. Carrie
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Post by ouchy on Jul 16, 2006 23:33:08 GMT -5
WOW!!!! Sorry it keeps coming back like wildfire!!!! You have tried everything, even hysterectomy, and it just keeps coming back. Sometimes it's like there is no winning with this stuff! I wish the best for you!
Welcome to the forum! ~Ouchy
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Post by erzulie on Jul 17, 2006 15:00:47 GMT -5
Welcome! I think your screen name is very pretty! I'm sorry taht you've had such a hard time. I've always heard excision surgery is the best thing you can do but of course nothing is 100% Officially, it's an incurable disease. Hopefully you'll find something you haven't tried on this website, people do have a lot of ideas on here!
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meka
Full Member
Posts: 164
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Post by meka on Jul 23, 2006 22:00:21 GMT -5
Hi, mindnightbirdgirl. Gee-wiz!! I'm sorry your experience has been so looooong and extensive. Have you tried any natural alternatives. If not, at this point maybe it's worth a try.
Welcome!
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