lilyloves
New Member
sunshiney mind
Posts: 28
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Post by lilyloves on Jun 12, 2006 8:18:58 GMT -5
Hello Everyone, I'm 21 and from Liverpool and finally diagnosed with endometriosis may 17th 2006 (though apparently I should have been told at the hospital after my laparoscopy in Feb) I had suspected it for a while especially because of the family history of endo and endometrial cancer in my mum's family, but was devastated when I was told for sure. The consultant, maybe being a man and a doctor, was less than sympathetic when I started crying, I was not told where it is or how severe, just that I would be given Prostap and Livial HRT and that my fertility is not affected for now. I was asked 'why are you crying, its not like you've got cancer.' Then I was given my injection and prescription and sent on my way. I don't mean to label men or doctors as pains in the bum, but in the 8 years of gynae problems, I have only come across 3 doctors who have seemed to take on board what I have said. Don't know where that rant camefrom (seem to be doing that a lot today ) But take care all of you xXx
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Post by erzulie on Jun 12, 2006 10:04:02 GMT -5
Welvome lilyloves! I'm sorry you're having a rough time. Sometimes it takes a lot of shopping to find a good doctor. Personally I've never even tried seeing a male gynecologist, my experience with male doctors is that they tend to think women are big babies, but other people feel exactly the opposite way so I guess it's a matter of personal preference. If you don't like seeing a male doctor, maybe you would be happier with a woman. Your doctor also sounds rather old-fashioned. Why didn't he tell you anything, and why did he give you a prescription without giving you time to think it over? The treatments for endometriosis all come with a ton of bad side effects and there's not much that's very effective in treating the disease, so I don't think anyone should take anything without thoroughly researching it first. I think it is imperative that you call this doctor up and bombard him with questions. You NEED to know where the endometriosis was, what sort of damage it's caused, and how much he left behind (and where). Then you need to shop for a new doctor who treats you like a human being.
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lilyloves
New Member
sunshiney mind
Posts: 28
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Post by lilyloves on Jun 12, 2006 11:40:53 GMT -5
Hi erzulie, thanks for your reply. I have told my GPs 2 locums (my GP is off sick at the moment bless him) that I am not happy with the consultant, that I found him patronising and rude, and as you said he didn't give me time to think it over. It frustrates me how unkind doctors can be, these people specialise in our care and gynaecologists you would hope would be the most interested in your gynaecological wellbeing. After what I've read I'm dreading finishing my injections as I'm in a lot of pain still after my last period (6 weeks long due to a hormonal imbalance) and this pain is steadily getting worse! I'm determined to be as bossy as possible about all this, I know my body very well and am sick already of doctors patronising me. I wish I could make them sign a contract promising that they will be considerate!
Quite disgusted that I was told 'why are you crying, it's not like you've got cancer' and will not be seeing that doctor again. He's the third consultant I've seen since first being referred aged 14. So far none have been any good
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Post by erzulie on Jun 12, 2006 15:26:11 GMT -5
Well, you've got the right idea deciding to be bossy about it. It is YOUR body! You had every reason to cry, it's a painful, progressive, incurable disease. I was devasted when I found out I had it even though I'd suspected for years. It's just so hard to accept that you really won't just outgrow the pain, as everyone always said you would. And then to find out the treatment options are so limited, and you're going to be battling this forever.... That doctor would be crying too, if it were him. He'd be crying like a baby.
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Post by ouchy on Jun 12, 2006 16:21:49 GMT -5
Wow! Sorry about your experiences with doctors. I hope you will find someone soon who is both knowledgeable and compassionate! I will keep my fingers crossed for you! And welcome to the forum!
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lilyloves
New Member
sunshiney mind
Posts: 28
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Post by lilyloves on Jun 13, 2006 8:05:55 GMT -5
Thanks for the words of support from everyone. Seems that in the US the medical profession is more head on about this that I have seen over here, and the mood to fight this is more war like... I love it! Have had some bad stuff go on in my life so I'll be very disappointed if I let this take over my life, though I know there'll come a time when I may lose that battle. Me and Emily (my name for my womb and general girly bits, I know its a bit strange) have a good understanding of each other, so here's to fighting back against the disease and the misconceptions surrounding it (bloody mood swings off the HRT are making me crazy ha ha!) Best wishes to everyone xXx
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annie
New Member
Posts: 22
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Post by annie on Jun 13, 2006 8:17:57 GMT -5
Hi there! Like I said on the other thread I'm in Liverpool too. I'm new to this whole thing and have my lap next month. I am not in the Womens but in Aintree where it seems that my doctor has very much in commn with yours. Maybe its a UK thing? I don't know, I was hoping it was just mine. If you find anyone nice give me a shout and I will for you too. My mum was under a different gynaecologist 3 years ago and he was lovely so if I can try and get moved to his care I will let you know what he is like!
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lilyloves
New Member
sunshiney mind
Posts: 28
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Post by lilyloves on Jun 13, 2006 11:30:01 GMT -5
Why have they not sent you to the Women's yet? I can say that Mr Aziz, my current consultant is not ideal, but his registrar was lovely when I saw her, just the right balance of professionalism and listening sympathetically, she was the first doctor to ask the consultant to do a lap so I am grateful for that! xXx
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