meka
Full Member
Posts: 164
|
Post by meka on Jun 19, 2006 22:47:55 GMT -5
Welcome, Loise!
|
|
candy
New Member
Posts: 9
|
Post by candy on Jun 22, 2006 10:26:10 GMT -5
Welcome Louise! Thanks for the replies...I've been so busy at work the last few days I have not been able to get online!
I have a new question. I have a 15 year old daughter who is experiencing some mild symptoms. I'm in no hurry to get her scoped....but I don't want her to be in as much pain as I was either..... does anyone have a daughter that's inherited this?
Candy
|
|
|
Post by erzulie on Jun 22, 2006 18:51:28 GMT -5
I don't have any children, but I know it is partly genetic. If your mother has endometriosis, you are seven times more likely to have it yourself than the average person is. I read a book once that discussed various things you can do to decrease your daughter's chances of getting it. You might find it beneficial. It's by Mary Lou Ballweg and it's called Endometriosis: The Complete Guide for Taking Charge of Your Health.
|
|
meka
Full Member
Posts: 164
|
Post by meka on Jun 23, 2006 0:02:52 GMT -5
Candy,
I have no children either. But I can say that my older sister (by 4.5 years) has endometriosis, too. Growing up she was always in extreme pain during her periods, even went to the hospital a couple of times. A few years ago she got a laparoscopy and had the endo removed (at about 30 years). I never really knew what was going on with her, I thought she was just being overdramatic.
Growing up I always had pains, too. They were bad enough to make me cry and keep me away from school here and there. But I never expressed to my mom how bad the pain was. Plus, she assumed it wasn't that bad because I never took any medicine (She didn't realize that I just wasn't a fan of chemicals, even at a young age.). I never told her about the two times I broke down and went on birth control to combat the pain. I always thought my pain was normal, typical woman problems. I didn't make any connection with my sister. Clearly, our family didn't have the best communication.
Well, I'm 28 now, and I called my mom after my appointment with the gynecologist-surgeon last week. I told her that my ovaries were twisted behind my uterus, that they have 6 or 7 cm cysts inside, and that the surgeon isn't sure that he'd be able to save my reproductive organs, which aren't likely to produce offspring anyway. My mom gasped. I could hear her jaw drop over the phone. She was choked up. Her baby girl is going through all of this, and might not be able to have kids, and she didn't see it coming.
The point of my long (sorry) story is that we ignored the pains, figured it was normal, despite what my sister went through. It also turns out that my mom had cysts removed a few years ago (never diagnosed as having endo), and my grandma had uterine fibroids.
I can't help to think that maybe, just maybe, if we (myself, my mom, the doctors) had taken the pains more seriously and didn't brush it off as "normal," I might not be in the agony I am in today.
I'm certain this condition is hereditary. I'm not saying rush out and have your daughter undergo surgery. Maybe an ultrasound will show something; that's not too invasive. Just definitely, please, keep a close eye out on her condition.
|
|
|
Post by claireabell on Jun 23, 2006 16:03:18 GMT -5
Re; I'm here.
Hi i am 24 and have 1 perfect son who is 2. My doctor has recently diagnosed me with Endometriosis, and i am so scared. I am desperate for another child and all i keep thinking is that i cannot have any more children. I will be going into hospital for a Laparscopy in a few weeks to see how much damage that the endo is doing to my bits, but too be honest i just feel so low at the moment. It has taken me a while to find this site and i do feel a little relieved that there are other people out there that have the same condition as i do, and that i am not alone.
|
|
louise
Junior Member
looby lou baby susprise
Posts: 70
|
Post by louise on Jun 23, 2006 16:42:31 GMT -5
hi clairebell, so many women are able to have children and suffer from endo so dont stress, read as much as possiable on this site because you will see so many women having children and your make so many new friends i promise, you will feel low i do most of the time but coming on here has given me hope and i dont feel alone anymore, its like a diary but you get wonderful feed back and people that want to listen and not just pitty you. take care xxx
|
|
|
Post by erzulie on Jun 23, 2006 18:38:42 GMT -5
Welcome claireabell!
Only about a third of women with endometriosis have problems with infertility, so I wouldn't panic. Even if you have some difficulty conceiving, you're obviously not completely infertile since you had a kid just two years ago. You probably had endometriosis before you had him, and if you have only just now developed it then it can't have gotten very bad yet.
But even if it has progressed to the point of making you completely unable to conceive again, don't ever focus so much on what you don't have that you are no longer grateful for what you do have. Some people would do anything just to have one child, and you've got one. You should be waking up every morning and rejoicing because you have a child! Also remember that nothing can ever keep you from having another child. If you honestly can't conceive again, you can always look into adoption. I know it's not the same but that doesn't mean it's not as good. When you conceive you give someone life and when you adopt you save someone's life. Either way, you're a hero, so don't let people tell you adopting isn't worthwhile.
|
|
candy
New Member
Posts: 9
|
Post by candy on Jun 27, 2006 11:45:01 GMT -5
I'm going to read the book that was mentioned above, thanks. You are right, I don't want to wait too long....I'll get my daughter into the Dr. asap to at least discuss her symptoms.
Thanks!
|
|
|
Post by ouchy on Jun 27, 2006 16:17:22 GMT -5
Welcome to the forum!!
|
|