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Post by Marcia on May 18, 2006 1:08:31 GMT -5
I am 34 years old and have suffered many years with endo without being diagnosed correctly. Both my sisters have it and my cousin. Finally,my third doctor believed me after I ended up in the emergency room one month when I was ovulating. The pain was excruciating!! It was worse than childbirth. Yes, I have been blessed with one miracle child who is 8. I had the lap the next month and was diagnosed with stage 3. My doctor couldn't get all the adhesions on my bladder and intestines, but was able to unstick my ovaries from my uterus. I am tired of the pain and tired of being tired. I am planning on having the "big" surgery next month. I want everything taken out. I am so ready. Do you guys think I am giving up too soon? Do you think a cure is coming? We wanted another child. I did not want my child to be an only. But I feel the quality of all our lives will be better when I feel better, have energy, and am not bed ridden for at least a week out of every month. Last month I bled for a whole month. My doc put me on progesterone and now I have periods every two weeks. I live in perpetual PMS. Well, thanks for letting me share. It really feels good to get all of this off my chest to people who understand. Blessings to all.
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Post by erzulie on May 18, 2006 16:00:59 GMT -5
I know how you feel about being tired of being in pain. It drives me crazy too, but I'm too stubborn to give up (though I will admit I haven't been dealing with this as long as you have. I doubt if a real cure will show up any time soon, but there are a lot of things you can do to improve your condition, and there is something very similar to a cure. In the future, when I have teh money (or better health insurance) I am going to travel to one of the places that does excision surgery. Doctors who are very skilled can get the endometriosis from anywhere and remove it completely. I have heard of people people pain-free for five years or longer after having this done. The problem with a hysterectomy is, it's not a cure. It does work out very well for some people, but you've got to get it done right, and your doctor who couldn't get all the adhesions on your bladder and intestines isn't going to be the one. The thing is, he'll take our your uterus and ovaries--which aren't even the problem--and you'll still have those adhesions on your bladder and intestines. If that's what's causing you the pain, you'll feel exactly the same after your hysterectomy, only you may have your sex drive and your energy gone as well. And here's the bad news--endometrial implants can create their own estrogen. If you still have them, they will keep growing even after your reproductive organs have been removed. It seems more reasonable to me to remove the disease, not the organs it's attacking.
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