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Post by JordanaMac on May 1, 2006 20:26:57 GMT -5
Hello everyone. I'm 26 and I was FINALLY diagnosed w/ endo in Sep '05 (had a lap) after spending my entire menstruating life in terrible pain (pain put me out of commission at least 2 days every month). I had lots of endo 'zapped' off plus two large fibroids. I'm still having bowel trouble and painful bloating each month during my period plus pain near my right overy (I have a functional cyst that blows up like a balloon w/ fluid; its painful enough that I can't stand upright most periods for the first few days).
One of my newest fears is being infertile (I'd post this on the other board, but I thought I'd stick my question here today with my introduction). For those of you who have been rendered infertile due to endo, I'd like to know what helped you cope w/ the life change. There seems to be a wealth of knowledge and experience here; I'd be greatful for a few replies:-)
Jordan
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Post by redmoon on May 3, 2006 15:48:28 GMT -5
Hi Jordan so sorry to hear that you are going through this, it just does not seem fair that someone of your age should have to be dealing with thoughts of may be being infertile. Hopefully it will not come to that but I can understand why you would be worried. I did not know that I had endo until after my son was born 4 years ago. It is since then that the pain has got really bad. I thank the universe every day for my son because I know that if I was to try for a child now it would more then likely be a different story. What have the doctors said to you about it/
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Post by JordanaMac on May 4, 2006 23:27:54 GMT -5
Thanks so much for your response, Redmoon:-) After my lap. the doc said that I still had a chance to concieve normally. I want to believe that very much but its really difficult for me to put stock in doctors anymore. I've been to 4 gynos. in 12 years. The first two said that my pain was normal. When I suggested a lap. to the second one, his response was that I shouldn't get one until the pain became "a problem"and is "interfering with my lifestyle". HELLO! I'm here seeing you because the pain IS a problem, and he doesn't think that consistently missing 1-2 days each month of work/school because of the pain qualifies as an "interferance"? I had to pull teeth to get my gyns. to humor me with an ultrasound and an MRI (the technician's exact words were "you're pretty messed up inside, hun" when she found the cysts and fibroids). Only then did they take my lap. request seriously after 12 years of hearing "you're too young to have any problems." Well.....obviously I'm not. Pardon me for my rant; my point is that my gyns. have been anything but on the mark with my health, so when one reasures me that I'll be able to conceive "no problem" I'm not quick to jump getting my hopes up. My boyfriend and I are seriously talking marriage and he wants children (his own, preferablly, but he is comfortable w/ adoption should it come to that). As such, the whole infertility issue has been on my mind quite a bit lately. I think I'm trying to start preparing myself (and him) for the distinct posibility that I might not be able to concieve. I'd love to know how others facing this fear or clear reality have coped with it.
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Post by redmoon on May 5, 2006 5:00:44 GMT -5
It's good to know that you have some support from your partner through all this. I know what you mean about doctor's. I am sure there are some great ones out there but I was going with pain from the age of 15 and being told I had IBS. Even when it got really bad after Dylan and I was in the doctors most weeks, with Dylan on my knee and hardly able to find a comfortable way of sitting due to the adhesions, they where sending me away saying it's just IBS. I think you really do have to decide for yourself what way to go and to inform yourself as much as you possible can. Some doctors think that if they didn't learn it in med school it does not exist. They will tell you that Endo is incurable and in my case that may be true has I have not be able to heal myself yet. However I have read of people who have and I defiantly am a long way from giving up. So I wish you the best of luck...I think you are doing the right thing coming to sites like this. In this way the Internet is revolutionary because people from wide and far are getting together and discuss what is best for them and their experience of what has helped. Even if you do choice to go down the medical root you will be in a better position because you are informed to make decisions based on the information you have researched yourself. Good luck...Redmoon PS Hope this makes sense as I am trying to write it with Dylan Jumping all over me.
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Post by Janet on May 5, 2006 7:43:08 GMT -5
I don't think its necessary to worry so much. I was only diagnosed last oct but I've had problems with it since I was 16. I missed work and school because of my period, I thought it was normal until I had my son and realized my period was like labor. Anyway, I got pregnant and its been there forever. The majority of infertility cases are due to endo but the majority of endo cases are not infertile.
janet
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Post by wantababy on Jun 26, 2006 15:08:48 GMT -5
Hi.I just wanted to say I have had Lap like 5 or more times for my endo and cysts and I'm still having problems conciving and am in pain again almost the next month.To me the lap is good to take the pain away for a time but it is only a short solution.Although after my first lap I did have like 3 months pain free.I'm only 24 and have been trying to have a child for almost 2 years.Its gets real frustrating and I sypathise with you.I just hope and pray evrey day that I will have the chance.Even with being on fertility drugs for the last 3 months still nothing.I'm unfortante that my problem keeps me unable to work.I hope that things will be better for you and hope my post dosent discourage you.
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Post by ouchy on Jun 27, 2006 16:18:42 GMT -5
Wantababy, I know several women w/ PCOS who have been successfull getting pregnant w/ soy. It's used like clomid to induce ovulation, only it's way more gentle and more natural than clomid.
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