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Post by scarletmoon on Oct 7, 2006 20:58:38 GMT -5
Well...back to the original post. So far this is day 5 of my meds. So far so good I think. I have woken up a couple of times to what I suppose are night sweats? Had to kick the covers off, and couldnt get back to sleep. I think I have leveled out as far as feeling a bit loopy or dizzy when I first took the first couple of days. All that seems to be gone. Ill keep you guys posted on how it goes beyond that.
Ann
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Post by scarletmoon on Oct 11, 2006 21:11:34 GMT -5
I am on a week and a day on my meds. I forgot to take this mornings meds on time...and ended up taking them about 7 hours too late. I went ahead and took them as soon as I remembered...and a few hours later I have a terrible back ache and slight cramps. I havent woke up anymore due to hotflashes or anything lately. Though I have kept the windows and or air on, and havent been hot. The spotting has stopped since saturday I think. But with me taking my meds late today, Im not sure what to expect now. Just thought Id update everyone.
Ann
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Post by mariewynn on Oct 15, 2006 4:26:35 GMT -5
Hey Ann, I am on Aygestin too (just aygestin for now, two pills daily). I actually haven't had any side effects from them. No weight gain, no mood swings. Recently I've started getting hot flashes and night sweats, which my doc says is cause of the aygestin, but that's after about 6 months of taking it with no side effects. I got some relief for a few months from the pain as well after my lap and starting the aygestin (it's back now but hey a few months off was nice). Hope it works out for you!
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Post by scarletmoon on Oct 18, 2006 21:57:18 GMT -5
Hey Marie...Im taking the Aygestin at night, and only half a pill. So far...all my pain and cramping and period have stopped...I think its been a little over 2 weeks now since being on all of this. Ive not really seen much in side effects either. Which is what I was really afraid of. Only, I will say that my sex drive I think has dissapeared since starting the meds in the last few weeks. But really no hot flashes...Im only supposed to be on this medicine for 3 months. As soon as that is up...Im off these pills!
Ann
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Post by scarletmoon on Oct 30, 2006 20:34:47 GMT -5
Been on my meds for about a month now. Until this afternoon, my pain and period had really lessend. I forgot my pills this morning, so after remembering at about 4 this afternoon, when I started having cramps, I took them right away. So strange how I started cramping right away. I do have night sweats a little, and some hot flashes. Ive not been sleeping very well, dont know if thats from the night sweats, or just not sleeping? I do feel like Im drying up from the inside out. No vaginal moisture at all! Which can be a bit uncomfortable. Also, my skin has gone a bit haywire. My neck is soooo broken out all the time.
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Post by sheilamchughes on Jan 29, 2007 22:56:28 GMT -5
Hi Ladies, I would like to take this time to help with info on letrozole, if I may. My daughter at age 16, just 2 and 1/2 years ago made medical history as the youngest with the greatest severity to begin the letrozole treatment in Feb 2004, today she remains free of endo, proven through several surgeries. Please visit our personal web site at www.KARE2004.com to learn more and write with any questions or concerns. I do hope this is helpful. God Bless, Sheila Director The Endo-KARE Foundation
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Post by ouchy on Jan 29, 2007 23:04:06 GMT -5
Hi, sheila. Welcome to the forum. Please take the time to post an intro in the "Introduce Yourselves" forum.
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Post by sheilamchughes on Jan 31, 2007 19:47:44 GMT -5
SIDE EFFECTS Good Evening I have been asked to write about the "side effects" of letrozole, per Apple's request....here goes ladies. When Kari, my daughter, began this treatment we were on "unknown" grounds, it was so new to endo and very new to teens. I have seen that the younger gals respond much quicker or perhaps easier to the aromatase inhibitors. Usually within the first month of treatment most see relief from pain, but experience nausea, joint soreness, headaches, that diminish (for most) within the first 2-3 months. The fatigue that is a side effect will stay with most for the duration of the treatment, but I feel certain that part of this fatigue is the body finally gaining a "rest" that is so desperately needed. So I do advise that you rest often and take the needed time to just sleep. If you have small children make arrangements for someone to step in to help, a support system is needed while on an aromatase inhibitor. I recommend Zofran as an option to combat the nausea, it is great! The great thing about this treatment is that while estrogen is blocked from your organs (aromatase is blocked from producing estrogen in the fatty tissue of our organs) the estrogen that is produced from the ovaries is not blocked, helps to keep a more normal "level" of hormones during this treatment. NEA is used (or as for Kari Ovral was used due the problems from cysts brought on by letrozole) and Calcium 600 mg twice daily (total of 1200 mg daily) with 400 mg of Vitamin D with each dose of calcium. The calcium increased Kari's density and healed her left hip socket wonderfully, she is still on this calcium dose for another year due to damages to her spine from the endo. We are hopeful that with her age and time it will greatly improve, as it is doing! The most difficult problem for Kari was from the "break through" bleeding while on letrozole. The bleeding would come on at any time and could last for any duration of time and it was very painful. Pain medication will be needed. For this reason we took Kari off the treatment at 13 mos (not the 2 year mark as planned). We knew after 7 mos that Kari was free of endo (through surgery) but due to the horrible severity decided to keep her on it longer. Most women will remain on an aromatase inhibitor for 6-7 mos on an average. Do not become pregnant while on this treatment. The side effects are tolerable, the results for most are great, there is no guarantee, but this a "positive" treatment option. Once you discontinue the treatment it leaves your body completely along with all of the side effects. I have personally endured endo at a time when options were few and I had no hope of ever being free of endo. The aromatase inhibitors offer us "sisters" so much more, so please do the research and visit our personal web site www.KARE2004.com and see Dr. Bulun's study, copy if needed to take to a Reproductive Infertility Specialist (most are Endo Specialist, not all) to discuss this option with a doctor that has the complete knowledge of correct surgical removal and all positive treatments. Write directly to me if I can help further. Take care. God Bless, Sheila Director The Endo-KARE Foundation
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apple
Full Member
Posts: 214
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Post by apple on Feb 1, 2007 10:29:31 GMT -5
Sheila. Thanks for providing further information.
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Post by morgan on Mar 22, 2009 19:57:58 GMT -5
Has anyone tried Femara? My endo has spread to my lungs and my new doctor put me on Femara and wants me to stay on it for 6 months. It is made for breast cancer patients..it "eats" estrogen and is supposed to shrink endo lesions. I have read it has horrible side effects. I took my first pill last night and have been dizzy and nauseous all day. Any info would be appretiated!
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