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Post by sarag99 on Sept 12, 2014 16:17:04 GMT -5
Hi
I'm new to this site and am at crossroads whether to go ahead with surgery. My story is that I've been recently diagnosed with Endo and bilateral endo (chocolate cysts) (one is 3cm the other 7cm) , my pain isn't actually that bad, more a feeling of inflammation and flares up from time to time. Doctors were surprised I wasn't in more pain. I have been reading into diet and taking Angus cactus to cleanse my liver and am looking into a naturopath to take homeopathy/Chinese medicine to further my cure.
I was wondering has anyone successfully reduced the size of their chocolate cysts naturally without surgery? Im on the surgery list and really would love not to go through it and deal with this holistically, I know it has taken years for our bodies to get sick and will take time and patience and cleansing to heal.
The gynaecologist thinks I will need surgery in the long run no matter what I do, but is happy to watch and wait. I'm 40 and fertility isn't an issue for me, as I have no partner and have accepted this is the way life has turned out. (Not easy at times).
Would love to hear any success stories or advice on this, I don't want to waste time when maybe surgery and then a strict regime is the better choice. I'm agonising over this decision as have been offered surgery on a short list if I so wish.
thanks for reading
sarah x
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terceltina
New Member
Happy, and now with 4 cats.
Posts: 43
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Post by terceltina on Sept 24, 2014 14:27:56 GMT -5
Hi Sarah,
I spent a long time agonizing over getting surgery. But after what was likely a ruptured cyst incident, where I was feverish, in incredible pain, and having trouble breathing due to what I believe was excess fluid in abdominal cavity putting pressure when I breathed, I decided to get surgery. (I have a bleeding disorder, so unfortunately, I have to be careful) And I'm glad I did get surgery. Not just because of the doctor having been able to firsthand see and remove the endo damage, but because it's clearly on my record now, as having been diagnosed. No longer can I be thrown out of clinics with the excuse of "it's just stress" when I report issues.
I took many probiotics before surgery, and upped my vitamins, so that my body was as healthy as possible. After surgery, I had a strict diet for a week, and more probiotics, and Serrapeptase after that. I don't feel like I compromised my health by the surgery, in fact, this week, I feel astonishingly pain free, energetic, and alive. I was skipping like a school girl yesterday. But, this is just me. I had a great doctor who I trusted, and was lucky to avoid complications. Everyone is unique.
In my experience, I was happy with surgery, and the results, and I am glad I took that route, rather than hormones, or waiting.
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Post by omaklackey on Sept 24, 2014 22:31:58 GMT -5
I really think that in the case of the Endometriomas it would be a lot better to have them removed and cleared out and then make those major holistic changes, diet etc. to keep from future issues. The endometriomas are bad news and will fill, pop, refill over and over and each time you run the risk of sigincant pain, and if it ruptures into the abdomninal cavity also risk for infection etc. I don't know that they will "go away" on there own. They will sometimes be absent form ultrasound for a while but then when they fill up again they will be back. Its a viscious little cycle.
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Post by sunkissedpr1ncs on Sept 29, 2014 8:20:31 GMT -5
I had bilateral chocolate cysts too, they were both about 8cm and I was in excruciating pain, so I obviously went ahead with the surgery. They only drained them since I'm young and still trying to get pregnant but 6 months later they were back again. They were only about an inch or so I think, so not too big to cause too much of a problem but I was starting to have some pain again. I read a blog on hoghugs.com of a lady who began the endo diet and started taking Serrapeptase and Nattokinase and her endo cysts shrank and she was able to get pregnant after trying for years!
I've been taking serrapeptase for the past few months and am so happy I did because I have been pain free!! I will have to go for an ultrasound soon to see how it is working on my cysts as well.
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Post by chibineko717 on Sept 29, 2014 15:29:19 GMT -5
I had really bad cysts for a long time. After a certain size, around 2 or 3 cm, they can only be treated by surgery. For my first couple of surgeries (crappy surgeons), the cysts were just drained. The cysts came back quickly and ruptured often.
Sometimes the cysts cannot be seen on scans since it can drain and refill based on your cycle. So it may look like they "went away," but the cyst wall/sack is still there so it will come back. If you decide to do a surgery, make sure that they excise the entire cyst so you would be less likely to get another cyst. The supplements will be a bigger help after the cysts are removed.
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mskim
New Member
Posts: 28
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Post by mskim on Sept 29, 2014 18:17:13 GMT -5
I have bilateral cysts - unsure if all are endometriomas (chocolate cysts) or not, but I definitely have one 4.5 cm on the left ovary…I'm supposed to have surgery sometime soon, but I suffer from anemia and they won't do he surgery until my hemoglobin is back were it needs to be. My DR will be removing my cyst - he likened it to cutting a bad spot out of an apple - trying to salvage as much of my ovary as he can, yet removing as much of the cyst as he can. I tried a few supplements - Endovan and vitex - but neither one really did too much for me. My main concern is the constant bleeding and pain…they couldn't relieve those symptoms, so I didn't pursue them any longer as they were quite expensive!
I hope your supplements are working well for you - I'd be interested to hear the results!
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