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Post by painttheseconds on Oct 5, 2010 21:58:34 GMT -5
I've read through this thread and it all sounds really encouraging. My Dr. suggested this as something I could do for pain management today and I'm going to do it. I'm somewhat uncomfortable about the idea, but I would much rather do this then freaking lupron my Dr. keeps trying to suggest to me. I'll update as I figure out more. Thanks for sharing ladies.
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Post by Karen on Oct 6, 2010 6:22:10 GMT -5
Oooh, good luck! For me, the internal work didn't do much at all, but all the external work did absolute wonders. I could feel adhesions just letting go, it was incredible!! I'm excited for you to check it out!!
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Post by Shannon Elizabeth on Oct 13, 2010 21:25:18 GMT -5
Began physical therapy today for lower back pain, headaches, and a hope of feeling a little better all around. We did some exercises with my hips and pelvic muscles along with my lower spine, and then worked on my neck. He decided we'll shoot for 2 sessions a week (45-60 mins each) and I have about 7 exercises to do on my own twice a day. He seems really nice and knowledgable. After my first session I'm a little sore, but its not like, pain, its like, oh my muscles are working the way they're supposed to be. I'm hopeful
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Post by pretty on Dec 5, 2010 15:03:26 GMT -5
I started "pelvic" PT on friday, it was really awesome. I expected her to head straight for my actual pelvis (yikes!) but we started out chatting, she had some really good questions, then she explained how the fascia of muscles is non-flexible and in people with endo and pelvic pain she starts in on the fascia first. She did some really painful things to some lower leg muscles then did the same to thigh muscles. As she predicted, I am now covered with bruises. It was incredibly painful!
Will keep posting. I'm curious to see what she does next time! so far, so good....
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Post by chicagogal2 on Dec 5, 2010 17:21:16 GMT -5
Pretty please keep us posted on how this goes - I'm also interested in looking into this as well for myself. I was hoping after the bladder infection treatment, the bacterial vaginitis and yeast treatments were done my rectal area discomfort would have resolved and it's still there a little - I'm wondering if it's pelvic muscle related. The chiro has been doing alot of work in adjusting my out of alignment pelvis and I'm noticing more lower back pain - not sure if they are related or not. I haven't done much today but I feel like I've been on my feet all day long and you know how the lower back will hurt - I've had that all day long = BOO!!!
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Post by omaklackey on Dec 5, 2010 19:40:06 GMT -5
I'm bummed... I found a therapist through a co-worker at the hospital and when I looked up my insurance information I found out they changed it and I can no longer get chiropractic or therapy through my insurance. Drat and double drat!
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Post by Karen on Dec 5, 2010 20:46:18 GMT -5
Good luck, Pretty - keep us posted!
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Post by pretty on Dec 6, 2010 14:15:37 GMT -5
I'm trying really hard to work with the info I got from my surgeon, which is that 1. My tolerance for pain is super high 2. My pelvic muscles are/have been in constant spasm for months and months possibly years, this was her explanation for my constipation and BM issues
all of this is hard since my GP is a very practical, slow lady who doesn't seem to agree about the pain issues and won't refill my narcotic meds. So I go to PT and have this totally awesome conversation with the therapist who TOTALLY gets me about the chronic pain combined with high pain threshhold and all the clenched up muscles in my poor body. so that's where she started explaining that the fascia which are like the package the muscle is in, are non-flexible and that endo attaches to fascia in the pelvis pulling at them thus making the fascia of the muscles in legs for example very tight and bound up. so she was running what felt like a razor blade all along those leg muscles and it hurt the very most of anything, ever, ever, ever! like fvcking excruciating!
What I liked about it: I am super suggestible and very easily influenced by cues. I was super glad she didn't tell me before hand what to expect. It was more like, she got to a certain spot on my calf and i yelped, and she sort of nodded and said most people with severe pelvic pain have also got pain right here too. That happened again when she got to my inner thigh muscles, I sort of squealed in pain and once again she was like, ok, yeah, this is another really painful spot. Thinking about it later I was glad she didn't tell me before to expect those pains in those spots, she more waited for my reactions. I like that becuase I don't ever want to feel like I reacted due to prior expectations, you know?
Anyhow this fascial release is pretty painful but I can see where releasing that pain will help me basically get back into my body, both feeling it and being inside it. I think a real side effect of the kind of long-term pain we get with endo is generally distancing ourselves from our pain and thus from our bodies. I'm just super happy to have this chance to get back in touch with mine.... I'll keep posting as I learn more. Hoping it takes a few weeks before she tries anything more internal, this is pretty intense now and she's only on my legs!
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Post by Karen on Dec 6, 2010 18:59:43 GMT -5
You get it, Pretty, you get it!! YAY!!! Now do you see why I rave about PPT? I know you're only one day in, but it's a chance to get your body to start responding how it should, not how endo makes it respond. Can't wait to see how you feel a few months from now.
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Post by chicagogal2 on Dec 6, 2010 20:23:45 GMT -5
I'm so excited to hear how this progresses!
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Post by JC on Dec 7, 2010 12:26:40 GMT -5
Whoa pretty cool experience! I'm excited to hear how it goes in the long term too!
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Post by painttheseconds on Jan 27, 2011 2:34:07 GMT -5
My new obgyn who I met with yesterday suggested physical therapy and I had my first appointment with my physical therapist today. I didn't expect to get a referral so quickly, but I'm glad I went. I can already tell a difference even though I am sore. He seems very knowledgeable and worked on the fascia first like pretty mentioned in her post. He said he could understand why I've been in so much pain since my pelvis is out of alignment. It's just so nice to be acknowledged and validated when it comes to my endo. I'm excited to see how things progress.
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Post by Karen on Jan 27, 2011 7:17:16 GMT -5
Good luck! For me, PPT was probably the second best thing I ever did for pain management. I hope you get lots of relief, too!
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Post by pretty on Jan 27, 2011 18:54:21 GMT -5
on PPT, I am not going to be able to go for a couple months becuase it is just too expensive! Last year when I started going my deductible was already met so they were 'free' but I went last week and holy sh1t! it was 249 dollars if on a treatment plan, or just 80 as a 'massage' but they said if I chose the cash massage appointments they would be just that, without being on the treatment plan and seeing the PT herself (she is awesome). Anyways was a little shocked at the cost so I'm just going to have to wait. There is no way I could afford to go even once a month. i do have a HSA account my work provides for meeting our super high deductible but now I have endo and I'm totally paranoid lol, need to save that for ER visits and etc...
I will however go as soon as I am able and I encourage you all to try it too! the 10 or sovisits I went to during dec were sooooo awesome and I am in way better touch with what's going on in there! great endo therapy.
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Post by Karen on Jan 27, 2011 19:02:09 GMT -5
Aw, man, sorry you have to stop for a bit! But glad you got some relief from it all. Amazing how much tension we carry in our bodies to handle all the stress that endo throws at us, huh? Hope you're able to find a way to go back again if you need some more relief in the future, but at least now you know the power of PPT!
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