Post by Karen on Jun 4, 2012 18:15:27 GMT -5
I really feel for you. I don't have a significant other - I've been dealing with this all myself - but when I was at my worst, I felt the same as you. Sad, weepy, too tired to do anything, and because my friends didn't get it, well, I didn't hang out with anyone much.
If you're in that much pain, I'd really encourage you to seek another form of treatment to try to get a handle on it. I think most of us live with some level of pain from time to time, but if it's unbearable or affecting our lives like that, we owe it to ourselves to try something else to get a better outcome.
I think another thing to consider might be counseling. It took endo for me to suck up my pride and go see one, but honestly, if it weren't for my therapist, I don't know who else I could talk to about all the intricate details of my medical issues. She's been a cheerleader when I'm feeling good, she's very good at gauging what's working and what isn't, and she's incredibly good at helping me sort out my emotions surrounding all this. If you aren't already seeing someone, I'd really recommend it - particularly one that deals with chronic health issues.
And lastly, have you talked to your boyfriend about all this - a real heart to heart about how you're feeling alone with all of this? Can you come up with a few suggestions of things you can do together - watch a movie, sit outside by a lake, go to a coffee shop? Things that don't take a lot of energy but both get you out of the rut. Admitting that your life is affected by a crappy disease is tough enough, but having to talk to someone else about it sucks even more. But, if he's as good of a guy as I sense he is, he'll come around. Perhaps it'd be helpful if he knew exactly how he could help you? Most people don't know what to do, so they just do nothing.
Endo sucks. There's no quick fix and it can reek havoc on our lives - BUT, there are things we can do to take back control of our lives and our relationships.
If you're in that much pain, I'd really encourage you to seek another form of treatment to try to get a handle on it. I think most of us live with some level of pain from time to time, but if it's unbearable or affecting our lives like that, we owe it to ourselves to try something else to get a better outcome.
I think another thing to consider might be counseling. It took endo for me to suck up my pride and go see one, but honestly, if it weren't for my therapist, I don't know who else I could talk to about all the intricate details of my medical issues. She's been a cheerleader when I'm feeling good, she's very good at gauging what's working and what isn't, and she's incredibly good at helping me sort out my emotions surrounding all this. If you aren't already seeing someone, I'd really recommend it - particularly one that deals with chronic health issues.
And lastly, have you talked to your boyfriend about all this - a real heart to heart about how you're feeling alone with all of this? Can you come up with a few suggestions of things you can do together - watch a movie, sit outside by a lake, go to a coffee shop? Things that don't take a lot of energy but both get you out of the rut. Admitting that your life is affected by a crappy disease is tough enough, but having to talk to someone else about it sucks even more. But, if he's as good of a guy as I sense he is, he'll come around. Perhaps it'd be helpful if he knew exactly how he could help you? Most people don't know what to do, so they just do nothing.
Endo sucks. There's no quick fix and it can reek havoc on our lives - BUT, there are things we can do to take back control of our lives and our relationships.