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Post by painttheseconds on Aug 12, 2011 22:23:19 GMT -5
My all time favorite which I've posted in the other thread is, but "you don't look sick." That's one of the top things that drives me crazy when I tell people I'm having a rough day. Well you look great. Ummm endo doesn't make me look like sh*t people. It doesn't grow on my face.
My other favorite was from my old OBGYN who did my surgery. " You don't need to be doing research." "You need to be listening to me." I shutter at where I would be if I just took all the advice she gave me without researching endo treatments first.
Even better some people have already heard this story, but my old physical therapist told me I brought endo on myself. His logic is that I never let go of old trauma's so that caused my endo. Really nice guy. *rolls eyes*
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Post by JC on Aug 14, 2011 8:35:30 GMT -5
I remember when I saw my dentist right after my lap and she always asks if anything has changed in my medical history, any surgeried etc. So I told her I had surgery for endometriosis and she replied with, "oh, you were actually having problems from that?"
no, I have surgery for fun! Lol seriously wtf?
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Post by 1234 on Aug 14, 2011 20:57:49 GMT -5
I'm with a lot of you all: "You look fine" and "Why don't you have a hysterectomy"
And my favorite, from my mother, "Well, you always did do things the hard way."
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Post by omaklackey on Aug 14, 2011 21:38:53 GMT -5
"aren't you better yet"
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Post by Karen on Aug 14, 2011 21:49:54 GMT -5
Oh, I thought you had surgery for that. Why are you still having problems?
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Post by danniv on Aug 15, 2011 2:24:00 GMT -5
I love when people see me clutching my tummy and going oh love that time of the month huh...i now respond with a luagh and state i wish i got pain one day a month.
my partner and i were having a joke the other day about exercise and how he was in so much pain after gym...i told him dont u dare complain about pain to me boy.
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Post by mollyfin on Aug 15, 2011 8:38:54 GMT -5
My husband approached me for sex once and I wasn't feeling it because at that time I was getting A LOT of pain during sex. He then said to me, "well your mouth doesn't have endometriosis." I can assure you ladies, he suffered my wrath for this comment. I think we can all stop trying, because I think this one's going to be impossible to top. I keep getting "Can't you go out yet??" Um, still have vaginal bleeding, my incision's still draining and I still can't eat without tremendous pain, walking's not much better, but SURE I can go out...wanna rent me a wheelchair, push me around and change my dressing every few hours? Yeah, I thought not.
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Post by 1234 on Aug 16, 2011 16:08:44 GMT -5
So I just got 3 "what not to say to an endo girl" statements in one blow, from a good friend.
I just got out of a meeting in this friend/colleague's office. She remarked that I looked tired. I said I was having a bad day. She said, why? I said, well you know I often have bad days. She said, Are you still in pain? I thought you had the surgery to fix that? (statement #1). I said, yes, but I'm still in pain a lot of the time--it's ok, it's just harder to deal with some days than others. She said, Why don't you remove your uterus (statement #2). We discussed this for a bit. Then she said, You know, you look really tired, maybe you have lupus (statement #3).
I didn't know what to say at that point. I changed the topic to her upcoming wedding.
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Post by Karen on Aug 16, 2011 19:16:48 GMT -5
Some people just don't get it.
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Post by omaklackey on Aug 16, 2011 19:21:38 GMT -5
I wanna blame all these rude comments on lack of education but I have explained endometriosis so many times to my family and those I thought were listening, turns out none of them were!! So my favorite (after I have explained for the fifteenth time what is going on) is the person who changes the subject... I'm so glad my life is so tedious for them to listen to.
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Post by 1234 on Aug 16, 2011 20:27:43 GMT -5
I am just so glad I had you all to complain to, who would understand. That's such a difference in my life from 7 months ago! Thank you, so much.
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Post by omaklackey on Aug 16, 2011 20:41:25 GMT -5
me too, Rustmyrtle!! having someone who gets what "not to say" is HUGE!
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Post by JC on Aug 16, 2011 21:36:09 GMT -5
People don't understand how this disease behaves. It's some "girl" problem. I wish they could all realize that this crap behaves just like cancer. They are abnormal cells that grow in the wrong place, invade tissues, and cause a tremendous amount of pain. When you tell people cancer, they understand, they say sorry, they are sympathetic. You say endometriosis and it's blown off. I'll tell you what. I've had both, and endo was MUCH worse but I get so much sympathy and understanding from a cancer I couldn't even feel.
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Post by omaklackey on Aug 16, 2011 22:42:17 GMT -5
HA, I always use those exact words, Endometriosis is just like Cancer, it can grow anywhere and I start listing some of the places it grows.
Another one that pisses me off: "you can't have endeometriosis there..." uh, yes actually I can you moron and if you only had a brain you would know that, not only CAN I have it there, but if your read the F*ckin operative report you would know I already do have it 'there'. Yup, Karla's in an angry mood today...
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Post by JC on Aug 17, 2011 6:17:32 GMT -5
Seriously, doctors would rather LOOK like they know what they are doing rather than admit they DON'T know something. I have a lot of respect for a doctor who can say, "I don't know." It shows that they are honest and won't just blow steam up your ass because their ego doesn't want to look wrong.
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