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Post by cherry on Jan 13, 2011 11:19:18 GMT -5
I originally learned from the best girls how to cope with it all! It took me so long to figure it out, and I never sucked it up, that would have made me go nuts. Every year something new crops up and I have to learn all over again, I don't think any of us has it down pat. I even believe I freak out more than most. Then I have to calm down, give myself a pat on the back for having endo and for getting this far and still waking up looking forward to the good things, cos they keep me going. There are a few times I have been openly distressed about the pain or effects of this disease, and each time it's just been that I couldn't feel brave about it any more. And that's ok, because then the people who you let see that, they're the ones who'll cuddle you or look after you and love you for the simple fact that you keep your chin up most other days. Gem we love you and right now you're up there in the list of the bravest creatures I know. You girls all are. Endo can kiss my bum.
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Post by katiev on Jan 13, 2011 11:35:14 GMT -5
I'm sorry to hear about your pain. I have been there done that and I agree that you cannot suck it up. I feel sometimes that maybe my pain threshold is low bc how is it that the pain hurts so much. The minute I second guess my husband tells me to stop thinking that way. He always worries that I will die or passout from the pain. He tells me all the time its real. Since this diet though I haven't had pain (touch wood). At work (if I could make it in) I always make sure that I have something to put my feet on. Something about my legs being higher or less pressure on my hips really helps. Just a little foot stool or the recycling box flipped over. Also, my doc told me to never wait until the pain gets really bad. The minute you feel pain coming on you should take your meds or do the TENS thing bc chances are you can stop it in its tracks or if the pain does come then it should be less than it would have been had you waited to take action. That has worked for me in the past too. My husband always tells me not to be a hero by taking the pain. Just take the meds early on and go from there. I hope you feel better!
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Post by gemstone on Jan 13, 2011 14:31:02 GMT -5
You guys!!! Cherry, you've got me in tears. Thank you so much. I have an announcement to make - I WILL NOT NOW OR EVER SUCK IT UP!!! I went to work today and stayed for the whole day. I was doubled over a lot of the day and had to do a lot of walking around and lifting (walking whilst in the sitting down position whilst trying not to be so no-one notices is quite hard!), but I did it - apart from some of the lifting as some of the girls (kindly) shouted at me to sit down! The tens machine seems to be a godsend!!! I've had it on most of the day and my back pain has been so much better, yay!!! I haven't eaten a lot as that puts me in horrendous pain but I did eat a few bits so that was good. I'm pretty proud of myself, I cried from the minute I woke up this morning until I got to work as the pain was so bad, and I broke down once in the day but I still managed to work and even have a few laughs when things were really funny - like my colleague falling into a bin! I also had a chat with my solicitor friend who was amazing. Gave me really good advice, told me the things they are likely to do and how to cope with the things they throw at me. He also said (and whilst I knew this it was good to hear from him), that I don't have to do anything in regards to my contract that I don't want to. They might make my life difficult but to hang in there as I am in the right. I am ill and THEY should be making reasonable efforts to accommodate me, not the other way around. So that has helped get my positive, fighting head back on. So now, like a lot of you, I'm sat here, in pain but with a different outlook from last night. Yes, I might cry when I hurt or when it all gets too much but that is OK!!! I am back to being positive and fighting this. You're all amazing and I love you - this is the place to be I'm going to say Endo can kiss my boobs, as it already got my bum!!!!!
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Post by gemstone on Jan 13, 2011 14:36:15 GMT -5
Oh and my new GP is actually the GP from the village I grew up in and he knows my family really well as my Dad sees him for his illness.
When I went to the doctors with the second episode of rectal bleeding in so much pain I was actually terrified and they turned me away with a prescription for antacids, my Dad called him and he said go straight to hospital. I did and every time he sees a member of my family he asks after me and for an update. My Dad says he's brilliant so I'm going to see him and hopefully he'll be in my corner.
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Post by pretty on Jan 13, 2011 14:39:04 GMT -5
YAY just what you need honey, somebody you trust who can help you get the support you need! LOVELY!
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Post by hellsbells on Jan 13, 2011 15:11:36 GMT -5
Oh, seriously, you can't underestimate the power of a good doc, even for just making you feel that little bit more positive. Love you to bits x
Cherry, I loved your speech :-)
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Post by Karen on Jan 13, 2011 18:21:05 GMT -5
Loved the speech, too, Cherry! VERY well said. I feel like I need to frame that somewhere!
Glad you've got a good mindset, Gem, that'll be the midset that'll get you some answers and some relief. If you don't have any fight in you, it's hard to fight, but if you at least have the right attitude, you can take pain and shove it!
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Post by cherry on Jan 13, 2011 19:21:59 GMT -5
That's such good news after the dingbat you've had for a GP! I'm so happy that you feel better. Every once in a while I manage an endo speech Helen can testify that I last made a series of speeches last week, entitled 'if the couch calls your name, obey'
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Post by hellsbells on Jan 14, 2011 11:25:20 GMT -5
And I obeyed!
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