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Post by JC on Mar 28, 2011 15:01:10 GMT -5
Brain fog has been SO bad the last three days. I wish I could just feel normal again.
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Post by gemstone on Mar 28, 2011 15:03:48 GMT -5
So I went to the hospital today for an appointment to try and hurry things along and have come away with a chemically induced menopause. I JUST WANT MY SCAN!!!! Sorry, I'm just all over the place at the moment. Was in tears today as was a shock but I've had the injection now so we'll see what happens. He told me that basically the lap waiting list is ridiculously long and I just have to wait. I'm tired of being tired and annoyed about this, I just want the scan and the lap. I'm going to look into moving hospitals as once I am on the lap waiting list it's going to be a 36 week wait as that is when the government actually intervene and 'force' the surgery. Blah, sh1tty day  |
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Post by hellsbells on Mar 28, 2011 17:03:05 GMT -5
Gem, you need to look into changing hospitals. I think I only waited around 12 weeks and I thought that was bad. Hugs x
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Post by Karen on Mar 28, 2011 17:18:42 GMT -5
Gem, that's AWFUL!!! Yes, please, switch docs! And I'm sorry about the meds. Fingers crossed it at least tides you over with few side effects.
And Jenaya, I can totally sympathize with you on the brain fog. Seriously, it sucks balls and I've never really found a good way out of it other than eating the best I can to take the edge off. I hope it passes soon and you get some clarity!! How are you sleeping?
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Post by cherry on Mar 28, 2011 17:55:01 GMT -5
Putting you on nasty-ass GnRHa without explaining what they were giving you or asking adequate questions is a big warning sign Gem. They haven't ascertained that you definitely have endo (not doubting you doll, just that's a big step to take with no proof) is so very unfair. They're stalling on the diagnosis and throwing what I think is a pretty harsh treatment at you. It's backward. Get on EPO or starflower oil to smooth it out a bit. First days are the worst and cause a flare, so take care ok. Why not the pill.
Get out of that clinic/consultant's care.
We're all behind you and I personally feel like coming down to Cardiff with that b*stard wood pigeon who hangs out on my roof, Benji, and taking a sh*t on your doctor's car bonnet. The wood pigeon would, not me. Him and all his woodland pals.
Only kidding.
No I'm not.
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Post by Karen on Mar 28, 2011 18:15:52 GMT -5
Very very very good points, Cherry! Kind of hard to treat someone when you don't know what it is...
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Post by cherry on Mar 28, 2011 20:02:42 GMT -5
I thought the car bonnet issue was very poignant myself.
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Post by gemstone on Mar 29, 2011 6:05:57 GMT -5
I'm behind the car bonnet issue.
I'm going to go to my GP and see if I can get referred to Bristol - I know one of the hospials there is supposed to be good. I have also been speaking to my friend's dad who is an anethetist and he has been speaking to his specialist friend, so I am looking into perhaps going to Cornwall for treatment as the waiting lists on the NHS aren't too bad. I know there's an issue as I'm in Wales so I don't know if I can do 'choose and book' which you can in England.
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cassia
Junior Member
Posts: 89
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Post by cassia on Mar 29, 2011 9:09:48 GMT -5
Hey gem sorry to hear. I'm so sick of these a**hole doctors who treat us like lab rats. Sure hope you get this resolved soon |
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Post by gemstone on Mar 29, 2011 14:13:47 GMT -5
Thank you Cassia  I feel a bit like a lab rat at the moment!! |
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Post by gemstone on Mar 31, 2011 6:20:45 GMT -5
Does anyone else have mid to upper back pain. I have had for a few months now, pain that is in my shoulders and down my back. It feels like I have a really achey back like I've been working in the garden bending etc, but of course I haven't! It's really distracting on top of my other pain. Just wondered if anyone else has anything similar and if it could be related to our endo? It's p1ssing me off as I don't want more pain!!!!
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Post by JC on Mar 31, 2011 6:29:21 GMT -5
Aw man I hope that's not referred pain from your abdomen. I have upper back pain and I think it's caused by my GI issues. Gallbladder issues can cause back pain in the shoulder blade area and mid back. My back pain isn't that bad; like it's not bad enough to need to take something for it. But it's always there like a dull ache. |
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Post by gemstone on Mar 31, 2011 6:36:23 GMT -5
I didn't think it would be referred pain, although I do occassionally have an ache under my ribs, like today for example it basically feels like my upper body is bruised becasue of the aching. I can deal with it and I take ibuprofen most days anyway, it's just damn annoying!!
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Post by JC on Mar 31, 2011 6:46:49 GMT -5
I was so sick yesterday. While on the way to Georgetown yesterday I started feeling a migraine coming on and by the time we got home it was full blown. I was really sick this time around. Then we had to go to our marriage counseling appointment at 8pm and I was literally puking into a trash bag on the way there. WTF?
But the good news is that it is gone now and didn't turn out to be another 2-3 day long nightmare. But it just set me back yet another day in my studying for that exam on Monday! UGH! Now I have to get that biopsy tomorrow. Taking that exam is looking more and more like an impossible feat but I'm still gonna try!
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Post by italialynn on Mar 31, 2011 7:23:28 GMT -5
I'm sorry, hun. There's nothing worse than knowing you have to study when you feel like sh*t.
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I feel a bit like a lab rat at the moment!!