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Post by semicolon on Feb 21, 2013 22:45:45 GMT -5
Omak- I was flipping back through this thread and you've really been dealing with SBO's off and on for over a year now. Have you flipped back through to see how your symptoms have been compared to the present? As you know, I always worry about you having a serious bowel obstruction leading to a more serious situation.
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Post by omaklackey on Feb 21, 2013 23:35:33 GMT -5
Yeah, My hubby and I have been having pretty serious discussions about all this. I have to finish school before I can do another surgery but I also worry that its going to progress before that happens. I'm going to start PT on Monday. I'm hopeful that will help. BUT for my husband to even admit that I need another surgery is a huge step and indicates that its getting more serious everyday. Dr. Mos is booking clear out to July now because of "No more doctor Redwine". These last three weeks things progressed though and not in a good way. UGH
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Post by semicolon on Feb 22, 2013 21:26:00 GMT -5
How long do you have left for school? You've done great so far, I don't know how you've kept it together with so much to deal with. Wow, I had no idea Dr. Mos was so busy, she is on my very very short list of folks I'd have surgery with.
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Post by chibineko717 on Feb 23, 2013 0:07:03 GMT -5
Maybe you can call Dr. Pai? I just saw her on President's day. I was able to get an appointment with her with only 2 weeks waiting time. Since your issue is a SBO, maybe she can do the surgery since she is a general surgeon. At least she knows how to get rid of endo. It seemed like everyone in the clinic shuffled me around everyone's nurse (Lynn and Dr. M's) before they sent me to Dr. Pai. It also seems like they want to spread out the case load from Dr. M since she is booked out so far. Dr. Pai took out my gallbladder and the endo on my diaphragm before she handed the robot over to Dr. M. I hope the PT helps with the adhesions. My PPT could not get to my adhesions since my scar tissue is too thick. I'm glad you were able to find a PT close to you.
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Post by omaklackey on Apr 17, 2013 12:07:44 GMT -5
OK, I have a freakin' VENT. My flexeral/cyclobenzaprine was supposed to be getting refilled. Called the pharmacist to find out if they had sent it to the wrong doctor and they had. Pharmacist calls back five minutes later. They called Dr. Mos and were told that I had to refill those scripts through my PCP. My PCP won't touch my case. She flat out told me at my last appointment to refill my asthma meds that "Your way out of my league, we will just let your specialist handle that". I tried to explain this to the receptionist at Dr. Mos who was taking the message for the RN. I'm going to a local OB/GYN for my hormones but when I started asking about PPT and Bladder instills, he just shook his head and said that I will have to go to Dr. Mos for that. Its been less than a year since I saw Dr. Mos. I went last June. I guess I will just have to try and figure out how to go again, somehow, around my crazy schedule. WHAT DO I DO IF SHE DECIDES NOT TO REFILL? My bladder instillation's come from her!! My doctor wouldn't have a clue how to get those, my only pain medication which is Tramadol I could live without since I only take it twice a day. But my Vistaril and my flexeral I can't do without. The flexeral helps with all the tweaking muscles due to the endo, and vistaril I take for my IC. I don't know what to do. This is so wrong. My PCP won't take care of me, and my specialist is telling me to go to my PCP? What the H*LL?
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Post by JC on Apr 22, 2013 11:54:42 GMT -5
Wow that's such crap that they are tossing you around. The person who prescribed it to you in the first place should be the one that refills it.
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Post by omaklackey on Apr 22, 2013 13:02:30 GMT -5
I have been so busy I didn't get a chance to update. Dr. Mosbrucker understands what is going on with the local doctors and as long as I make/have an appointment once a year or so she will be able to keep prescribing me. Since I know I have this bowel obstruction that keeps rearing its ugly head I'm going to schedule a pre-op appointment. I'm still hoping the PT is going to be able to loosen it but just in case I will be able to schedule another surgery which I may need. I was at work this last time my hernia popped. I got it tucked back in but wowser is that painful! I almost should have left it and gone to the ER so I could have someone document what the heck has been happening. All I could think was "I can't miss a shift!" so I went back to work.
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Post by omaklackey on Apr 25, 2013 17:05:33 GMT -5
I got in early due to a cancellation with Dr. Mosbrucker. I'm going May 2nd which is next week. I think I shoud make a list of everything symptom wise or something. I'm not sure quite what to do? I should ask my PT to get me some kind of update to take to. Its so quick I'm going to have to think fast on my feet. I have some appointments that need to be moved around as well and still have school to study for. Do I ask for another surgery or do I leave it up to her? I just don't know?
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Post by JC on May 3, 2013 9:04:40 GMT -5
How did your appointment go???
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Post by omaklackey on May 4, 2013 13:25:43 GMT -5
I have been trying to think about how to update what is going on right now. I had my appointment Wednesday. I brought along a note from my PT. After Dr. Mos read it she said that she agreed and they thought that horrible low back/pelvic pain is because my body won't hold a neutral pelvic position. My PT wants to take a break to allow my body to hold the changes. I haven't really noticed enough of a help to consider breaking so that's a little confusing. The doctor wants me to have another surgery, a sacrocolpoplexy and she will fix the cystocele/rectocele, break down any adhesions, and do botox on the Levator muscle that is so twitchy. Dr. Mos also wants me to get a colonoscopy prior to the surgery so they can fix any bowel issues at the same time (ie. if I need a bowel resection) and at my pre-op (which I have to go back for) she wants to do a urodynamic study to make sure my bladder is holding up and doesn't need a bladder sling to keep it up where it belongs (I have some issues with unexpected bladder leaks). I said that I do kegal but my PT said not to until we get those muscles relaxing when they are supposed to and Dr Mos said she agreed. I don't really know what to do now.
CONS: My hubby was quiet for two days and finally late last night started talking. The surgery requires mesh, the same mesh that has been in all the lawsuits regularly, which makes me really nervous! Dr. Mos says she does it differently. It would probably require another 6-8 week sex rest and I just don't know if we can handle that. I know this probably sounds stupid but I'm afraid if I have another surgery the anesthesia will cause me to lose half of my nursing information. I don’t know if I can get in prior to grad for the surgery (first week of June) or half to wait until July because Dr Mos. is out of the office from the end of June until July 10th. I’m taking the NCLEX as soon as I can but that could be as soon as the first of July. I’m hoping to be taking it by end of June if my professors get there paperwork together soon enough, which means that I will want to start working as soon as I get a job. However I can’t work if I’m on 6-8 week lifting restrictions for the sacrocolpoplexy. There is also an insurance issue. As soon as I start working I will lose my “good” insurance. (State insurance) My poor husband is almost done paying off all my bills. The hospital visit in Feb. last year he just paid off and the one from the surgery in 2011 is getting close to being paid off, so we just about get somewhere and we are going to hit the “reset” button and add more bills. And the most important one is fear, my hubby is scared that one of these surgeries I might not make it out of it.
PROS: My hubby and I both think doing the surgery now before it becomes an emergency (ie. Small bowel obstruction) is smarter. We both think doing it while I have “good insurance” might be a smart idea. And that’s as much as we have been able to think about as far as good stuff. I wish I could be a little more hopeful that it would actually fix something. That might make me more able to talk my hubby into another surgery. I’m kind of just not pushing it right now. I think he may make the decision for us at some point in time and I am too overwhelmed to make it myself. I’m really not excited about the mesh or bladder swing. I love being 36 and having to talk about things an old lady needs.
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Post by hellsbells on May 4, 2013 15:06:02 GMT -5
Sorry Karla. Not much I can add. Tough decision to make x
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Post by chibineko717 on May 4, 2013 20:37:54 GMT -5
Sorry you have to have another surgery, but I'm glad that it may help with the SBO. My old chiropractor had me stop exercises for a few weeks since he said that the muscles have to strengthen to keep the bones in alignment. Maybe that's why the PT made you stop for awhile. I'm still on state insurance too, but I still was not able to pay for much of the surgery since I have not worked for over a year. Thankfully, I had the surgery fully covered by the hospital. I just had to fill out the following forms and sent financial information(W-2, bank statement) and a letter explaining how endo and its recurrence has made it hard to work and causes a great financial burden. When the bills start coming the mail, you just have to call the Franciscan Regional Business Office to let them know you are waiting on financial aid approval. They also wrote off some of my bills from my 3 other surgeries. www.fhshealth.org/uploadedFiles/Patients_and_Visitors/St_Joseph_Medical_Center/Billing/2012%20%20FHS%20Cover%20Letter.pdfwww.fhshealth.org/uploadedFiles/Patients_and_Visitors/St_Joseph_Medical_Center/Billing/Exhibit%201%20-%20CHI%20Financial%20Assistance%20Application%20Form%2004%2020%2012.pdfI don't know much about bladder slings but it sounds like a scary decision. The Botox helped my spasms but I think it has worn off now. Dr. M said that she is also able to inject it in office, so I might get another round if it is okay with the trial I'm on. Good luck with all grad prep!
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Post by JC on May 5, 2013 2:49:49 GMT -5
Wow this is a lot to consider. I can totally see your predicament. I hope you guys can come to a decision and feel good about it. Thinking about you!
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Emily
Full Member
Posts: 148
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Post by Emily on May 5, 2013 18:57:09 GMT -5
Good luck, Omak, it's so hard when we have to weigh our options when it comes to our health- it is so complicated! I am glad that your husband is helping you with the decision.
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Post by omaklackey on May 13, 2013 0:23:19 GMT -5
So I have been sitting on this for a while and for once in my life I have left my hubby alone about all this. He at least knows that I am reluctant as well and that helps a lot. We know we are going to do it and I discussed with him that if this is supposed to happen the timing issues will sort themselves out and he agreed that was a good way to look at it. My GI doctor had to be gotten a hold of because Dr. mos wants a colonoscopy prior to surgery. That was a funny conversation. The GI MA kept saying "does she know you had one in 2010?" and I finally said "I'm not trying to get a colonoscopy just for fun, I have had two before and I really don't want another, how about I just give you my surgeons phone number". When the MA called back she was much more polite and they got me in May 30th here in Omak which is a huge blessing. Less overall time without the two hour travel to and two hours back from Wenatchee. Its a day my hubby works unfortunately though so I have to find a friend to drive me to and from home and stay with me. I don't like waiting alone. My brain goes a little nuts if I go by myself. Anyways... other than that no change. I am trying to concentrate on school and my preceptorship.
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