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Post by schernoff124 on Sept 2, 2008 22:55:49 GMT -5
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Post by rubyrose on Oct 19, 2009 22:00:42 GMT -5
Thank you for this. This is interesting. I can certainly see myelf in some of those descriptors. Why then does everything show "normal" on endocrinology tests? Hormones are so complex!
Ruby
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Post by hellsbells on Oct 20, 2009 11:34:23 GMT -5
Woweeee!!!!!!!!! That's like me to a T! Great info!
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Post by ouchy on Oct 20, 2009 13:52:34 GMT -5
This was a cool write-up!
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Post by omaklackey on Oct 20, 2009 16:47:26 GMT -5
very ineresting website thank you! It brings to mind again the fact that when someone has endo and does get pregnant and stays that way its like a big nine month rest for their body. I could have gladly stayed prego forever if it wasn't for the lousy delivery part! LOL Obviously our bodies are not doing the right thing where hormones are concerned. It makes me wonder if instead of trying to do BCs which mess it up even more we shouldn't all be on estrogen/premarin, progesterone etc..??
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Post by Karen on Oct 20, 2009 18:02:38 GMT -5
I KNEW there was some sort of link! Thanks for sharing!
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Post by JC on Nov 7, 2009 14:06:31 GMT -5
Wow this goes exactly with my autoimmune theory! BTW did you guys know there was a American Endometriosis Association? ? ? ? ? LOL! I didn't !
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Post by JC on Nov 7, 2009 14:11:07 GMT -5
I went into my school research data base and found the article mentioned titled" Differential Behavior Effects of Gonadal Steroids in Women And In Those Without Premenstrual Syndrome." It's a mouth full but I copied and pasted the abstract here:
OBJECTIVE: To determine whether depot leuprolide is effective in premenstrual syndrome (PMS) and whether symptom type or severity affects therapeutic or hormonal responses and the incidence of adverse events. METHODS: Twenty-five women who met strict diagnostic criteria for PMS completed a double-blind, placebo-controlled, 6-month crossover trial at a university medical center. Depot leuprolide (3.75 mg/month) or saline was administered intramuscularly for three consecutive treatment cycles. Efficacy, adverse events, and hormone concentrations were assessed at each visit. Repeated-measures analysis of variance was used to analyze continuous data, and ordinal and binary data were analyzed using nonparametric techniques. RESULTS: Depot leuprolide treatment was significantly more effective than placebo on all rating scales. Irritability, neurologic symptoms, breast tenderness, and fatigue were most responsive to treatment. Symptoms were reduced to follicular phase levels only in women without premenstrual depression. Those with moderate premenstrual depression improved but remained clinically symptomatic, whereas the group with severe premenstrual depression showed no improvement on any efficacy measure. Adverse events were lowest in those without premenstrual depression and highest in those with severe depression. Leuprolide suppressed estradiol and progesterone in most premenstrual depression groups but had varying effects on gonadotropins. CONCLUSIONS: Leuprolide treatment reduced both behavioral and physical symptoms and was well tolerated in the absence of severe premenstrual depression. Women should be evaluated for depression severity before receiving a GnRH agonist. The differential response to leuprolide suggests that it may possess diagnostic value in determining distinct subtypes of PMS.
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Post by JC on Nov 7, 2009 14:25:20 GMT -5
OMG this link is amazing! I feel like it describes me to a tee! And about the body hair.... dude... I'm so freakin hairy! But the thing that got me the most was when I had the IUD apparently I had too much progestestin in my body and I was having severe hot flashes and I lost a LOT of hair on my head. I was also having anxiety attacks. It all makes sense now! Once I got rid of that stupid IUD I was fine! CRAZY STUFF! I wanna go see this doctor!!
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Post by Karen on Nov 7, 2009 14:54:26 GMT -5
But the thing that got me the most was when I had the IUD apparently I had too much progestestin in my body and I was having severe hot flashes and I lost a LOT of hair on my head. Isn't it amazing when some of this all starts to make sense? I had severe problems with progestin in the IUD, too, but natural progesterone cream (so far) is just the opposite. There's a lot to be said about allergies to synthetic hormones. Read up on that, too - you'll see what I mean!
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Post by KSA on Nov 8, 2009 21:27:47 GMT -5
Dr. D is going to start me on the natural progesterone cream. I still have the ovaries and he said it should help my Endo from spreading. Jenaya it does go with the autoimmune theory! I keep wondering if my ANA panel is so high not because of Lupus but maybe Endo? I have mentioned that to Dr. Blocker my rhemutologist but you know how docs are they do not want to hear a gal like me trying to tell them what is wrong. He says NOWAY would Endo make my ANA levels that high. It makes sense to me but I am not a doctor and really rather dumb to all this medical stuff! What do you think Jenaya? Is it possible?
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Post by JC on Nov 9, 2009 8:33:00 GMT -5
Well ANA tests are used in conjunction with other tests to diagnose autoimmune disorders. So if endo is an autoimmune disorder then I could see why an elevated ANA level would correspond with endo. I guess since endo isn't considered an autoimmune disorder by doctors, I could see why he'd say there's no relation. But as we all see here, the autoimmune disorder seems to make complete freakin sense. Seriously, I know getting into medicine means continuing education for the rest of my life. WHY the hell do doctors think that everything they know coming out of med school is all they need to know?? Don't they freakin read and research??? I wonder if all our doctors did ANA tests on us endo girls if they'd find that we're all elevated. I wouldn't be surprised.
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Post by KSA on Nov 9, 2009 11:06:57 GMT -5
I would love it if all us Endo girls started asking for ANA tests and prove our theory. I only get my ANA levels checked for the suspected Lupus that I have but gosh it makes so much sense.
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Post by Susanne on Nov 9, 2009 14:40:38 GMT -5
Jenaya, is research also a part of the medicine degree? If so and when you are ready to start your research into the autoimmune aspect of endo, sign me up! I am so convinced that both hormones and auto-immune issues are involved. I just cannot prove it yet. Since february I work for the largest medical food company on the planet and we make medical nutrition for all sorts of diseases. For my job I learn more and more about the immune system in relation to different diseases. And getting more and more convinced there is a link. I cannot believe that this has not been researched in depth yet!
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Post by Karen on Nov 9, 2009 20:41:27 GMT -5
Since february I work for the largest medical food company on the planet and we make medical nutrition for all sorts of diseases. For my job I learn more and more about the immune system in relation to different diseases. And getting more and more convinced there is a link. I cannot believe that this has not been researched in depth yet! I'm a BIG believer in all of this! Honestly, taking whole food supplements has been THE best thing for me in treating my symptoms. Nutrition - the PROPER nutrition - is key in helping your body to heal and function properly. I'll get off my soap box now. Susanne - I'd love to hear more about what your company does. When you have a sec, perhaps it'd be a good post for the natural approaches board?
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