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Post by tfaith on Aug 21, 2008 14:15:52 GMT -5
i ask just because i think i may attempt it...and pray to God that i don't get hellacious pains like usual.
i was diagnosed with endo june of '07; they did a lap but didn't remove anything. it took me awhile to find a better doctor--i go to one an hour away from me now but i hope its worth the drive. i explained to him the troubles i had with my previous doc; he scheduled a lap and said anything that he found he would laser off. he also said he didn't see why i should be on continous hormones unless i was avoiding getting pregnant---and i also threw in the fact that i was on hormones for a year, and my endo still progressed to the next stage in that time frame.
as of today, it has been 21 days since i have had any birth control...and i am cramping but i am hoping that is just from the surgery still (had on aug 7th)
any thoughts?
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Post by ouchy on Aug 21, 2008 15:24:54 GMT -5
I felt TONNNNNS better w/out my continuous BCP's! I chalked up all pain to endo...but MOST of my pain wound up being from the BCP's! I bet you keep feeling better and better day-to-day. Period pain may still bite ass, but day-to-day will probs be way better!
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Post by tfaith on Aug 21, 2008 15:33:26 GMT -5
OH GOSH that is exactly what i wanted to hear i just keep getting that awful fear when you have flashbacks from the really, really painful episodes....i just don't ever want to be in that much pain again, and i think that is what i am really afraid of. i am not as moody and my boyfriend is def saying i should stay OFF the hormones and that i am nicer i will just keep high hopes that if the period pain is bad still my new doc will give me some meds that actually help out!!!
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Post by ouchy on Aug 21, 2008 16:06:19 GMT -5
Warning, though. A few months after I went off the bcp's, I had a REALLY painful period. I decided I was going to take one bcp to try to help w/ the cramps. It did help w/ the cramps, but since I only took one and..."skipped" the rest of the days, I ovulated and got pregnant, which led to a chemical pregnancy/very early miscarriage. If you DO decide to go back on them, if you skip pills/decide not to take the rest of the month's worth of pills, you COULD ovulate and get pregnant.
LOL! I was an idiot. I didn't consider myself "skipping" pills since I "wasn't" "ON" birth control by taking just one pill. LOL! And obviously, if you "skip" pills, you CAN get pregnant...which obviously means it makes you OVULATE. Don't know why my pea brain didn't think of that!
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Post by tfaith on Aug 26, 2008 8:48:11 GMT -5
oh man, that is good to know!!! But on another note, that is great that you were able to conceive still that is one thing i am always thinking about...if i wait too long to have a child will i be able to conceive still or what? one more question i did have....do you remember how soon you had your first period after you got off the bcp's? i have been off mine for 26 days now, having cramps still, but not sure when to expect the actual period. i am trying to plan for it so i know to call my doctor ahead of time and try to get some helpful meds!
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Post by ouchy on Aug 26, 2008 13:31:38 GMT -5
^I never worried about not being able to conceive. MOST women w/ endo ARE fertile. My periods were never regular. Sorry I'm not of more help.
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Post by tracey31 on Mar 23, 2009 10:02:16 GMT -5
hey, i am not on any hormones since november 08, i was diagnoised on feb 09, my gyne took me off birth control for another problem. my moods are still all over the place and my periods very heavy and painful,but some of my symptoms are dissapearing so being off them seems to suit me better. its been 4 months and my my period are not getting any lighter ive a follow up appt next week so waiting see what my options are, going back on birth control isnt an option because of another condition, i am hoping that if i am put on these injections it will give some relief. hope you feel better soon
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Post by Karen on Apr 25, 2009 9:49:55 GMT -5
I've been thinking about this a lot lately. I've been on BC for 10+ years. Took me about 5 different BC before I found Nuvaring and liked it, meaning I didn't feel so crazy on it. I had been on that since 2004. In January, I switched to Mirena. Like it for the most part, I think, but think that my greasy skin/hair/acne for a week out of the month and weight gain are side effects. I'm also feeling like my moods are all over the place. I certainly know that my depression gets much worse when I'm in a lot of pain - that only seems to make sense - but when I'm not in a lot of pain, I feel like I'm having wild swings of feeling totally in control to totally helpless.
I know I've been under a lot of stress lately in a lot of different areas of my life (work, $, personal relationships, health) and I'm having a hard time coping with it all at once, but I'm starting to think that perhaps my coping mechanisms might improve a bit if I go off BC all together. I'm not thinking it would 'cure' me or anything, perhaps might just get me back into a bit more balance.
I haven't considered any sort of antidepressants because I know I'm super sensitive to side effects - if there's a side effect, I'm sure I'll get it. Which leads me to think that perhaps I should have Mirena removed first and see if I can stand to be around myself. Geesh, some days I just feel so pathetic! I'm worried, though, that the relief in pain that I've been having more days lately is due to Mirena regulating things, not diet change/supplements.
Some days, it seems totally obvious that I should try things without any hormones, but other days I think it's stupid to do that. Anyone feel a whole lot better EMOTIONALLY off BC?
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Post by Amanda on Apr 27, 2009 21:46:43 GMT -5
I've really been considering coming off of BCPs. I recently learned that all the "issues" I've been having are probably caused from Yaz. I hate the idea of taking medication, of any kind and I think our bodies aren't designed to be pumped full of synthetic drugs.
Plus, I think my husband and I are considering TTC in the near future so I want to be off the BCPs so that my body can adjust or whatnot.
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abornich
Full Member
Jesus Loves You
Posts: 154
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Post by abornich on May 5, 2009 15:44:27 GMT -5
I would love to get off birth control, but I am too chicken that I will end up back in the hospital with another laparoscopy due to severe pain spells. My doc has wanted me to try the depo provera shot, but I'm too chicken to do that as well. I don't know what to do!
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Post by Karen on May 5, 2009 16:21:03 GMT -5
I'm going off BC tomorrow! Have an appointment to have Mirena removed. I'm nervous that the pain will get worse, but I feel I have a pretty good handle on it with diet/supplements. If anything, at least this way I'll know if the BC helps or not!
I'm most curious to see if I feel BETTER off BC! Since my pain seems to be much better controlled when I eat less carbs/sugars, I'm assuming my body creates too much insulin to deal with sugars/carbs. I've read progesterone only BC can make insulin issues worse. So, here's seeing if NO BC = less insulin my body creates = less pain? It's a shot in the dark, but worth it if I can get rid of greasy skin/zits/crazy emotions/weight!!
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cj
Full Member
Posts: 103
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Post by cj on May 5, 2009 16:35:59 GMT -5
Best of luck Olsenka. I hope it works out for you. I have to go back to the Gyne in a few weeks to let him know what treatment I will have, but the more I think about it the more I dont want any. I started acupuncture today and am also going to try chinese herbs. Going to try and stay off the hormones as long as possible. Let us know how you get on.
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Post by Karen on Jun 1, 2009 18:14:02 GMT -5
Ok, so Mirena has been out for almost a month now. Had some cramping/spotting the first week, and more cramping the second week and was really nervous that I made the wrong decision, but have since felt GREAT! First thing I noticed? I'm not an emotional wreck anymore! I feel like I can flow with the ups and downs of daily life without breaking into tears at the drop of a hat. HUGE difference in just that area alone.
Second thing I've noticed? My pain has been really low. Not gone, but really low most days. Still find that certain foods trigger it more, but so far, it's much more tolerable. Still following the IR diet, but not as religiously as I should.
Third thing I've noticed is that my rolls are being replaced by my girlie curves. Yay! I haven't really lost any weight, but I can seriously take off 3 pairs of jeans now without unbuttoning them! I'm the poster-child for the pear shaped body and jeans are always the tightest in my thighs. I caught a glimpse of myself in the mirror last week and I was surprised of the change I could see. Bras are fitting looser, pants are looser, don't feel like I'm swollen and bloated all the time.
I have a prescription for Nuvaring in case I want to go back on BC for pregnancy prevention at some point, but I'm going to try out this whole BC-free thing for as long as I can!
Haven't gotten my first period since so I don't know how that'll go, but fingers are crossed!
CJ - how have acupuncture/herbs been going for you??
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Post by JC on Jun 29, 2009 9:43:40 GMT -5
I swear when I had that mirena it totally wrecked my life. I felt horrific. I was having insane anxiety attacks and hot flashes. I was seriously losing my mind. It was at that time that I had a break down and went to get anti-depressants and anti-anxiety pills. At some point I said, this is so stupid and then went off the pills. I tolerated that stupid mirena for 9 months with the most horrible pains imaginable. It finally ended up getting infected which was a blessing in disguise cause when they removed it I was magically my old self again. I heard later that the mirena is not safe for women who haven't had children. I hate the Mirena and would never recommend it to anyone.
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Post by Kitty on Jun 29, 2009 17:23:40 GMT -5
I was put on BC when I was 17 because of a period that lasted 2-3 weeks. I would get a sharp twinge of pain by my pubic bone, that would randomly come only 2-3 times a year. I finally got off the pill in when i was 21 or 22 and my hormones were outta control with my face being super oily. But i continued to stay off them because i didn't feel like me when i was on them. The endo pain then got more and more intense. I never ever had pain like this before so i completely blame BC (realistic? i dunno but i do). I've had surgery, but the doctor who did it wasnt very good, and i got my pain back 6 months later. I'm currently still not on pain meds and still in horrible pain every month during period and ovulation time... so i just have a week or maybe more without pain....
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