monira
Full Member
Life is always exploring something new.
Posts: 117
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Post by monira on Feb 22, 2010 21:48:29 GMT -5
Hi team, wondering if injections required in IVF process might brings back endo again or not. Right now, I've only my right ovary and tube along with uterus to work with IVF( My obgyn said she didn't find any more endo there now while doing the surgery). I'll have followup meeting with her comming March 24th. Not sure if I am missing any critical question I should ask her...Any suggestions?
Anybody's endo pain came back while doing IVF? Any suggestion here?
Thanks,
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Post by sequin on Jun 10, 2010 19:08:57 GMT -5
Well, I don't know what I did to be so lucky, but we tried IVF again and it worked again on the first try. (My original story is on page 3.) I reread what I wrote and for the most part, everything was the same, with a few changes here and there. We started in mid-January. (I had called the fertility clinic the previous fall and asked how much time was needed between stopping breastfeeding and starting IVF. They said 30 to 45 days. Luckily, my daughter weaned herself in early December, so that worked out well.)
1. Our insurance didn't cover much this time around at all (my husband has a different job than the first time we did it.) We went ahead and did it anyway. I felt like this was a question that needed to be answered.
2. They did give me a printed out calendar listing what would happen when... and then I freakishly and randomly ovulated at the end of January, giving me a two week cycle. So that pushed everything back a couple of weeks.
3. My dr. skipped the Pill this time. He said that because of my low number of eggs produced last time, he didn't want to suppress my ovaries any more than necessary.
4. This time, for whatever reason, the Lupron messed me up. I was cold all the time, cranky as hell, and my very bones ached. I did not like it (neither did my husband or friends, for that matter.)
5. I only had to do the three tough injections for 8 days this time. That was nice.
6. This time they got 8 eggs and 5 of them fertilized. Three of them stopped at 4 cells, but two developed to 8 cells, so they were our biggest hope...
7. ...and then I was shocked when both of them implanted. Until then, I'd always imagined twins and thought, 'Oh, how cute, wouldn't that be great?' But when actually faced with the possibility of twins (actually twins plus a toddler), I was scared out of my mind. The first ultrasound showed one good sac and then one that seemed a little off, but the dr. wasn't sure if it truly was off, or if it was just in a bad position (kind of hidden behind the other one.) The second ultrasound showed that the one good one was nice and big and had a strong heartbeat, but the other one was much smaller (about 1/4 of the size) and had a weaker, irregular heartbeat. The dr. felt that the smaller one would probably not make it, but if it did, I would have to have CVS testing to make sure it didn't have any serious health issues.
The third ultrasound (and final one at the fertility clinic) showed only one embryo. The other placenta was still there, but it appeared to be disintegrating, and there was no movement or heartbeat in that one at all. I don't know when it happened. The dr. had said that I might have some spotting when the placenta detached, but I never did. I felt kind of sad about it. I didn't want to have twins, but it was sad that that one embryo tried but didn't make it. That was about 30 days after conception, so if this had been a natural pregnancy, I probably wouldn't even have ever known there were two.
I just entered my second trimester. My most recent ultrasound showed a small cyst in the placenta that my ob/gyn wants me to get checked out by a specialist next month (she doesn't seem too concerned.) It also showed a strong likelihood that this is a boy. The ultrasound hit a particular angle, my ob/gyn asked me if I wanted to know the sex, and I said, "I think I already do." It's too early to confirm, but I don't know what else that thing we saw could have been. Not entirely sure how I feel about a boy - we already have a girl, so we have all the girl clothes and stuff - but last time it took me a couple of months to adjust to the idea of a girl, so I think I'm just slow.
My ob/gyn is encouraging me to have another c-section. Last time I pushed for 3 hours and needed an emergency c-section. I'm disappointed, but I see her point: my daughter was a month early, and small (5 lbs, 11 oz), and never made it through my pelvic opening. My ob/gyn believes that my pelvic opening is simply too small and that it wouldn't ever happen. (This is a surprise to me - I'm from good, sturdy peasant folk and the thought that anything in my lower half is too small is a foreign concept to me.)
So, yeah. I'm still in shock in a lot of ways. I know so many women who tried IVF and it didn't work for them. I feel very lucky and dumbfounded about it. This is it for me, though: I never wanted more than two kids anyway. (Which is good, given that I'll be 38 at the end of the year - not old, but hardly prime reproduction years.) Fingers crossed that everything continues to go well.
And best wishes to anyone who decides to try IVF!
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Post by Karen on Jun 10, 2010 21:44:46 GMT -5
CONGRATS!!!! I'm sorry for your loss as well.
I hope things continue to go well - do keep us posted!
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KNH
New Member
Posts: 49
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Post by KNH on Mar 16, 2011 5:31:36 GMT -5
Saw the fertility specialist today who agreed that IVF is the best course of action after having tried on our own for almost 2 years (and my endo pain is getting worse so we want to speed up the process).
Now just waiting on test results to see if we should be doing IVF or ICSI.
Any helpful info on what I should expect, or what kinds of questions I should have ready for the next time I see the docs?
Thanks
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Post by ouchy2 on Mar 16, 2011 10:17:43 GMT -5
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Post by dotrat14 on Apr 20, 2011 12:46:50 GMT -5
I have stage 4 endo diagnosed by lap 11 years ago. Got married later in life after meeting my wonderful husband. We tried on our own for 2 years. Just finished our 3rd try of IVF last week, big fat negative. I am going to be 42 years old this year and freaking out.
I don't know why but after our last negative last week it has occured to me that maybe my endometriosis is going to play more of a part in my fertility than I thought. I really thought that if I just did IVF it would work. I have been told that my eggs are immature and I am wondering if it really is from the endo.
We have no children. I never really thought the endo would be a problem for me other than the typical bloating, pain, GI problems, etc but now I am in shock that it never occured to me than even with IVF that it was not going to work. My husband is freaking out with the thought of spending $25,000 for donor egg with no guarantee. I am trying to weigh all my options with my age looming over my head. I really want a child but don't want to be 48 and pregnant. My FSH has been good so I am lucky. I am from MA which pays for IVF and now live in AZ. What is that telling me!! I had no idea when I left MA that my fertility would be a problem. Crazy that in this last week I have thought about trying to find a job there and move back.
I am just so frustrated - do IVF again?, Donor egg?, give up?, do all the natural stuff (accupuncture which I did for the past 4 months, herbs, extreme diet) and wish for the best? I feel like I really don't have the time to just wing it.
Sorry to be such a debbie downer.
To anyone that has not done IVF - the meds are easy, hurt a little bit but who cares if you are trying to have a baby. The progesterone is the worst shot, hurts for MONTHS after you stop and the deposits are there for quite a while but again, so what, there is a goal you are trying to achieve. I try to think "no pain no gain".
Usually the specialist decided if you need ICSI, I would do it if you are older. But again the endo makes the eggs unhappy so I think ICSI is a good idea.
Good luck to all who are in the process!
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Post by dotrat14 on Apr 20, 2011 15:00:11 GMT -5
Hi chicagogal2!
I started accupunture in 12/10 until last week. I loved it. I also have been doing fertlity meditation cd every evening since 12/10. It was so frustrating that I have been in such a great place. My life is great. Love my husband. And it still didn't work!! What else can I do? I have no idea. You sound so positive and I wish I could be where you are. You think I would have come to terms with it since I have spent all this money out of pocket and still nothing. I called my accupunturist and told him about the BFN. I told him I think I want to go the all natural route. Funny how the diet is exactly the same for endo. Must be an inflammation thing. He also wants to start me on herbs. My husband hearing this is freaked that I am going to obsess about it all. I am so wanting my mind to be in the "if it happens it happens and if it doesn't it doesn't" mindframe. My life is good and I am happy and for the most part healthy. I wish right now I could be ok with that right now. I guess I am going through a mourning period. Hoping to snap out of it
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Post by chicagogal2 on Apr 20, 2011 15:19:55 GMT -5
Hang in there. I'm on the same rollercoaster ride of emotions as you are! Keep positive!
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Post by pretty on Apr 20, 2011 15:20:21 GMT -5
Wow so they are doing the same exact diet for TTC as the endo diet. GOod I knew I was doing this for a reason! awesome, more reason to keep on it solid. Thanks lady! PS I'm so sorry you're feeling so low. Believe me we understand. have you read Taking Charge of your fertility? You can go online to their website www.tcoyf.com and get some info but i highly recommend that book. I temp daily and it really helps my mindset. also will help once I do get pregnant (wish, wish!) to know when exactly to expect the baby! I always feel more empowered with more information. The other book you want to buy and read through is the Endometriosis: The Complete Reference for Taking Charge of Your Health by Mary Lou Ballweg & The Endometriosis Association. I have been reminding people that seriously, 40 bucks for a book like that with SO MUCH INFO is just what you need to learn enough about endo to beat it! Running about from doctor to doctor without taking the time to educate yourself = waste of time and money in my opinion... knowledge IS power! x Pretty
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Post by dotrat14 on Apr 20, 2011 15:28:47 GMT -5
Pretty - thank you for the information! I will look into both of those. I agree that knowledge is power. I am just trying to get through this. I hate feeling sad. I do feel like I will have a baby some day. Just trying to get to the point where I can do the best I can and let it go. Again, maybe I will not have a baby and that needs to be ok also. Trying to find the balance.
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Post by pretty on Apr 20, 2011 15:31:27 GMT -5
I am so right there with you. I'm almost 38, my husband too, and he has serious health issues too... it's just one of those life experiences that wraps up your whole brain lol. I can't stop thinking about babies! but I agree if it's not gonna happen, I need to let that be ok, but it's not gonna stop me from trying.... x
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Post by dotrat14 on Apr 20, 2011 16:23:04 GMT -5
So well said! I feel the same, I do need it to be ok but don't want to stop trying. I watched Parenthood last night on TV which I love but cried and swore through the whole thing. All about babies and family and grandparents dreaming of grandchildren. All while I am yelling at the TV "Thanks alot!! EVERYONE is having babies and getting pregnant, EVEN on TV!!" and my husband is looking at me like I am crazy and trying to be supportive at the same time.
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Post by Karen on Apr 20, 2011 18:32:19 GMT -5
I just watched that Parenthood (love that show) and cried, too! Zeke's speech was fab. Ok, back to the topic at hand... Pretty had some pretty awesome advice. If you've been TTC and haven't read TCOYF, you're going to kick yourself if you don't know the info in that book! I'm a big fan of the other book, too, as you can tell from my signature. TCOYF looks like a ginormous book but it's actually a quick read and some chapters you can skim or skip completely based on your preferred outcome (achieving or preventing pregnancy)! I'm not TTC or going through IVF but thought I'd post my encouragement!
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Post by dotrat14 on Apr 21, 2011 18:32:47 GMT -5
I have tomorrow off of work so I am going to go to TCOYF, that you all for your advise! Will have to go to the bookstore. Went to B&N last weekend and was supprised that they did not have much. I will go to a larger one.
Have been doing OK today, not cried once! I started reading The Infertility Cure. Alot of it rings true. Thought about going to one of her retreats, $1500!!! I almost fell off my chair. I love her (Randine Lewis) CD's on meditation and fertility, she also has an IVF medication CD which is great. But the cost of the retreat!!! WOW! My husband and I are going to sit down this weekend to discuss what we think we need to do/or not to do next. Hope we are on the same page. Afraid he will do whatever I want but be upset later.
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Post by dotrat14 on Apr 21, 2011 23:40:31 GMT -5
It is a great idea. My husband LOVES lists so he will be all for it! It is hard to REALLY analyze the whole thing logically when so much of it is emotional and not logical. Including feelings in the list is something that seems so obvious but I wouldn't have thought of that so thankyou for mentioning that. Last night I saw a woman with an 8 year old, 6 year old and a newborn. She seemed stressed and no husband around, she dropped the babys jacket and I brought it over to her. I hate to say this but for a second seeing her frazzeled and jugggling 3 children I thought to myself that I would rather be me than her. Its horrible but it made me feel better.
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