nina
New Member
Posts: 8
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Post by nina on Nov 23, 2005 10:19:39 GMT -5
:)Thanks guys for your support. I'll keep you updated. Its hard not to worry when I came in constant pain each day..but will do my best. Happy holidays to you all
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Post by FrannieLand on Jan 28, 2006 3:59:58 GMT -5
UPDATE: I had my lap in April of 2005 (results posted previously in this thread). In October, I started having mild discomfort again and now I am moderate and sometimes severe pain. I felt so good after the lap, I want to have it again before the pain becomes severe all the time again. My doctor doesn't want to. He wants to put me on Lupron instead. The surgery didn't scare me at all but I am terrified of the "less intrusive" Lupron!
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Post by lynette on Jan 28, 2006 21:41:07 GMT -5
I had good results the first 6 months on monthly injections. I later tried the 3 month injection and was in constant pain. My next door also had problems with the 3 month, and my friend is having problems with the 3 month injection. I would make sure to check your alternatives and make sure to get a second opinion. I just got home from hysterectomy, and even though that is sore, it is a new pain, that I much prefer to the Endo. Good luck Lynette
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Post by erzulie on Jan 29, 2006 10:47:24 GMT -5
FrannieLand, I think you're right to be scared of Lupron. I won't try it either. However, I don't think getting a laparoscopy every few months for the rest of your life sounds like fun either! I had a laparoscopy for the first time a month ago, and I ahven't experienced any relief at all. I'm in constant pain just like I was before. It's like nothing even happened. What I want to do is travel to an endometriosis specialist. Surgeons who specialize in this disease know how to do a technique called excision, which is waaaaay better than the old-fashioned laser. Instead of burning away the endometriosis, they cut it out and they get it roots and all. Because they are specially trained, they know how to get it even when it's in a difficult spot. I have heard from people who have had this done who feel better for five or more years afterwards. Sometimes, it doesn't come back at all! The problem with burning is that the roots are left behind, so it can grow back pretty fast. Since surgeries cause scar tissue and are generally unpleasant, I've decided I'm not going to do it again until I can get it done right. As far as I can tell, excision is the only thing that can provide long-term relief.
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avonp
Junior Member
My chico
Posts: 62
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Post by avonp on Feb 2, 2006 8:51:26 GMT -5
here a Dr. that practices excision. this Dr. has a center to treat only women who have endo. www.centerforendo.com/I'm thinking of going to. Pascale
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Post by Lesli on Mar 7, 2006 8:13:23 GMT -5
Hi, I'm scheduled for tomorrow, I have three kids, so it's nearly impossible to be totally virus free most of the time. I got a runny nose and sore throat yesterday. My pamphlet says it's up to the doc whether you can go through with surgery. Has anyone else had a cold and had a lap? Does it matter if you are coming down with a cold(no coughs) prior to surgery?
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Post by lynette on Mar 7, 2006 19:16:54 GMT -5
Each doctor is different. I was able to have a hysterectomy, while I had a mild cold. I only had the runny nose and a slight tingle in my throat. I would call and ask your doctor, though. Good luck Lynette
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Post by Lesli on Mar 10, 2006 17:05:48 GMT -5
Hi, Recovering from surgery now. All went well, doc says I have mild endo on the pelvic wall, I am to see him in a few weeks to talk about treatment. Anyone else have the same diagnosis? Thanks!
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Post by lynette on Mar 10, 2006 23:08:56 GMT -5
That is what I had this final time, but my solution should be complete. I had a total hysterectomy and removed both ovaries. Congratulations on getting the lap done. You will feel so much better. Hopefully they are able to treat you to where you won't have to deal with pain. Good luck. Lynette
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Post by ouchy on Mar 10, 2006 23:30:39 GMT -5
Hi, Lesli! I had the same diagnosis. Mild endo, but on the back of my uterus, sigmoid colon, appendix, cecum, intestines, and a few other places--ligaments and stuff and tons of what the doc. called "weird scar tissue."
Glad it wasn't on your ovaries or tubes! It's wild how it's not the amount of the endo that causes the intesnsity of pain, but rather the location of the implants. Best wishes! ~ouchy
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Post by Katie on Mar 14, 2006 13:55:34 GMT -5
Hello! Does anyone know anything about excision??? Any info would be greatly appreciated, especially if anyone knows of good docs in Canada that do it. Thanks!
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Post by Lesli on Apr 13, 2006 17:45:46 GMT -5
Hi, Well, had my post-op lap follow-up with the GYN. He said I have mild endo on the pelvic floor, behind the uterus(in two different spots) and on the colon. He also said I have a condition where the uterus wall is thickened (could be due to having three children, or other cause). He is giving me the following choices for treatment;(1) to continue my pain meds and deal with it,(2) go on the pill to control it(3) go on a drug to create menapause(4)hysterecomy. I think I'll probably go with the pill, since the pain meds aren't helping much anymore, and my PMS moodiness is getting worse and fatigue as well. Anyone else tried the pill to help with Endo? Thanks for the support all! Lesli
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louise
Junior Member
looby lou baby susprise
Posts: 70
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Post by louise on Jul 27, 2006 15:13:55 GMT -5
hi can anyone answer my questions, im feeling alot better just lately but do i still need to have my op, (a clear out) i want to try for a baby, i havent taken the pill since january but i wondered if i should just skip the op and keep trying or will the op help me, i dont want any unneccassary sugery if im feeling better well slighty less pain anyway, i havent had a date yet im still waiting, ive just come off the faulse menopause (about 4 weeks ago) and wondered how long it takes for my body to get back to normal, i must be the only woman who is wishing for her period, it would mean that my body is working again, any advice would be great. x
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Post by ouchy on Jul 27, 2006 15:28:28 GMT -5
Hi, Louise! I spent about 5 years in a false menopause (taking pills continuously). I can say that once I quit the synthetic hormones, I felt sooooo much better! Sex has even become about 95% less painful! Now, about 5 months off of the pill, my body has had quite a bit of time to "recover." My fingernails are looking stronger, my hair is healthier, and my face doesn't appear as old (I aged quickly while on the pill). The only thing now that I really realize is that when ovulation happens or I have fluctuation in hormones, I have a vaginal stinging sensation for a couple days. It started out a lot worse right after I quit the pills, and as my fluids have become thinner and more natural the longer I am off of the pill, the less I notice it. The first couple months off of the pill, my egg-white cervical mucus (like with ovulation) was a weird viscosity and just totally weird! Now, however, my fluids are almost back to normal. I can say that it has been a process of getting back to normal, and I never want to take synthetic hormones ever again! (Sorry for too much info, but you probably want to know stuff like that to be prepared, in case it happens to you, too!) Good luck with having a baby My fingers are crossed for you!!!
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Post by ouchy on Jul 27, 2006 15:34:21 GMT -5
I totally missed your other question in your post. Sorry.
I think that a lap might help you to become pregnant, probably if your ovaries and tubes are out of proper alignment due to endo pulling them out of alignment and preventing an egg from reaching the tubes. Also, they've done studies that just having a lap, regardless of whether or not any endo is found, somehow gives like a 9-12 month window of increased fertility, but there is no reason/basis for this--it just happens. Weird, huh!
You might discuss w/ your doc. whether or not now is an important time for a lap. My doc. pretty much told me that if I'm not in incredible pain, then there's not much of a reason to have another one, since my endo was mild to begin with (Mine is not that aggressive, either.). Did you have a lot of endometriosis at your last lap? All of those factors will probably be taken in to account.
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