tammy
New Member
Posts: 10
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Post by tammy on Apr 11, 2012 16:07:35 GMT -5
Hi All I am new to this message board and being going through some of the various threads today which contain incredibly useful information!! I had a lap and hysteroscopy 3 weeks ago and still recovering from both. I was diagnosed with endo which was treated as well as had a mirena coil fitted it. However my recovery has been hampered due to a post-surgical infection, virus (blooming hospital virus ) and now managed to get bronchitis. The bleeding was constant after the surgeries although now it has stopped as the doc has increased my dose of mirena. However the endo pain is still fairly bad and I suffer from a lot of fatigue. Do you guys have any advice on how to combat the fatigue linked to endo? Also did you guys suffer from low moods after your surgeries? My moods are quite low and the doctor says it is due to the Provera and my post-surgical complications. Would love hearing about how you guys managed to get back to your usual moods after the surgery.
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Post by loveshoes on Apr 11, 2012 19:44:49 GMT -5
HI Tammy! Welcome! I haven't had a surgery in 10 years so I'm sorry I'm not much help, just wanted to say hello!
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Post by Karen on Apr 11, 2012 21:33:51 GMT -5
I have to admit, I really struggled with the fatigue and low moods for a long time after my lap. I still do to some degree, though not nearly to the extent I did at my worst (at least with the moods - I have other things going on still contributing to the fatigue). For me, I contributed the worst of it to a. the anesthesia / recovery, b. the pain meds/weaning off them, c. not getting any pain relief from my lap and d. hormonal BC. Any one of those things can wear someone down, but when hit with all at once, man, it really sucks. Throwing another set of illnesses on top of everything can really complicate things, too, so I feel for you!
Unfortunately, there's no 'quick fix', but here are a few things that helped me at least cope with parts of it. Essentially what it came down to, though, was better managing my pain. Once I took matters into my own hands and took a more proactive approach, things started falling into place. I changed my diet which reduced the pain and almost instantly eliminated the need for narcotics. With the reduced pain, it gave me the courage to have Mirena removed (it didn't agree with me...). Slowly but surely, I started eliminating the things that, at a minimum, were preventing me from feeling better OR made me feel worse. Seeing some shifts once I made a change was a real motivator and did wonders for my spirits!
I guess what I'm trying to say is that it's not a mind-over matter thing, as others that aren't going through it may lead you to believe. Granted, trying to have a positive attitude and some hope will get you a long way, but there are some very physical things going on that are part of recovery from surgery and from having a chronic disease, and they take a toll on your body. But, when you've recovered enough from all that you have going on in the immediate future, it might be worth your time to take a step back and evaluate what may be contributing to your fatigue and moods, and when you're able, slowly but surely take measures to minimize those things as much as you can when you're able, bit by bit. You may have to work at it a bit, but you're not alone!
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tammy
New Member
Posts: 10
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Post by tammy on Apr 12, 2012 6:26:04 GMT -5
Dear Karen Many thanks for this very useful message. Like you, I have a few other things contributing to the fatigue a. post-surgical complications b. bronchitis (which I am currently trying to recover from) and c. pain despite lap. And I think it is the feeling that it is one thing after the other as I had so many complications after the surgeries which is getting me down as normal life seems to be elusive. Even my surgeon says that I am the unluckiest patient he has ever had as things do not seem to settle down.
Since the surgery and my diagnosis, I did some research and found out about the endo diet which I have started. But I think it is too early (only 3 weeks) for me to see the benefits. Did you try anything else (other than narcotics to help you out with the pain)? I will def take stock once the bronchitis/infection are gone to see what else I can do to improve my energy levels and moods.
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tammy
New Member
Posts: 10
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Post by tammy on Apr 12, 2012 6:26:43 GMT -5
Hi!! Thanks for the message!!! HI Tammy! Welcome! I haven't had a surgery in 10 years so I'm sorry I'm not much help, just wanted to say hello!
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newsy
New Member
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Post by newsy on Oct 31, 2012 11:20:09 GMT -5
I had my lap/hysteroscopy about 3 weeks ago & I still have a lot of pain too. I talked to my doctor and he said that my pain now is going to be as bad if not worse than my pain before due to inflammation from removing the endo & phantom pain- when a person has chronic pain for years, the body takes some time to adjust. I know I'm seeing this way after you posted it & you're hopefully feeling better now but just for anyone in a similar situation- it's good to give your body some time to heal. I am taking Aygestin to stop my cycle completely & changed to an anti-estrogenic diet & I still have pain even with my ultram but I'm trying to stay hopeful
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