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Post by jessabug on Aug 17, 2011 14:09:32 GMT -5
it's so funny that you guys say that, because I find that cancer is the closest thing i can describe endo's habits to also! But I always feel weird doing it because it's like, cancer is life threatening whereas endo isn't as often (except in super extreme cases).. but it's true. it follows the same patterns, has the same "stage" thing too. I was surprised because when I explained endo like cancer to my mom, that was when she finally understood. I think that again this all just boils down to a lack of awareness. I don't think it's necessarily that people don't think endo is bad, I think that they're uneducated so they don't know that endo can be bad. I mean, think about it. Cancer awareness is EVERYWHERE. Endo awareness, sadly, isn't. I think that's why comparing endo to cancer causes a lightbulb to go off in peoples' heads. Cancer they understand. Endo they don't.
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Post by JC on Aug 17, 2011 14:37:57 GMT -5
Yeah I agree. When I took my husband to one of my doctor appointments, my doctor literally said, "This isn't cancer but it behaves just like it." I think it FINALLY made sense.
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Post by vrolla64 on Aug 20, 2011 13:24:35 GMT -5
I had to laugh out loud at a couple of these comments said by others. Wow. Talk about ignorant!! I like "I think you have surgeries just so you can take sick leave." My alltime favorite, "I get bad cramps too. Enough where I am doubled over." Okay, does it feel like you are having birth contractions every month or having low grade labor pains the rest of the month?"
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Post by Kirsty on Aug 20, 2011 19:39:59 GMT -5
OMG! People have actually said this too you??? how can people just say like its no big deal just have a hysterectomy. I would be MAD!!!
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Post by Lady Tewlie :P on Aug 23, 2011 20:24:26 GMT -5
The best doctor I've ever had is one of the human beings I respect the most because if he didn't know something, he would tell you, "you know, I don't know about that, but I'm going to look into it." And then he would! And he'd get back with you about it! He's an Ears, Nose, Throat specialist, but I try to go to him for as much as I can justify as being vaguely in that region.
The worst thing that a doctor has said to me is that my continued swelling and inflammation at my surgery site 2 months later that I was characterizing as "feeling like someone was digging out my ovary with a spoon" (and which they noted in my record as "patient still complaining of discomfort") was not "gynecological", even though I had 3 scans done on my pelvic and abdominal area, each evaluated by different techs, and each saying there was clearly something related to my surgical site going on. And then he said there was nothing they could do for me and referred me to a pain management specialist. Which is code for "I'm afraid I don't know the answer, so I'm afraid I'm going to look weak or culpable and you're going to sue me, so I'm going to discredit you and pretend it's completely unrelated or more likely completely in your head."
Don't doctors realize that most reasonable people realize sh*t happens during and after surgery that isn't automatically the fault of the doctor, and if they do right by you and just try to fix your very real problems, especially as a result of the doctor's work (not a fault of it), you just want them to follow up and help. Personally, I wonder how many people begin to feel litigious when the feel abandoned, labeled as hypochondriacs, left with no options, including even fewer options for pain management because now they are labeled crazy/drug seekers?
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mskim
New Member
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Post by mskim on Nov 16, 2014 12:16:31 GMT -5
This topic is old as the hills,but I've got one to add...he week before I had surgery, a lady I used to work with stopped at my desk and asked how things were going. Mind you it had been a rough week - my good friend's daughter lost her baby full term, and I was a nervous wreck about having surgery - this lady says to me "I just don't understand why my girls, oh, and me for that matter, had no trouble at all having babies, when there are people like you who can't! I mean, they didn't even have any business having babies, they were so young!"
I can't exactly recall what my expression was - something between get the eff out of my office and please just stop talking. Really...who says that kind of thing?!
My mom used to be in the 'try to exercise more' camp, but after hearing the doctor's report after surgery, I think she's finally realized what exactly I'm dealing with. Now if I can just get people to back the eff off about having kids...
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TMM03
New Member
Posts: 32
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Post by TMM03 on Nov 16, 2014 18:06:39 GMT -5
From my mom, who had hers removed when she was 21 (so she really has no clue): "You're just getting old."
God love her, but every time she says that when I feel like crap I just want to punch her.
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Post by doreenhedgehog on Oct 7, 2018 6:07:17 GMT -5
Well meaning I guess, but a few people gave given me a sympathetic look and told me that “i’ have that but I still managed to have childeren.” or “Well not every woman who has it can’t have kids”
Just because i’m a woman doesn’t mean that I can’t feel anything other than heartbreak over the thought of endometriosis making me infertile. In fact, all I actually care about is stopping the constant feeling of being on my period and the weight gain.
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